A Registry for People With T-cell Lymphoma

NCT ID: NCT05978141

Last Updated: 2025-05-21

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

1000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-07-27

Study Completion Date

2030-07-27

Brief Summary

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The purpose of this registry study is to create a database-a collection of information-for better understanding T-cell lymphoma. Researchers will use the information from this database to learn more about how to improve outcomes for people with T-cell lymphoma.

Detailed Description

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Conditions

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T-cell Lymphoma NK-Cell Lymphoma T-cell Prolymphocytic Leukemia T-cell Large Granular Lymphocytic Leukemia Chronic Lymphoproliferative Disorder of NK Cells Aggressive NK-cell Leukemia Systemic Epstein-Barr Virus Positive T-Cell Lymphoproliferative Disease of Childhood (Disorder) Systemic Epstein Barr Virus Positive T-Cell Lymphoproliferative Disease of Childhood Chronic Active EBV Infection of T-and NK-Cell Type, Systemic Form Hydroa Vacciniforme-Like Lymphoproliferative Disorder Adult T-cell Leukemia/Lymphoma Extranodal NK/T-cell Lymphoma, Nasal Type Enteropathy-associated T-cell Lymphoma Monomorphic Epitheliotropic Intestinal T-Cell Lymphoma Intestinal T-Cell Lymphoma, Not Otherwise Specified Indolent T-Cell Lymphoproliferative Disorder of the Gastrointestinal Tract Hepatosplenic T-cell Lymphoma Subcutaneous Panniculitis-Like T-Cell Lymphoma Mycosis Fungoides Sezary Syndrome Primary Cutaneous Anaplastic Large Cell Lymphoma Primary Cutaneous T-cell Lymphoma Primary Cutaneous CD8-Positive Aggressive Epidermotropic T-Cell Lymphoma Primary Cutaneous Acral CD8-Positive T-Cell Lymphoma Peripheral T-Cell Lymphoma, Not Otherwise Specified Angioimmunoblastic T-cell Lymphoma Follicular T-Cell Lymphoma Nodal Peripheral T-Cell Lymphoma With TFH Phenotype Anaplastic Large Cell Lymphoma, ALK-Positive Anaplastic Large Cell Lymphoma, ALK-negative Breast Implant-Associated Anaplastic Large Cell Lymphoma

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Participants with T-Cell Lymphoma

Participants with pathologically-confirmed mature T- or natural killer (NK)-cell lymphoma

Optional Blood Sample and Nail Sample

Intervention Type OTHER

Participants may provide optional research blood and nail samples for biobanking and future use

Interventions

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Optional Blood Sample and Nail Sample

Participants may provide optional research blood and nail samples for biobanking and future use

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Written informed consent
* Adequate fresh or archival tumor biopsy or intent to obtain fresh tumor biopsy.
* Pathologically-confirmed mature T- or natural killer (NK)-cell lymphoma meeting one of the following diagnostic criterion (based on WHO classification and NCCN guidelines):

* T-cell prolymphocytic leukemia
* T-cell large granular lymphocytic leukemia
* Chronic lymphoproliferative disorder of NK cells
* Aggressive NK-cell leukemia
* Systemic Epstein-Barr virus (EBV)-positive T-cell lymphoma of childhood
* Chronic active EBV infection of T- and NK-cell type, systemic form
* Hydroa vacciniforme-like lymphoproliferative disorder
* Adult T-cell leukemia/lymphoma
* Extranodal NK/T-cell lymphoma, nasal type
* Enteropathy-associated T-cell lymphoma
* Monomorphic epitheliotropic intestinal T-cell lymphoma
* Intestinal T-cell lymphoma, not otherwise specified (NOS)
* Indolent T-cell lymphoproliferative disorder of the gastrointestinal tract
* Hepatosplenic T-cell lymphoma
* Subcutaneous panniculitis-like T-cell lymphoma
* Mycosis fungoides (limited to those with ≥ stage IB disease and those receiving active therapy)
* Sézary syndrome
* Primary cutaneous anaplastic large cell lymphoma (receiving systemic therapy)
* Primary cutaneous Gamma-Delta T-cell lymphoma
* Primary cutaneous CD8+ aggressive epidermotropic cytotoxic T-cell lymphoma
* Primary cutaneous acral CD8+ T-cell lymphoma (receiving systemic therapy)
* Peripheral T-cell lymphoma, not otherwise specified
* Angioimmunoblastic T-cell lymphoma
* Follicular T-cell lymphoma
* Nodal peripheral T-cell lymphoma with TFH phenotype
* Anaplastic large cell lymphoma, ALK-positive
* Anaplastic large cell lymphoma, ALK-negative
* Breast-implant associated anaplastic large cell lymphoma.
* NOTE: Patients with diagnoses of mycosis fungoides, primary cutaneous anaplastic large cell lymphoma, and/or primary cutaneous acral CD8+ T-cell lymphoma must be receiving systemic therapy.

Exclusion Criteria

* Patients with of mycosis fungoides, primary cutaneous anaplastic large cell lymphoma, and/or primary cutaneous acral CD8+ T-cell lymphoma not receiving systemic therapy.
* Inability to collect prospective data, measure response, or perform adequate follow-up assessments in the clinical judgment of the treating physician. NOTE: Repository participation does not exclude participation in clinical trials, nor does existing clinical trial participation exclude enrollment in the study herein outlined.
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Memorial Sloan Kettering Cancer Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Steven Horwitz, MD

Role: PRINCIPAL_INVESTIGATOR

Memorial Sloan Kettering Cancer Center

Locations

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City of Hope Cancer Center (Data collection only)

Duarte, California, United States

Site Status NOT_YET_RECRUITING

UNIVERSITY OF CALIFORNIA SAN DIEGO (Data collection only)

San Diego, California, United States

Site Status NOT_YET_RECRUITING

University of California San Francisco (Data collection only)

San Francisco, California, United States

Site Status NOT_YET_RECRUITING

Stanford University Medical Center (Data collection only)

Stanford, California, United States

Site Status NOT_YET_RECRUITING

University of Colorado (Data Collection Only)

Aurora, Colorado, United States

Site Status NOT_YET_RECRUITING

Yale University (Data Collection Only)

New Haven, Connecticut, United States

Site Status NOT_YET_RECRUITING

University of Miami (Data Collection Only)

Miami, Florida, United States

Site Status NOT_YET_RECRUITING

Moffitt Cancer Center (Data Collection Only)

Tampa, Florida, United States

Site Status NOT_YET_RECRUITING

Emory University (Data Collection Only)

Atlanta, Georgia, United States

Site Status NOT_YET_RECRUITING

Northwestern Medicine (Data Collection)

Chicago, Illinois, United States

Site Status NOT_YET_RECRUITING

Massachusetts General Hospital (Data Collection Only)

Boston, Massachusetts, United States

Site Status NOT_YET_RECRUITING

Dana Farber Cancer Institute (Data Collection Only)

Boston, Massachusetts, United States

Site Status NOT_YET_RECRUITING

Mayo Clinic (Data Collection Only)

Rochester, Minnesota, United States

Site Status NOT_YET_RECRUITING

Washington University (Data Collection Only)

St Louis, Missouri, United States

Site Status NOT_YET_RECRUITING

University of Nebraska (Data collection only)

Omaha, Nebraska, United States

Site Status NOT_YET_RECRUITING

Memorial Sloan Kettering at Basking Ridge (All protocol activities)

Basking Ridge, New Jersey, United States

Site Status RECRUITING

Memorial Sloan Kettering Monmouth (All protocol activities)

Middletown, New Jersey, United States

Site Status RECRUITING

Memorial Sloan Kettering Cancer Center @ Suffolk-Commack (All protocol activities)

Commack, New York, United States

Site Status RECRUITING

Memorial Sloan Kettering Westchester (All protocol activities)

Harrison, New York, United States

Site Status RECRUITING

Weill Cornell Medical Center (Data Collection Only)

New York, New York, United States

Site Status NOT_YET_RECRUITING

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

New York, New York, United States

Site Status RECRUITING

Memorial Sloan Kettering Nassau (All protocol activities)

Uniondale, New York, United States

Site Status RECRUITING

Ohio State University (Data Collection Only)

Columbus, Ohio, United States

Site Status NOT_YET_RECRUITING

University of Pennsylvania (Data Collection Only)

Philadelphia, Pennsylvania, United States

Site Status NOT_YET_RECRUITING

Thomas Jefferson University Hospital (Data collection only)

Philadelphia, Pennsylvania, United States

Site Status NOT_YET_RECRUITING

MD Anderson Cancer Center (Data Collection Only)

Houston, Texas, United States

Site Status NOT_YET_RECRUITING

Countries

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United States

Central Contacts

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Steven Horwitz, MD

Role: CONTACT

646-608-2680

Alison Moskowitz, MD

Role: CONTACT

646-608-3726

Facility Contacts

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Jasmine Zain, MD

Role: primary

626-359-8111

Aaron Goodman, MD

Role: primary

858-822-6100

Weiyun Ai, MD

Role: primary

415-353-2421

Michael Khodadoust, MD

Role: primary

650-725-5071

Bradley Haverkos, MD

Role: primary

212-639-3983

Francine Foss, MD

Role: primary

203-200-4363

Jonathan Schatz, MD

Role: primary

305-243-5302

Lubomir Sokol, MD, PhD

Role: primary

888-663-3488

Pamela Allen, MD, MSc

Role: primary

404-778-0519

Jaehyuk Choi, MD, PhD

Role: primary

312-695-8106

Salvia Jain, MD

Role: primary

857-392-4495

Eric D Jacobsen, MD

Role: primary

877-442-3324

Nora Bennani, MD

Role: primary

507-284-2511

Neha Mehta-Shah, MD, MSCI

Role: primary

314-747-1171

Matthew Lunning, DO, FACP

Role: primary

402-559-4000

Steven Horwitz, MD

Role: primary

646-608-2680

Steven Horwitz, MD

Role: primary

646-608-2680

Steven Horwitz, MD

Role: primary

646-608-2680

Steven Horwitz, MD

Role: primary

646-608-2680

Jia Ruan, MD, PhD

Role: primary

646-962-2064

Steven Horwitz, MD

Role: primary

646-608-2680

Steven Horwitz, MD

Role: primary

646-608-2680

John Reneau, MD, PhD

Role: primary

614-293-8000

Stefan Barta, MD, MS, MRCPCUK

Role: primary

(215) 316-5151

Pierluigi Porcu, MD

Role: primary

215-955-8874

Swami Iyer, MD

Role: primary

713-352-2952

Related Links

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http://www.mskcc.org

Memorial Sloan Kettering Cancer Center

Other Identifiers

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23-190

Identifier Type: -

Identifier Source: org_study_id

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