Assessment of Nutritional and Growth Status in Rett Syndrome Patients

NCT ID: NCT06335368

Last Updated: 2024-03-28

Basic Information

• Recruitment Status: COMPLETED
• Total Enrollment: 70 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2016-03-09
• Study Completion Date: 2020-10-26

Brief Summary

Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.

Conditions

Rett Syndrome; Neurologic Disorder

Study Design

• Observational Model Type: CASE_ONLY
• Study Time Perspective: RETROSPECTIVE

Interventions

Nutrition and Growth Status

Nutrition and Growth Status

Intervention Type: OTHER

Eligibility Criteria

Inclusion Criteria

• Rett syndrome patient.

Exclusion Criteria

• Not Rett syndrome patient.

• Minimum Eligible Age: 1 Year
• Maximum Eligible Age: 18 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: No

Sponsors

National Taiwan University Hospital

OTHER

Sponsor Role: lead

Responsible Party

Responsibility Role: SPONSOR

Other Identifiers

201512178RINC

Identifier Type: -

Identifier Source: org_study_id