Adoption of L-PZQ for Schistosomiasis by Endemic Counties - Social Science Research Study

NCT ID: NCT05350462

Last Updated: 2023-12-01

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Total Enrollment

225 participants

Study Classification

OBSERVATIONAL

Study Start Date

2021-12-01

Study Completion Date

2025-12-31

Brief Summary

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Knowledge, acceptability and perception of paediatric schistosomiasis and its treatment will be explored through a social science-driven mixed-methods approach within three endemic countries: Kenya, Uganda and Côte d'Ivoire.

Detailed Description

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In many African countries, the worm disease schistosomiasis, also known as bilharzia, is a serious problem that affects the health of many people. An estimated 50 million pre-school children in sub-Saharan Africa are affected, but are currently excluded from routine preventive chemotherapy with praziquantel because there is no suitable preparation for this age group. As a result, the public-private Pediatric Praziquantel Consortium, led by the pharmaceutical company Merck, has developed Levo-Praziquantel 150 mg, which is child-friendly in dosage as well as in tolerability and taste. The European \& Developing Countries Clinical Trials Partnership (EDCTP) programme, together with the Global Health Innovation Technology Fund (GHIT), is funding the conduct of an implementation study "ADOPT - Adoption of Levo-Praziquantel 150mg for Schistosomiasis by endemic countries" to prepare for the introduction of Levo-Praziquantel in the partner countries Kenya, Côte d'Ivoire and Uganda, where schistosomiasis is endemic.

This study protocol describes the social science research part of the implementation project (Work Package 1). It aims to provide important insights into local conditions as well as knowledge, perceptions and management of schistosomiasis among the population in each of the three study countries, particularly among parents of young children and health workers. In addition, possible factors influencing the introduction and acceptance of the new preparation will be identified, as well as ideal platforms for this. Furthermore, the implementation pilot study will be accompanied and its implementation investigated.

The mixed-methods study with a focus on qualitative research methods will be conducted in two different phases in the three partner countries: 1) before the intervention/pilot study; 2) during and after the implementation pilot study. In the first phase, semi-structured Key Informant Interviews (KIIs) will be conducted with health workers and stakeholders from the Neglected Tropical Diseases (NTD) sector and local health workers in the study regions. In addition, parents/families of young children will be interviewed through focus group interviews (FGD) and socio-demographic questionnaires. Study design, data collection and analysis as well as publication and dissemination are carried out jointly by the social science research team of the TUM Center for Global Health and the partners in the study countries.

The formative qualitative evaluation of the post-intervention part will be conducted after the community pilot Levo-Praziquantel distribution (which is not part of this observational study) with the same key informants as preADOPT intervention. This will entail documentation of implementation strategies on the ground through participant observations, semi-structured and in-depth interviews and FGDs to assess the realisation and acceptance of the different strategies. We will also add a new key informant group, i.e. community drug distributors, of which participants will be recruited into semi-structured and in-depth interviews as well as FGDs. For the post-intervention, the same methods as described above for preintervention will be applied. In addition, a postintervention simple questionnaire will be added to the parent/guardian group (designed on the basis of findings from the pre-intervention part) to assess the implementation process.

Conditions

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Schistosomiasis in Children Social Acceptance

Keywords

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key informant interview mixed methods qualitative research focus group discussion neglected tropical diseases community health pre-school aged children Sub-Saharan Africa Kenya Uganda Ivory Coast Public-private partnership collaborative research implementation study social acceptance levo-praziquantel mass drug administration Côte d'Ivoire knowledge health literacy

Study Design

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Observational Model Type

ECOLOGIC_OR_COMMUNITY

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Agboville, Côte d'Ivoire

Drug naive region

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Intervention Type BEHAVIORAL

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Bangolo, Côte d'Ivoire

Drug naive region

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

No interventions assigned to this group

Man, Côte d'Ivoire

was a phase III clinical trial site for Levo-Praziquantel in 2021

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Intervention Type BEHAVIORAL

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Homa Bay, Kenya

was a phase III clinical trial site for Levo-Praziquantel in 2021

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Intervention Type BEHAVIORAL

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Kwale, Kenya

Drug naive region

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Intervention Type BEHAVIORAL

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Hoima, Uganda

Drug naive region

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Intervention Type BEHAVIORAL

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Bugiri, Uganda

Drug naive region

Parents/guardians of pre-school aged children Primary healthcare personnel Community stakeholders (e.g. political/administrative leaders, religious leaders, traditional healers, civil society, non-governmental organizations, key health system representatives, schistosomiasis control officers, community drug distributers)

Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Intervention Type BEHAVIORAL

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Interventions

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Community pilot L-PZQ distribution - intervention is NOT part of this observational study

Data collection will occur at two main time points of the ADOPT-community intervention project: before (baseline assessment) and during/after the community pilot L-PZQ distribution, in order to inform the design and process of the implementation, including that of advocacy and mobilisation, of Levo-Praziquantel delivery to PSAC.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* within the targeted communities
* all key informant groups as described
* willing to participate voluntarily and to provide informed consent

Exclusion Criteria

\- refusing to give informed consent, participating not voluntarily or their participation causing psycho-social distress or even harm to themselves or other community members
Minimum Eligible Age

18 Years

Maximum Eligible Age

99 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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African Institute for Health and Development

UNKNOWN

Sponsor Role collaborator

Makerere University

OTHER

Sponsor Role collaborator

European and Developing Countries Clinical Trials Partnership (EDCTP)

OTHER_GOV

Sponsor Role collaborator

Global Health Innovative Technology Fund

OTHER

Sponsor Role collaborator

Stichting Lygature

UNKNOWN

Sponsor Role collaborator

Université Félix Houphouët-Boigny

UNKNOWN

Sponsor Role collaborator

Kenya Medical Research Institute

OTHER

Sponsor Role collaborator

Swiss Tropical & Public Health Institute

OTHER

Sponsor Role collaborator

SCI Foundation

UNKNOWN

Sponsor Role collaborator

Technical University of Munich

OTHER

Sponsor Role lead

Responsible Party

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Andrea Winkler

Prof. Dr. Dr.

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Mary Nyamongo, Dr.

Role: PRINCIPAL_INVESTIGATOR

African Institute for Health and Development

Stella Neema, Prof.

Role: PRINCIPAL_INVESTIGATOR

Makerere University - Social Science Department

Alain Toh, Prof.

Role: PRINCIPAL_INVESTIGATOR

Université Félix Houphouët-Boigny d'Abidjan-Cocody

Locations

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Université Félix Houphouët-Boigny

Abidjan, , Côte d’Ivoire

Site Status

African Institute for Health and Development

Nairobi, , Kenya

Site Status

Makerere University

Kampala, , Uganda

Site Status

Countries

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Côte d’Ivoire Kenya Uganda

Other Identifiers

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RIA2019IR-2895

Identifier Type: OTHER_GRANT

Identifier Source: secondary_id

G2020-102R1

Identifier Type: OTHER_GRANT

Identifier Source: secondary_id

731/21 S

Identifier Type: -

Identifier Source: org_study_id