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Health Challenges for Adolescents With Chronic Diseases in Egypt

NCT05207449 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 400

Last updated 2022-01-26

No results posted yet for this study

Summary

The World Health Organization (WHO) defines adolescents as those people between 10 and 19 years of age. Adolescence is a critical developmental stage especially in the context of living with a chronic disease (CD), a chronic disease can be defined as "physiological, behavioral or cognitive disorder that has lasted for one year and produces one or more types of consequences: functional constraints, dependency on compensatory assistance for functioning, or increased need of service compared with age-mates".

The burden of chronic conditions in adolescence is increasing as larger numbers of chronically ill children survive beyond the age of 10. Over 85% of children with congenital or chronic conditions now survive into adolescence, and conditions once seen only in young children are now seen beyond childhood and adolescence.

Conditions

  • Adolescent Behavior
  • Chronic Disease
  • Adherence, Medication
  • Quality of Life

Interventions

OTHER

Questionnaire

The questionnaire will include: 1. The demographic data of the patients 2. Chronic disease related questions 3. Assessment of adherence to treatment by using Arabic validated version of Medication Adherence Report Scale (MARS) 4. Patients' beliefs about medication will be assessed using Arabic validated version of Beliefs about Medicines Questionnaire (BMQ) 5. Disease acceptance will be evaluated using: Arabic validated version of Acceptance to Illness Scale (AIS) 6. Assessment of health-related quality of life (HRQoL) using the Arabic version of the Pediatric Qualify of Life Inventory Generic Core Scale (PedsQL) 4.0 GCS 7. Assessment of readiness for transition to adult health care settings using The Transition Readiness Assessment Questionnaire (TRAQ)

Sponsors & Collaborators

  • Assiut University

    lead OTHER

Eligibility

Min Age
10 Years
Max Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-03-01
Primary Completion
2024-03-01
Completion
2025-03-01

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05207449 on ClinicalTrials.gov