Dementia Care Challenges Among a Sample of Informal Caregivers in Egypt

NCT ID: NCT05572086

Last Updated: 2022-10-07

Basic Information

• Recruitment Status: UNKNOWN
• Total Enrollment: 314 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2023-02-01
• Study Completion Date: 2024-06-01

Brief Summary

Dementia is a widespread incapacitating mental syndrome that carries a significant challenge for healthcare systems, persons with dementia, and their caregivers. The world health organization estimates that there is "more than 55 million persons live with dementia worldwide, and there are nearly 10 million new cases every year"

In Egypt there are many studies had investigated caregiver burden with chronic ill elderly as physical or psychiatric diseases; however, studies focusing on caregiving Patients With Dementia (PWD), especially the psychological aspect, has been raised just few years ago. Some focused on psychiatric comorbidities of care givers, others correlated caregivers' quality of life with dementia staging. Other research groups designed educational programs and psychosocial interventions for training informal caregivers with significant psychological burden reduction at the end of the studies , also another group focused their study on the negative emotions expressed by caregiver towards PWD. Still there are many aspects of caregiving not explored considering the financial burden, lack of formal educational resources, stigma, cultural and religious values related to caregiving.

Detailed Description

our study aims:

1. To assess challenges of dementia-related knowledge among a sample of dementia informal caregivers

2. To assess the needs of persons with dementia and their informal caregivers

3. To assess the burden of caregiving among a sample of dementia informal caregivers

4. To assess possible culturally related challenges of caregiving among a sample of dementia informal caregivers

The study will be carried out through face-to-face interview, telephone interview, and online survey from community sources, including support groups in social media, memory clinics, outpatient clinics (Geriatric medicine, neurology, or psychiatry), and social support groups of non-governmental organizations.

Conditions

Dementia

Study Design

• Observational Model Type: CASE_ONLY
• Study Time Perspective: CROSS_SECTIONAL

Eligibility Criteria

Inclusion Criteria

• Informal Caregivers aged 18 years or older
• Informal Caregiver in daily contact for care with the person with dementia for at least one year.

Exclusion Criteria

• Informal caregivers who are unable or unwilling to communicate.
• Formal caregivers

• Minimum Eligible Age: 18 Years
• Maximum Eligible Age: 60 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: No

Sponsors

Assiut University

OTHER

Sponsor Role: lead

Responsible Party

Asmaa Hasan

lecturer

Responsibility Role: PRINCIPAL_INVESTIGATOR

Other Identifiers

Dementia care challenges

Identifier Type: -

Identifier Source: org_study_id