GEM: Impact of a Video Education Tool on Decisional Conflict Among Prenatal Patients

NCT ID: NCT06771453

Last Updated: 2025-09-18

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Clinical Phase

NA

Total Enrollment

140 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-01-16

Study Completion Date

2026-02-28

Brief Summary

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The goal of this randomized clinical trial is to assess the impact of a video educational tool on patient decisional conflict at the time when making a decision about prenatal genetic testing. The control group will receive standard prenatal care.

The secondary aims include assessing the impact of the video educational tool versus standard care on pregnant participants': perception of likelihood of having a baby affected by a genetic problem, intended plan for genetic testing, patient-provider communication, retention of prenatal genetics knowledge, and perception of genetic data privacy.

Participants will be asked to:

1. Watch video education (if randomized to this group) and complete a baseline survey at their dating ultrasound regarding knowledge of prenatal genetics, prior experiences, and demographics
2. Complete a follow up survey after seeing their prenatal care provider regarding: decisional conflict scale with respect to prenatal genetic testing decision (primary outcome), perception of likelihood of having a baby affected by a genetic problem (secondary outcome) and the type of genetic testing chosen (secondary outcome).
3. Complete a second follow up survey six to ten weeks from the second survey to assess: Provider patient communication, retention of genetics knowledge, patient recollection of testing performed, and self-reported out of pocket cost related to genetic testing.

Detailed Description

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Conditions

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Aneuploidy Genetic Counseling Informed Consent Decisional Conflict

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

OTHER

Blinding Strategy

DOUBLE

Caregivers Investigators

Study Groups

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Usual Prenatal Care

The patient will receive routine prenatal care with no video education.

Group Type NO_INTERVENTION

No interventions assigned to this group

Video Educational Tool Arm

The patient receives routine prenatal care plus video education on prenatal genetics.

Group Type EXPERIMENTAL

Video Educational Tool Regarding Prenatal Genetics

Intervention Type OTHER

Video education about prenatal genetics will include content regarding aneuploidy screening and diagnostic testing options, how to make a values-based choice, and specifics of risks/benefits/limitations of each type of testing option.

Interventions

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Video Educational Tool Regarding Prenatal Genetics

Video education about prenatal genetics will include content regarding aneuploidy screening and diagnostic testing options, how to make a values-based choice, and specifics of risks/benefits/limitations of each type of testing option.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Patient ≥ 18 years of age
* Preferred language English or Spanish
* Singleton pregnancy
* No documentation of genetic screening results or counseling during this pregnancy
* Gestational age \<24 weeks

Exclusion Criteria

* Diagnosed with a fetal anomaly
* Diagnosed with known abnormal nuchal translucency test
* Diagnosed with fetal loss
* Use of a donor oocyte (egg) this pregnancy
* Prior involvement in other research study regarding prenatal genetic testing in the past two years
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Women and Infants Hospital of Rhode Island

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Women and Infants

Providence, Rhode Island, United States

Site Status

Countries

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United States

Provided Documents

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Document Type: Study Protocol and Statistical Analysis Plan

View Document

Document Type: Informed Consent Form

View Document

Other Identifiers

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1721550

Identifier Type: -

Identifier Source: org_study_id

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