Trial Outcomes & Findings for An Expanded Access Trial in Japan to Provide Spesolimab to People With a Flare-up in Generalized Pustular Psoriasis Who Have no Other Treatment Options (NCT NCT05200247)

NCT ID: NCT05200247

Last Updated: 2025-02-25

Results Overview

Number of patients with any treatment emergent adverse events (TEAEs) is reported. An adverse events (AE) was defined as any untoward medical occurrence in a patient or clinical investigation subject administered a medicinal product and which does not necessarily have to have a causal relationship with this treatment. An AE that started before first drug intake and deteriorated under treatment were also considered as 'treatment-emergent'.

Recruitment status

COMPLETED

Study phase

PHASE3

Target enrollment

11 participants

Primary outcome timeframe

From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.

Results posted on

2025-02-25

Participant Flow

This was an open-label, multicentre, single-arm trial designed to provide early access to spesolimab, for patients with generalised pustular psoriasis (GPP) presenting with a flare and for whom no satisfactory authorised alternative therapy existed and who were unable to participate in a clinical trial, as assessed by the investigator.

All subjects were screened for eligibility prior to participation in the trial. Subjects attended a specialist site which ensured that they (the subjects) strictly met all inclusion and none of the exclusion criteria. Subjects were not to be allocated to a treatment group if any of the entry criteria were violated.

Participant milestones

Participant milestones
Measure
Spesolimab 900 mg i.v. SD
Patient with GPP flare received intravenously (i.v.) a single dose (SD) of 900 milligram (mg) of spesolimab on Day 1 of Week 1. A second dose of 900 mg spesolimab was administered one week after the initial infusion if deemed necessary by the investigator.
Overall Study
STARTED
11
Overall Study
COMPLETED
11
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

An Expanded Access Trial in Japan to Provide Spesolimab to People With a Flare-up in Generalized Pustular Psoriasis Who Have no Other Treatment Options

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Spesolimab 900 mg i.v. SD
n=11 Participants
Patient with GPP flare received intravenously (i.v.) a single dose (SD) of 900 milligram (mg) of spesolimab on Day 1 of Week 1. A second dose of 900 mg spesolimab was administered one week after the initial infusion if deemed necessary by the investigator.
Age, Continuous
50.5 Years
STANDARD_DEVIATION 12.3 • n=5 Participants
Sex: Female, Male
Female
6 Participants
n=5 Participants
Sex: Female, Male
Male
5 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
0 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
11 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
11 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
0 Participants
n=5 Participants
Race (NIH/OMB)
White
0 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants

PRIMARY outcome

Timeframe: From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.

Population: Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.

Number of patients with any treatment emergent adverse events (TEAEs) is reported. An adverse events (AE) was defined as any untoward medical occurrence in a patient or clinical investigation subject administered a medicinal product and which does not necessarily have to have a causal relationship with this treatment. An AE that started before first drug intake and deteriorated under treatment were also considered as 'treatment-emergent'.

Outcome measures

Outcome measures
Measure
Spesolimab 900 mg i.v. SD
n=11 Participants
Patient with GPP flare received intravenously (i.v.) a single dose (SD) of 900 milligram (mg) of spesolimab on Day 1 of Week 1. A second dose of 900 mg spesolimab was administered one week after the initial infusion if deemed necessary by the investigator.
Occurrence of Treatment Emergent Adverse Events (TEAEs)
7 Participants

SECONDARY outcome

Timeframe: From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.

Population: Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.

Number of patients with treatment emergent serious adverse events (SAEs) is reported. A serious adverse event (SAE) was defined as any AE which fulfils at least one of the following criteria: * results in death, * is life-threatening, which refers to an event in which the patient was at risk of death at the time of the event; * requires inpatient hospitalisation or prolongation of existing hospitalisation, * results in persistent or significant disability or incapacity, * is a congenital anomaly / birth defect, * is deemed serious for any other reason if it is an important medical event when based on appropriate medical judgement which may jeopardise the patient and may require medical or surgical intervention to prevent one of the other outcomes listed in the above definitions. * An event that possibly leads to disability will be handled as 'deemed serious for any other reason' and, therefore, reported as an SAE.

Outcome measures

Outcome measures
Measure
Spesolimab 900 mg i.v. SD
n=11 Participants
Patient with GPP flare received intravenously (i.v.) a single dose (SD) of 900 milligram (mg) of spesolimab on Day 1 of Week 1. A second dose of 900 mg spesolimab was administered one week after the initial infusion if deemed necessary by the investigator.
Occurrence of Treatment Emergent Serious Adverse Events (SAEs)
0 Participants

SECONDARY outcome

Timeframe: From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.

Population: Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.

Number of patients with treatment emergent adverse events of special interest (AESIs) is reported. The term adverse events of special interest (AESI) relates to any specific adverse event (AE) that has been identified at the project level as being of particular concern for prospective safety monitoring and safety assessment within this trial, e.g. the potential for AEs based on knowledge from other compounds in the same class. The following are considered as AESIs: * Potential Severe Drug Induced Liver Injury (DILI) * Systemic hypersensitivity reactions including infusion reactions and anaphylactic reaction * Severe infections (according to RCTC grading in the ISF) * Opportunistic and mycobacterium tuberculosis infections * Peripheral neuropathy.

Outcome measures

Outcome measures
Measure
Spesolimab 900 mg i.v. SD
n=11 Participants
Patient with GPP flare received intravenously (i.v.) a single dose (SD) of 900 milligram (mg) of spesolimab on Day 1 of Week 1. A second dose of 900 mg spesolimab was administered one week after the initial infusion if deemed necessary by the investigator.
Occurrence of Treatment Emergent Adverse Events of Special Interest (AESIs)
0 Participants

Adverse Events

Spesolimab 900 mg i.v. SD

Serious events: 0 serious events
Other events: 7 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Spesolimab 900 mg i.v. SD
n=11 participants at risk
Patient with GPP flare received intravenously (i.v.) a single dose (SD) of 900 milligram (mg) of spesolimab on Day 1 of Week 1. A second dose of 900 mg spesolimab was administered one week after the initial infusion if deemed necessary by the investigator.
Gastrointestinal disorders
Constipation
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
General disorders
Chest pain
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
General disorders
Face oedema
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
General disorders
Malaise
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Infections and infestations
Periodontitis
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Injury, poisoning and procedural complications
Wound
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Investigations
Coronavirus test positive
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Investigations
Transaminases increased
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Nervous system disorders
Headache
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Renal and urinary disorders
Pollakiuria
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Skin and subcutaneous tissue disorders
Acne
9.1%
1/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.
Skin and subcutaneous tissue disorders
Pustular psoriasis
18.2%
2/11 • From first administration of study drug until last administration of study drug + 16 weeks of follow up, up to 6.3 months.
Treated Set (TS): This patient set includes all patients who received at least one dose of study drug.

Additional Information

Boehringer Ingelheim, Call Center

Boehringer Ingelheim

Phone: 1-800-243-0127

Results disclosure agreements

  • Principal investigator is a sponsor employee Boehringer Ingelheim (BI) acknowledges that investigators have the right to publish the study results. Investigators shall provide BI with a copy of any publication or presentation for review prior to any submission. Such review will be done with regard to proprietary information, information related to patentable inventions, medical, scientific, and statistical accuracy within 60 days. BI may request a delay of the publication in order to protect BI's intellectual property rights.
  • Publication restrictions are in place

Restriction type: OTHER