The Effects of Telerehabilitation Based Exercise Program in Patients With Systemic Sclerosis

NCT ID: NCT05078749

Last Updated: 2021-10-14

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Clinical Phase

NA

Total Enrollment

26 participants

Study Classification

INTERVENTIONAL

Study Start Date

2021-03-01

Study Completion Date

2022-10-01

Brief Summary

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Systemic Sclerosis (Ssc) is a rare, systemic autoimmune disease characterized by skin fibrosis and vasculopathy. In addition to the skin, it is a heterogeneous disease that affects multiple organs, including the musculoskeletal, cardiac, pulmonary, and gastrointestinal systems. Patients may experience many symptoms such as pain, fatigue, dyspnea, impaired hand function, dry mouth, and difficulty sleeping. As a result of these symptoms, these patients may experience a decrease in activities of daily living, physical activity level and quality of life, while psychological problems such as anxiety and depression may increase. In addition to medical treatment, rehabilitation programs for the patient are an important part of treatment to eliminate or reduce these symptoms and their consequences.

Many problems such as time and resource constraints, transportation problems prevent access and compliance with the rehabilitation program. Also; For the coronavirus disease 2019 (COVID-19) epidemic that emerged in Wuhan, China in 2019, many countries have implemented many practices such as social distance, mandatory quarantine and transportation restrictions in order to better control the spread of the virus. Many people with SSc are at risk of serious complications from COVID-19 if infected due to lung involvement (\>40% have interstitial lung disease) and widespread use of immunosuppressant drugs. Most countries have recommended that people with medical conditions such as SSc undergo strict isolation during the COVID-19 pandemic. As a result, patients' access to the rehabilitation program became more difficult in this process. In addition, social isolation due to the COVID-19 outbreak may increase physical inactivity and cause complications that may develop accordingly.

When the literature was examined, no studies were found showing the effect of telerehabilitation program on anxiety depression, physical activity, sleep, fatigue and quality of life in patients with SSc.

Detailed Description

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According to sample size calculation 26 patients scheduled for systemic sclerosis will be included. Patients planned for systemic sclerosis will be evaluated twice at the beginning and at the end of the 8th week. The study was planned as a prospective randomized controlled study. Patients will be randomized using a computer program and divided into two groups as telerehabilitation treatment and home exercise group. For the telerehabilitation group, a progressive exercise program video link will be sent over the internet every 2 weeks. The exercise brochure will be explained and sent to the patient group followed up with the home program only at the beginning of the program.

Conditions

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Systemic Sclerosis

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

DOUBLE

Participants Investigators

Study Groups

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Exercise training group

Continuous progressive exercise training will be applied to the treatment group. The exercises will be performed every day, twice a day, for an average of 10 minutes/session, for eight weeks. Exercise training will be updated regularly at two-week intervals. A different and progressive new exercise will be sent to the patients as a Youtube link. The patients will be interviewed by video every week.

Group Type ACTIVE_COMPARATOR

Exercise training group

Intervention Type OTHER

A regular advanced exercise program will be given and followed.

Control training group

The control group will be followed up as a home program by explaining the exercises and giving a brochure. They will be asked to do the exercises regularly for 7 days/week, 2 sessions/day, for eight weeks. Patients in the control group will be followed up by phone once a week.

Group Type SHAM_COMPARATOR

Control training group

Intervention Type OTHER

Basic exercises will be given at the beginning and will do the same exercises

Interventions

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Exercise training group

A regular advanced exercise program will be given and followed.

Intervention Type OTHER

Control training group

Basic exercises will be given at the beginning and will do the same exercises

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Patients between the ages of 18-65
* Being literate
* Patients who received standard medical treatment and whose general condition has been stable for the last 6 months
* Having minimum smartphone or computer usage knowledge or having an acquaintance who knows this information and can help with this
* Having a computer and active internet connection at home
* Disease duration between 1 and 10 years
* Agree to participate in the study

Exclusion Criteria

* Patients who cannot cooperate with the assessment
* Those who have orthopedic problems or neurological diseases that prevent them from doing the exercises
* Those who received treatment in a physiotherapy and rehabilitation program before
* Patients with another inflammatory disease
* Female patients who are pregnant
* Patients who have had COVID-19
* Those with a diagnosis of pulmonary arterial hypertension (PAH)
* Exercise is contraindicated for those with heart disease.
Minimum Eligible Age

18 Years

Maximum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Gazi University

OTHER

Sponsor Role lead

Responsible Party

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Fulden Sarı

research assistant

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Deran OSKAY, Prof

Role: STUDY_DIRECTOR

Gazi University

Locations

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Gazi University

Çankaya, Ankara, Turkey (Türkiye)

Site Status RECRUITING

Countries

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Turkey (Türkiye)

Central Contacts

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Fulden SARİ, doctorate

Role: CONTACT

+90 5069654352

Deran OSKAY, Prof

Role: CONTACT

Facility Contacts

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Fulden SARİ, doktorate

Role: primary

Other Identifiers

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208

Identifier Type: -

Identifier Source: org_study_id