A Study of ELX-02 in Patients With Alport Syndrome

NCT ID: NCT05448755

Last Updated: 2022-12-20

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Clinical Phase

PHASE2

Total Enrollment

8 participants

Study Classification

INTERVENTIONAL

Study Start Date

2022-11-28

Study Completion Date

2023-05-30

Brief Summary

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This is a Phase 2 open label pilot study to evaluate the safety and efficacy of subcutaneously administered ELX-02 in patients with X-linked or autosomal recessive Alport Syndrome with Col4A5 and Col4A3/4 nonsense mutation.

In total, up to 8 participants, with a minimum of 3 adults, will be enrolled in the trial.

The study will be comprised of the following periods for each participant:

* a Screening period of up to 6 weeks (42 days)
* a total Treatment Period of 8 weeks (60 days)
* a safety/efficacy Follow-up Period of 12 weeks (90 days) after the last treatment The Treatment Period will be a treatment of ELX-02 0.75 mg/kg SC QD for 8 weeks.

Detailed Description

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Conditions

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Alport Syndrome

Keywords

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Aminoglycoside Nonsense Mutation Translational read through

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Open label study drug treatment

Group Type EXPERIMENTAL

ELX-02

Intervention Type DRUG

ELX-02 is a small molecule, new chemical entity being developed for the treatment of genetic diseases caused by nonsense mutations. ELX-02 is a eukaryotic ribosomal selective glycoside (ERSG).

Interventions

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ELX-02

ELX-02 is a small molecule, new chemical entity being developed for the treatment of genetic diseases caused by nonsense mutations. ELX-02 is a eukaryotic ribosomal selective glycoside (ERSG).

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* A confirmed diagnosis of X-linked or autosomal recessive Alport Syndrome with a documented nonsense mutation of Col4A5 in a male or nonsense mutation of Col4A3 or Col4A4 (male or female)
* The nonsense mutation should be UAG or UGA
* eGFR\>60 ml/min/1.73 m2 (based on CKD-EPI for ages ≥18 and Schwartz formula for participants \<18)
* Urinary protein based on two spot urine collections \[urine protein/creatinine ratio (UPCR) ≥ 500 mg/g\]
* Stable regimen of ACEi/ARB for at least 4 weeks before screening (unless there is a contraindication)

Exclusion Criteria

* History of any organ transplantation
* Mutation consistent with autosomal dominant Alport Syndrome
* Liver disease characterized by cirrhosis or portal hypertension. Participants with alanine aminotransferase (ALT), aspartate aminotransferase (AST), and/or a total bilirubin 3.0 times the upper limit of normal (ULN) will be excluded
* History of congestive heart failure diagnosed clinically or with documented left ventricular ejection fraction (LVEF) ≤ 40%
* History of dialysis
Minimum Eligible Age

6 Years

Maximum Eligible Age

30 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Eloxx Pharmaceuticals, Inc.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Monash Medical Center

Clayton, Victoria, Australia

Site Status RECRUITING

Royal Children's Hospital

Parkville, Victoria, Australia

Site Status NOT_YET_RECRUITING

Royal Free Hospital

London, , United Kingdom

Site Status RECRUITING

Great Ormond Street Hospital

London, , United Kingdom

Site Status RECRUITING

Countries

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Australia United Kingdom

Central Contacts

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Eloxx Pharmaceuticals

Role: CONTACT

Phone: +1(781) 577-5300

Email: [email protected]

Facility Contacts

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Jayasinghe Kushani, MD

Role: primary

Jo Nandkumar

Role: backup

Catherine Quinlan, MD

Role: primary

Lauren Shaw

Role: backup

Daniel Gale, MD

Role: primary

Rachel Davies

Role: backup

Detlef Bockenhauer, MD

Role: primary

Laura Chiverton

Role: backup

References

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Rheault MN. Treatment Approaches for Alport Syndrome. J Am Soc Nephrol. 2025 Sep 12. doi: 10.1681/ASN.0000000897. Online ahead of print.

Reference Type DERIVED
PMID: 40938675 (View on PubMed)

Related Links

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http://www.eloxxpharma.com

Eloxx Pharmaceuticals Website

Other Identifiers

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EL-014

Identifier Type: -

Identifier Source: org_study_id