Low Dose Rapamycin in ME/CFS, Long-COVID, and Other Infection Associated Chronic Conditions

NCT ID: NCT06257420

Last Updated: 2024-11-05

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ENROLLING_BY_INVITATION

Total Enrollment

150 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-12-11

Study Completion Date

2026-06-11

Brief Summary

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The goal of this observational study is to assess the clinical response and the effect of autophagy function in patients before, during and throughout oral low dose sirolimus (rapamycin) therapy. The main questions this study aims to answer are:

* Does rapamycin reduce the overall symptom burden in this patient population and does it improve the quality of life?
* Does rapamycin change mTOR driven autophagy deficits observed in a subset of patients?

Participants will be asked to complete a series of questionnaires and quality of life instruments before starting rapamycin therapy prescribed by their physician and throughout their course of treatment. Study blood samples will be collected before starting therapy and throughout the course of treatment to assess serological markers of autophagy function.

Detailed Description

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Conditions

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Myalgic Encephalomyelitis Long-COVID

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

PROSPECTIVE

Study Groups

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ME/CFS and Long-COVID patients with serological evidence of autophagy disruption

ME/CFS and Long-COVID patients with serological evidence of autophagy disruption at baseline will be prescribed once weekly rapamycin at a max dose of 6mg per week.

Rapamycin

Intervention Type DRUG

Once weekly oral rapamycin

ME/CFS and Long-COVID patients without serological evidence of autophagy disruption

ME/CFS and Long-COVID patients without serological evidence of autophagy disruption at baseline will be prescribed once weekly rapamycin at a max dose of 6mg per week.

Rapamycin

Intervention Type DRUG

Once weekly oral rapamycin

Interventions

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Rapamycin

Once weekly oral rapamycin

Intervention Type DRUG

Other Intervention Names

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Sirolimus Rapamune

Eligibility Criteria

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Inclusion Criteria

* Diagnosis of ME/CFS that meets the Institute of Medicine (IOM) criteria
* Diagnosis of Long-COVID (PASC clinical criteria)

Exclusion Criteria

* No diagnosis of ME/CFS or Long-COVID
Minimum Eligible Age

18 Years

Maximum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Center For Complex Diseases-Seattle, WA

UNKNOWN

Sponsor Role collaborator

Sierra Internal Medicine, Incline Village, NV

UNKNOWN

Sponsor Role collaborator

Center for Complex Diseases- Palo Alto, CA

UNKNOWN

Sponsor Role collaborator

Simmaron Research Inc. R&D Lab, University of Wisconsin, Milwaukee (UWM)

UNKNOWN

Sponsor Role collaborator

Bateman Horne Center, Salt Lake City, UT

UNKNOWN

Sponsor Role collaborator

Mayo Clinic

OTHER

Sponsor Role collaborator

Simmaron Research Inc.

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Gunnar Gottschalk, PhD

Role: PRINCIPAL_INVESTIGATOR

Simmaron Research Inc.

Locations

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Center For Complex Diseases

Palo Alto, California, United States

Site Status

The Mayo Clinic

Rochester, Minnesota, United States

Site Status

Sierra Internal Medicine

Incline Village, Nevada, United States

Site Status

Bateman Horne Center

Salt Lake City, Utah, United States

Site Status

Center For Complex Diseases

Seattle, Washington, United States

Site Status

Countries

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United States

References

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Gottschalk G, Peterson D, Knox K, Maynard M, Whelan RJ, Roy A. Elevated ATG13 in serum of patients with ME/CFS stimulates oxidative stress response in microglial cells via activation of receptor for advanced glycation end products (RAGE). Mol Cell Neurosci. 2022 May;120:103731. doi: 10.1016/j.mcn.2022.103731. Epub 2022 Apr 26.

Reference Type BACKGROUND
PMID: 35487443 (View on PubMed)

Gottschalk CG, Whelan R, Peterson D, Roy A. Detection of Elevated Level of Tetrahydrobiopterin in Serum Samples of ME/CFS Patients with Orthostatic Intolerance: A Pilot Study. Int J Mol Sci. 2023 May 13;24(10):8713. doi: 10.3390/ijms24108713.

Reference Type BACKGROUND
PMID: 37240059 (View on PubMed)

Related Links

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http://www.simmaron.com

Simmaron Website

Other Identifiers

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SRI-RP-2023-1

Identifier Type: -

Identifier Source: org_study_id

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