A Decentralized Study to Evaluate Physical Activity and Cough Frequency Using Wearable Technology in Cystic Fibrosis

NCT ID: NCT04923464

Last Updated: 2022-01-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

51 participants

Study Classification

OBSERVATIONAL

Study Start Date

2021-06-30

Study Completion Date

2021-12-20

Brief Summary

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This study will evaluate the performance of wearable technology in cystic fibrosis (CF) participants taking commercial Elexacaftor (ELX)/Tezacaftor (TEZ)/Ivacaftor (IVA) utilizing a fully decentralized trial design.

Detailed Description

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Conditions

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Cystic Fibrosis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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ELX/TEZ/IVA

CF participants who are currently on a stable regimen of commercially available ELX/TEZ/IVA will be evaluated for the performance of wearable technology devices. Wearable devices include a wrist-worn actigraphy sensor and an ambulatory cough monitoring system.

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Forced expiratory volume in 1 second (FEV1) value greater than or equal to (≥) 30 percent predicted
* Participants with an approved CF transmembrane conductance regulator gene (CFTR) genotype according to respective regional labels

Exclusion Criteria

* History of solid organ or hematological transplantation
* Non-ambulatory status
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Vertex Pharmaceuticals Incorporated

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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National Jewish Health

Denver, Colorado, United States

Site Status

Yale New Haven Hospital

New Haven, Connecticut, United States

Site Status

Central Florida Pulmonary Group, P.A.

Orlando, Florida, United States

Site Status

Children's Hospital of Illinois at OSF Saint Francis Medical Center, Cystic Fibrosis Center

Peoria, Illinois, United States

Site Status

Massachusetts General Hospital Cystic Fibrosis Center Clinical Rsearch Center

Boston, Massachusetts, United States

Site Status

Washington University School of Medicine

St Louis, Missouri, United States

Site Status

Morristown Medical Center

Morristown, New Jersey, United States

Site Status

Mount Sinai Beth Israel

New York, New York, United States

Site Status

Santiago Reyes, M.D.

Oklahoma City, Oklahoma, United States

Site Status

UPMC Children's Hospital of Pittsburgh

Pittsburgh, Pennsylvania, United States

Site Status

UW School of Medicine & Public Health

Madison, Wisconsin, United States

Site Status

Birmingham Heartlands Hospital

Birmingham, , United Kingdom

Site Status

Royal Devon and Exeter Hospital

Exeter, , United Kingdom

Site Status

St. James University Hospital

Leeds, , United Kingdom

Site Status

Royal Brompton & Harefield NHS Foundation Trust, Royal Brompton Hospital

London, , United Kingdom

Site Status

Wythenshawe Hospital

Manchester, , United Kingdom

Site Status

Southampton General Hospital

Southampton, , United Kingdom

Site Status

Countries

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United States United Kingdom

Other Identifiers

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VX20-445-118

Identifier Type: -

Identifier Source: org_study_id

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