Family Caregiver Online Survey (Dementia and Swallowing Difficulties)

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

219 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-11-07

Study Completion Date

2025-07-14

Brief Summary

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The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).

Detailed Description

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This research aims to increase our understanding of dysphagia-related caregiver burden and inform the development of a comprehensive dysphagia intervention, one that promotes the health and quality of life of both the caregiver and the person with dementia.

Aim 1. Quantify dysphagia's contribution to burden among family caregivers of persons with dementia across the disease trajectory to identify when may be best to intervene.

Aim 2. Characterize the moderating effects of caregiver readiness and support on dysphagia-related burden and care recipient quality of life to identify what are the most appropriate intervention targets.

Conditions

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Dementia Dysphagia Dementia Alzheimers Dementia, Vascular Dementia, Mixed Dementia With Lewy Bodies Dementia Frontal Dementia, Mild Dementia Moderate Dementia Severe Parkinson Disease Dementia Dementia Frontotemporal

Keywords

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caregiver family caregiver care partner survey remote virtual dementia dysphagia

Study Design

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Observational Model Type

OTHER

Study Time Perspective

CROSS_SECTIONAL

Eligibility Criteria

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Inclusion Criteria

* Be a caregiver for a family member (or chosen family member) with dementia
* Have been caregiving for at least 2 months
* Live at home with the care recipient
* Not be paid for the care provided
* Be over the age of 18
* Live in the US

Exclusion Criteria

* Not be a caregiver for a family member (or chosen family member) with dementia
* Have been caregiving for less than 2 months
* Not live at home with the care recipient
* Be paid for the care provided
* Be under the age of 18
* Live outside in the US

Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Samantha Shune

Role: PRINCIPAL_INVESTIGATOR

The University of Oregon

Locations

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Remote study offered by the University of Oregon

Eugene, Oregon, United States

Site Status

Countries

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United States

Other Identifiers

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STUDY00000738

Identifier Type: -

Identifier Source: org_study_id