Trial Outcomes & Findings for Adapting an Advocacy Services Intervention for Latinx Families of Transition-aged Youth With Autism Spectrum Disorder (NCT NCT06207149)

NCT ID: NCT06207149

Last Updated: 2024-10-30

Results Overview

The Family Empowerment Scale (the full scale name) measures the constructs of empowerment in relation to the family, community, and service delivery system.Higher scores indicate greater empowerment (thus, higher scores means a better outcome). The scale ranges from 12 (minimum) to 55 (maximum). The items are summed to create a total score. Unabbreviated scale title is Community and Political Empowerment. The construct that the Community and Political Subscale measures is empowerment within the community and political contexts.

Recruitment status

COMPLETED

Study phase

Target enrollment

48 participants

Primary outcome timeframe

Pre, Post (three months after the Intervention group takes the training), and Follow-up (six months after the intervention group takes the training)

Results posted on

2024-10-30

Participant Flow

Participant milestones

Participant milestones
Measure	Intervention Participants will attend an advocacy program. ASISTIR: This will be a 24 hour advocacy program focused on adult disability services.	Waitlist-Control Group Participants will receive the written materials of the advocacy program. After completing the intervention group completes the advocacy program, the waitlist-control group participants will be able to participate in the advocacy program. ASISTIR: This will be a 24 hour advocacy program focused on adult disability services.
Overall Study STARTED	24	24
Overall Study COMPLETED	17	13
Overall Study NOT COMPLETED	7	11

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Adapting an Advocacy Services Intervention for Latinx Families of Transition-aged Youth With Autism Spectrum Disorder

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure	Intervention n=24 Participants Participants will attend an advocacy program. ASISTIR: This will be a 24 hour advocacy program focused on adult disability services.	Waitlist-Control Group n=24 Participants Participants will receive the written materials of the advocacy program. After completing the intervention group completes the advocacy program, the waitlist-control group participants will be able to participate in the advocacy program. ASISTIR: This will be a 24 hour advocacy program focused on adult disability services.	Total n=48 Participants Total of all reporting groups
Age, Continuous	45.75 years STANDARD_DEVIATION 9.35 • n=5 Participants	44.72 years STANDARD_DEVIATION 6.12 • n=7 Participants	44.74 years STANDARD_DEVIATION 7.73 • n=5 Participants
Sex: Female, Male Female	18 Participants n=5 Participants	23 Participants n=7 Participants	41 Participants n=5 Participants
Sex: Female, Male Male	6 Participants n=5 Participants	1 Participants n=7 Participants	7 Participants n=5 Participants
Ethnicity (NIH/OMB) Hispanic or Latino	24 Participants n=5 Participants	24 Participants n=7 Participants	48 Participants n=5 Participants
Ethnicity (NIH/OMB) Not Hispanic or Latino	0 Participants n=5 Participants	0 Participants n=7 Participants	0 Participants n=5 Participants
Ethnicity (NIH/OMB) Unknown or Not Reported	0 Participants n=5 Participants	0 Participants n=7 Participants	0 Participants n=5 Participants
Region of Enrollment United States	24 participants n=5 Participants	24 participants n=7 Participants	48 participants n=5 Participants
Adult Disability Services Knowledge	5.71 units on a scale STANDARD_DEVIATION 4.35 • n=5 Participants	4.16 units on a scale STANDARD_DEVIATION 3.27 • n=7 Participants	4.94 units on a scale STANDARD_DEVIATION 4.09 • n=5 Participants
Individual Advocacy Activities	18.50 units on a scale STANDARD_DEVIATION 6.05 • n=5 Participants	16.21 units on a scale STANDARD_DEVIATION 3.55 • n=7 Participants	16.43 units on a scale STANDARD_DEVIATION 5.01 • n=5 Participants
Advocacy Skills and Comfort	26.72 units on a scale STANDARD_DEVIATION 8.35 • n=5 Participants	28.21 units on a scale STANDARD_DEVIATION 6.40 • n=7 Participants	28.04 units on a scale STANDARD_DEVIATION 8.500 • n=5 Participants
Family Empowerment	47.27 units on a scale STANDARD_DEVIATION 7.69 • n=5 Participants	44.21 units on a scale STANDARD_DEVIATION 7.15 • n=7 Participants	46.43 units on a scale STANDARD_DEVIATION 7.75 • n=5 Participants
Services Empowerment	46.54 units on a scale STANDARD_DEVIATION 8.84 • n=5 Participants	43.89 units on a scale STANDARD_DEVIATION 7.78 • n=7 Participants	45.59 units on a scale STANDARD_DEVIATION 8.46 • n=5 Participants
Community Political Empowerment	30.72 units on a scale STANDARD_DEVIATION 7.25 • n=5 Participants	29.94 units on a scale STANDARD_DEVIATION 6.78 • n=7 Participants	30.29 units on a scale STANDARD_DEVIATION 6.34 • n=5 Participants
Number of Services Received	.55 units on of measure of services STANDARD_DEVIATION .88 • n=5 Participants	1.00 units on of measure of services STANDARD_DEVIATION 1.19 • n=7 Participants	.67 units on of measure of services STANDARD_DEVIATION 1.0 • n=5 Participants
Unmet Service Needs	1.33 units on a scale STANDARD_DEVIATION 2.24 • n=5 Participants	1.63 units on a scale STANDARD_DEVIATION 1.69 • n=7 Participants	1.61 units on a scale STANDARD_DEVIATION 2.23 • n=5 Participants

PRIMARY outcome

Timeframe: Pre, Post (three months after the Intervention group takes the training), and Follow-up (six months after the intervention group takes the training).

A multiple-choice, multi-item scale assessing knowledge about adult disability services. Higher scores indicate greater knowledge (thus, higher scores are considered better outcomes). The scale ranges from 0 (minimum) to 24 (maximum). Unabbreviated scale title is Knowledge. The construct it measures is knowledge of adult disability services.