Quality of Life Impact After Enhanced Follow-up of Ostomy Patients

NCT ID: NCT05076669

Last Updated: 2021-10-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.

Recruitment Status

UNKNOWN

Clinical Phase

NA

Total Enrollment

350 participants

Study Classification

INTERVENTIONAL

Study Start Date

2021-10-31

Study Completion Date

2023-12-31

Brief Summary

Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.

In this context, FSK would like to implement a clinical study to assess the added value on the health-related QoL from the enhanced follow-up of ostomy patients by a HHN including stomal therapists.

The interventional group will benefit from delivery and enhanced follow-up by the FSK HHN provided, in particular, by stomal therapy nurse consultants and patient-relation experts during in-person or remote appointments in addition to the routine care delivered and prescribed by the sites.

The control group will receive the routine care prescribed by the sites and will be provided with ostomy equipment by FSK.

Detailed Description

Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.

France currently has about 80,000 ostomy patients. Stoma placement exposes patients to many surgical or peristomal skin complications which could impair the quality of life of the ostomy patient.

The management of ostomy patients varies from institution to institution and according to how the patient's medical equipment is supplied as well as whether or not specialised personnel are available.

In the last decade, the market for stoma therapy in France has evolved, with a significant increase in the delivery of equipment by HHNs, meeting a need for patient follow-up and accompaniment.

This increased preference of HHNs to use specialist nurses seems to be explained by the added benefits. Early international studies have demonstrated the impact of an enterostomal therapy nurse follow-up on the improvement of ostomy patient's quality of life (QoL) relative to their health.

However, none of the studies available today on follow-ups performed by an enterostomal therapist included the French population. Furthermore, the studies show methodological gaps, a limited time span and are based on strong hypotheses.

In this context, FSK would like to implement a clinical study to assess the added value on the health-related QoL from the enhanced follow-up of ostomy patients by a HHN including stomal therapists.

The interventional group will benefit from delivery and enhanced follow-up by the FSK HHN provided, in particular, by stomal therapy nurse consultants and patient-relation experts during in-person or remote appointments in addition to the routine care delivered and prescribed by the sites.

The control group will receive the routine care prescribed by the sites and will be provided with ostomy equipment by FSK.

Conditions

See the medical conditions and disease areas that this research is targeting or investigating.

Stoma Ileostomy Stoma Colostomy Quality of Life

Study Design

Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.

Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Open-label, randomised, comparative, controlled, national and multi-centre study with minimal risks and constraints to routine care.
Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

Review each arm or cohort in the study, along with the interventions and objectives associated with them.

Control

The control group will receive the routine care prescribed by the sites and will be provided with ostomy equipment by FSK.

Group Type ACTIVE_COMPARATOR

standard of care

Intervention Type OTHER

routine management of stoma

interventional group

The interventional group will benefit from delivery and enhanced follow-up by the FSK HHN provided, in particular, by stomal therapy nurse consultants and patient-relation experts during in-person or remote appointments in addition to the routine care delivered and prescribed by the sites.

Group Type EXPERIMENTAL

stoma follow-up

Intervention Type OTHER

delivery and enhanced follow-up by the FSK HHN provided, in particular, by stomal therapy nurse consultants and patient-relation experts during in-person or remote appointments in addition to the routine care delivered and prescribed by the sites

Interventions

Learn about the drugs, procedures, or behavioral strategies being tested and how they are applied within this trial.

stoma follow-up

delivery and enhanced follow-up by the FSK HHN provided, in particular, by stomal therapy nurse consultants and patient-relation experts during in-person or remote appointments in addition to the routine care delivered and prescribed by the sites

Intervention Type OTHER

standard of care

routine management of stoma

Intervention Type OTHER

Eligibility Criteria

Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.

Inclusion Criteria

* Male or female ≥ 18 years
* Patients with a stoma placed less than 10 days ago
* Patients who had a stoma during their current hospitalisation
* Patients informed verbally and in writing via the information sheet and who signed the informed consent form.

Exclusion Criteria

* Patients in palliative care
* Patients participating in another clinical study interested in the management of ostomy patients
* Patients not enrolled in a social security system or with the CMU (Couverture maladie universelle \[Universal Health Coverage\])
* Patients under judicial protection or under guardianship
* Patients deprived of freedom (in prison and psychiatric patients being treated without consent)
* Patients with difficulties understanding or reading French
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

Meet the organizations funding or collaborating on the study and learn about their roles.

FSK

INDUSTRY

Sponsor Role lead

Responsible Party

Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.

Responsibility Role SPONSOR

Principal Investigators

Learn about the lead researchers overseeing the trial and their institutional affiliations.

Jeremie H Lefevre, MD, PhD

Role: PRINCIPAL_INVESTIGATOR

Sorbonne University

Locations

Explore where the study is taking place and check the recruitment status at each participating site.

Hopital Bicètre

Le Kremlin-Bicêtre, , France

Site Status

Hopital Lyon-Sud

Lyon, , France

Site Status

Hopital SAint Louis

Paris, , France

Site Status

Hopital Saint-Louis

Paris, , France

Site Status

Hopital Saint-Antoine

Paris, , France

Site Status

Hopital de la Pitié-Salpétrière

Paris, , France

Site Status

Hopital HEGP

Paris, , France

Site Status

ESPIC FOCH - Digestige Unit

Suresnes, , France

Site Status

ESPIC Foch - Urology Unit

Suresnes, , France

Site Status

CHU Toulouse

Toulouse, , France

Site Status

Countries

Review the countries where the study has at least one active or historical site.

France

Central Contacts

Reach out to these primary contacts for questions about participation or study logistics.

Ingrid Kuhn

Role: CONTACT

+33 7 61 47 98 25

Facility Contacts

Find local site contact details for specific facilities participating in the trial.

Eddy Cotte, MD, PhD

Role: primary

Alexandra Masson-Lecomte, MD

Role: primary

Jeremie Lefevre

Role: primary

Yann Neuzillet, MD,PhD

Role: primary

Mathieu Roumiguié, MD

Role: primary

References

Explore related publications, articles, or registry entries linked to this study.

Becker A, Schulten-Oberborsch G, Beck U, Vestweber KH. Stoma care nurses: good value for money? World J Surg. 1999 Jul;23(7):638-42; discussion 642-3. doi: 10.1007/pl00012361.

Reference Type BACKGROUND
PMID: 10390579 (View on PubMed)

Persson E, Berndtsson I, Carlsson E, Hallen AM, Lindholm E. Stoma-related complications and stoma size - a 2-year follow up. Colorectal Dis. 2010 Oct;12(10):971-6. doi: 10.1111/j.1463-1318.2009.01941.x.

Reference Type RESULT
PMID: 19519689 (View on PubMed)

Neil N, Inglese G, Manson A, Townshend A. A Cost-Utility Model of Care for Peristomal Skin Complications. J Wound Ostomy Continence Nurs. 2016 Jan-Feb;43(1):62-8. doi: 10.1097/WON.0000000000000194.

Reference Type RESULT
PMID: 26633166 (View on PubMed)

Marquis P, Marrel A, Jambon B. Quality of life in patients with stomas: the Montreux Study. Ostomy Wound Manage. 2003 Feb;49(2):48-55.

Reference Type RESULT
PMID: 12598701 (View on PubMed)

Danielsen AK, Rosenberg J. Health related quality of life may increase when patients with a stoma attend patient education--a case-control study. PLoS One. 2014 Mar 7;9(3):e90354. doi: 10.1371/journal.pone.0090354. eCollection 2014.

Reference Type RESULT
PMID: 24609004 (View on PubMed)

Related Links

Access external resources that provide additional context or updates about the study.

http://fsk.fr

Website of FSK

Other Identifiers

Review additional registry numbers or institutional identifiers associated with this trial.

FSK-001

Identifier Type: -

Identifier Source: org_study_id

NCT05061927

Identifier Type: -

Identifier Source: nct_alias