Observational Study for Assessing Treatment and Outcome of Patients With Primary Brain Tumours Using cIMPACT-NOW and 2021 WHO Classification

NCT ID: NCT05259605

Last Updated: 2025-12-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

1650 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-03-21

Study Completion Date

2038-07-29

Brief Summary

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Every new classification depends on its prognostic power and on the type of treatment given. With the rapid evolution of diagnostic methods and the advance in new treatments, there is much less reliable information available on how patients with newly defined brain tumour entities should be treated and what to expect from the current treatments.

The goal is to determine whether the new 2021 WHO classification, based on cIMPACT-NOW recommendations, results in more homogeneous patient groups than the old 2016 classification. Furthermore, it will help derive provisional guidelines on how patients with these newly defined tumour entities are best treated. These recommendations will be based on the experience of EORTC investigators with chosen treatments and their experience as reported in this data collection report.

Detailed Description

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Conditions

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Glioma Glioneuronal Tumor Choroid Plexus Tumor Pineal Tumors Germ Cell Tumor Tumor of the Sellar Region Diffuse Midline Glioma, H3 K27M-Mutant Ependymoma Embryonal Tumor Pineal Tumor Hemangiopericytoma Hemangioblastoma Melanocytic Tumor of CNS

Study Design

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Observational Model Type

COHORT

Study Time Perspective

OTHER

Study Groups

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"Molecular" Gliobastomas, IDH-wildtype

No intervention

Observational

Intervention Type OTHER

The goal is to determine whether the new 2021 WHO classification, based on cIMPACT-NOW recommendations, results in more homogeneous patient groups than the old 2016 classification. Furthermore, it will help derive provisional guidelines on how patients with these newly defined tumour entities are best treated. These recommendations will be based on the experience of EORTC investigators with chosen treatments and their experience as reported in this data collection report.

Paediatric-type diffuse low-grade gliomas

No intervention;

No interventions assigned to this group

Paediatric-type diffuse high-grade gliomas

No intervention;

* diffuse midline glioma, H3 K27-altered
* diffuse hemispheric glioma, H3 G34-mutant
* diffuse paediatric-type high-grade glioma, H3-wildtype and IDH-wildtype
* infant-type hemispheric glioma

No interventions assigned to this group

Circumscribed astrocytic gliomas

No intervention

No interventions assigned to this group

Glioneuronal and neuronal tumours

No intervention

No interventions assigned to this group

Ependymal tumours

No intervention

No interventions assigned to this group

Choroid plexus tumours

No intervention

No interventions assigned to this group

Embryonal tumours

No intervention;

* medulloblastoma
* other

No interventions assigned to this group

Pineal tumours

No intervention

No interventions assigned to this group

Meningiomas with specific driver mutations and/or grade 3

No intervention

No interventions assigned to this group

Mesenchymal, non-meningothelial tumours

No intervention; solitary fibrous tumour hemangioblastomaall all others

No interventions assigned to this group

Germ cell tumours

No intervention

No interventions assigned to this group

Primary brain tumour with BRAF mutation

No intervention

No interventions assigned to this group

Primary brain tumour with NTRK fusion

No intervention

No interventions assigned to this group

Primary brain tumour with known germline mutation or family history of a primary brain tumour

No intervention

No interventions assigned to this group

Astrocytoma, IDH-mutant, CNS WHO grade 4.

No intervention

No interventions assigned to this group

Previously poorly or undefined tumour entities.

No intervention

No interventions assigned to this group

Interventions

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Observational

The goal is to determine whether the new 2021 WHO classification, based on cIMPACT-NOW recommendations, results in more homogeneous patient groups than the old 2016 classification. Furthermore, it will help derive provisional guidelines on how patients with these newly defined tumour entities are best treated. These recommendations will be based on the experience of EORTC investigators with chosen treatments and their experience as reported in this data collection report.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Age ≥ legal age of consent
* Newly diagnosed or recurrent primary brain tumours within one of the 17 cohorts of interest
* Archival tumour tissue from primary tumour available at the site. Representative tissue from first surgery is preferred, but tissue from surgery for recurrence is allowed. Exception: only tissue from first surgery is allowed for Cohort 16.
* Available MRI/CT scans from primary brain tumour at initial diagnosis
* Patient's consent

Deceased patient:

The clinical data and/or biological material and/or CT/MRI/PET images can be accessed and used if at least one of the following three conditions is met:

* The patient agreed beforehand in his/her lifetime to a further use of his/her data and/or biological material and/or CT/MRI/PET images, or,
* There is consent of a relative to use data and/or biological material and/or CT/MRI/PET images of the deceased patient, or,
* There is a reference to a corresponding legal declaration covering the exemption in case of the impossibility or disproportion of getting access to an informed consent (e.g., causing strain on relatives of deceased patients).

Additionally, in all cases the following three points need to be fulfilled:

* No documentation of previous objection of the patient to the (re-)use of their data, biological material, CT/MR/PET images for research purposes
* A notification to an ethics committee for the re-use of these data, biological material and CT/MRI/PET images
* Any other national requirements are fulfilled, if applicable
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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European Organisation for Research and Treatment of Cancer - EORTC

NETWORK

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Michael Weller

Role: PRINCIPAL_INVESTIGATOR

EORTC Study Coordinator

Locations

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Innsbruck Universitaetsklinik

Innsbruck, , Austria

Site Status RECRUITING

Universitaetsklinikum Wien - AKH unikliniken

Vienna, , Austria

Site Status RECRUITING

Onze Lieve Vrouw Ziekenhuis

Aalst, , Belgium

Site Status RECRUITING

Institut Jules Bordet

Anderlecht, , Belgium

Site Status RECRUITING

Universitair Ziekenhuis Brussel

Brussels, , Belgium

Site Status RECRUITING

C.H.U. Sart-Tilman

Liège, , Belgium

Site Status RECRUITING

AZ Delta - Campus Rumbeke

Roeselare, , Belgium

Site Status RECRUITING

CHU Lyon - Hopital neurologique Pierre Wertheimer

Lyon, , France

Site Status RECRUITING

Hopital de La Timone

Marseille, , France

Site Status RECRUITING

Hopital la Pitie-Salpetriere

Paris, , France

Site Status RECRUITING

Knappschaft Krankenhaus Langendreer

Bochum, , Germany

Site Status RECRUITING

Universitaetsklinikum Bonn

Bonn, , Germany

Site Status RECRUITING

Universitaetsklinikum Koeln

Cologne, , Germany

Site Status RECRUITING

Universitaetsklinikum - Essen

Essen, , Germany

Site Status RECRUITING

University Hospital Frankfurt -Senckenberg Institute of Neurooncology

Frankfurt, , Germany

Site Status RECRUITING

Universitaetsklinikum Jena

Jena, , Germany

Site Status RECRUITING

Universitaetsklinikum Leipzig-Klinik fuer Strahlentherapie und Radioonkologie

Leipzig, , Germany

Site Status RECRUITING

Universitaetsklinikum Regensburg

Regensburg, , Germany

Site Status RECRUITING

Diagnostic & Therapeutic Center of Athens Hygeia Hospital S.A.

Athens, , Greece

Site Status RECRUITING

Ospedale Bellaria-Bologna

Bologna, , Italy

Site Status RECRUITING

Azienda Ospedaliero-Universitaria Careggi

Florence, , Italy

Site Status RECRUITING

Istituto Neurologico Carlo Besta

Milan, , Italy

Site Status RECRUITING

IRCCS Ospedale San Raffaele

Milan, , Italy

Site Status RECRUITING

Istituto Oncologico Veneto

Padua, , Italy

Site Status RECRUITING

IRCCS-Regina Elena National Cancer Center

Roma, , Italy

Site Status RECRUITING

Ospedale San Giovanni - Dipartimento Neuroscienze

Torino, , Italy

Site Status RECRUITING

The Netherlands Cancer Institute-Antoni Van Leeuwenhoekziekenhuis

Amsterdam, , Netherlands

Site Status RECRUITING

Leiden University Medical Centre

Leiden, , Netherlands

Site Status RECRUITING

Erasmus MC

Rotterdam, , Netherlands

Site Status RECRUITING

Oslo University Hospital - Radiumhospitalet

Oslo, , Norway

Site Status RECRUITING

Centro Hospitalar Universitario Lisboa Norte - Hospital Sta. Maria

Lisbon, , Portugal

Site Status RECRUITING

Instituto Portugues de Oncologia de Lisboa Francisco Gentil - EPE

Lisbon, , Portugal

Site Status RECRUITING

Institut Catala d'Oncologia - ICO L'Hospitalet - Hospital Duran i Reynals

L'Hospitalet de Llobregat, Barcelona, Spain

Site Status RECRUITING

Hospital Clinic de Barcelona

Barcelona, , Spain

Site Status RECRUITING

Hospital De La Santa Creu I Sant Pau

Barcelona, , Spain

Site Status RECRUITING

Hospital Germans Trias i Pujol (Institut Catala D'Oncologia)

Barcelona, , Spain

Site Status RECRUITING

Hospital Duran i Reynals

L'Hospitalet de Llobregat, , Spain

Site Status RECRUITING

Centre Hospitalier Universitaire Vaudois

Lausanne, , Switzerland

Site Status RECRUITING

UniversitaetsSpital Zurich - Neurology Clinic

Zurich, , Switzerland

Site Status RECRUITING

NHS Lothian - The Royal Infirmary Of Edinburgh

Edinburgh, , United Kingdom

Site Status RECRUITING

Newcastle Hospitals NHS Trust - Freeman Hospital, Northern Centre For Cancer Care

Newcastle upon Tyne, , United Kingdom

Site Status RECRUITING

Nottingham University Hospitals NHS Trust - City Hospital

Nottingham, , United Kingdom

Site Status RECRUITING

Countries

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Austria Belgium France Germany Greece Italy Netherlands Norway Portugal Spain Switzerland United Kingdom

Central Contacts

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EORTC HQ

Role: CONTACT

+32 2 774 1611

Other Identifiers

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EORTC-2013-BTG

Identifier Type: -

Identifier Source: org_study_id