Communication Issues in Patient and Provider Discussions of Immunotherapy

NCT ID: NCT05873608

Last Updated: 2025-04-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

125 participants

Study Classification

INTERVENTIONAL

Study Start Date

2016-10-06

Study Completion Date

2026-11-17

Brief Summary

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This trials studies communication issues in patient and provider discussions about immunotherapy. The goal of this study is to describe where patients have heard about immunotherapy, what the participants understand about it, how physicians and other healthcare workers describe immunotherapy, and how educational videos may support patient knowledge about immunotherapy.

Detailed Description

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PRIMARY OBJECTIVES:

I. To identify misestimations about the risks and benefits of immunotherapy resulting from media hype or other sources and assess if these misestimations persist post-provider conversation about immunotherapy.

II. To qualitatively describe patient reported misunderstandings and to assess patient understanding of technical terms and metaphors used in the immunotherapy conversation.

III. To identify provider and patient preferences for information to be communicated about immunotherapy.

IV. Develop videos that describe immunotherapy and test their efficacy in improving understanding using pre and post methodology.

OUTLINE:

Patients and their providers undergo observation during a conversation about immunotherapy. Then participate in an interview over 20 minutes. Understanding of educational videos is then tested.

Conditions

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Hematopoietic and Lymphoid System Neoplasm Malignant Solid Neoplasm

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

SINGLE_GROUP

For aim 4, each participant is assigned to watch a video and comprehension is tested using a pre and post method
Primary Study Purpose

OTHER

Blinding Strategy

NONE

Study Groups

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Interview

Patients and providers undergo observation during a conversation about immunotherapy. Then participate in an interview over 20 minutes.

Group Type OTHER

Interview

Intervention Type OTHER

Participate in interview

Observation

Intervention Type OTHER

Undergo observation

Aim 4 tests an educational video

The participants watch a video and their comprehension is tested in a pre and post methodology

Group Type OTHER

Educational video

Intervention Type OTHER

Testing an educational video

Interventions

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Educational video

Testing an educational video

Intervention Type OTHER

Interview

Participate in interview

Intervention Type OTHER

Observation

Undergo observation

Intervention Type OTHER

Other Intervention Names

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Inspection Visual Inspection

Eligibility Criteria

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Inclusion Criteria

* AIMS 1-3: All patients and providers who may have a discussion about immunotherapy at the Winship Cancer Institute
* AIM 4: Any cancer patient
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

Emory University

OTHER

Sponsor Role lead

Responsible Party

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Rebecca D. Pentz

Principal Investigator

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Rebecca Pentz, PhD

Role: PRINCIPAL_INVESTIGATOR

Emory University Hospital/Winship Cancer Institute

Locations

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Emory University Hospital/Winship Cancer Institute

Atlanta, Georgia, United States

Site Status RECRUITING

Atlanta VA Medical Center

Decatur, Georgia, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Rebecca Pentz, PhD

Role: CONTACT

404-778-5694

Facility Contacts

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Rebecca D. Pentz, PhD

Role: primary

404-778-5694

Margie Dixon

Role: backup

404-778-4379

Rebecca D. Pentz, PhD

Role: backup

Wayne B. Harris, MD

Role: primary

404-728-7680

Margie Dixon

Role: backup

404-778-4379

Wayne B. Harris, MD

Role: backup

Other Identifiers

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NCI-2020-00828

Identifier Type: REGISTRY

Identifier Source: secondary_id

IRB00091198

Identifier Type: -

Identifier Source: secondary_id

WINSHIP3293-16

Identifier Type: OTHER

Identifier Source: secondary_id

P01CA257906

Identifier Type: NIH

Identifier Source: secondary_id

View Link

P30CA138292

Identifier Type: NIH

Identifier Source: secondary_id

View Link

IRB00091198

Identifier Type: -

Identifier Source: org_study_id

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