HOPE-Genomics Intervention for the Improvement of Cancer Patient Knowledge of Genomics

NCT ID: NCT04905082

Last Updated: 2025-12-11

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Clinical Phase

NA

Total Enrollment

465 participants

Study Classification

INTERVENTIONAL

Study Start Date

2021-12-30

Study Completion Date

2025-12-31

Brief Summary

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This clinical trial studies the effectiveness of a web-based cancer education tool called Helping Oncology Patients Explore Genomics (HOPE-Genomics) in improving patient knowledge of personal genomic testing results and cancer and genomics in general. HOPE-Genomics is a web-based education tool that teaches cancer/leukemia patients, and patients who may be at high-risk for developing cancer, about genomic testing and provide patients with information about their own genomic test results. The HOPE-Genomics tool may improve patient's genomic knowledge and quality of patient-centered care. In addition, it may also improve education and care quality for future patients.

Detailed Description

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PRIMARY OBJECTIVES:

I. Test the efficacy of the HOPE-Genomics intervention in improving patient knowledge of genomics.

II. Test the efficacy of the HOPE-Genomics intervention in improving patient receipt of guideline-concordant care.

OUTLINE: Patients are randomized to 1 of 3 arms.

ARM I (USUAL CARE): Patients receive education pamphlet about whole-genome sequencing (WES) and have their genomics test results returned by their clinician in a typical manner.

ARM II (RETURN OF RESULTS ONLY): Patients receive their genomics test results both from their clinician and from the HOPE-Genomics tool. Patients then view HOPE-Genomics tool over 15-20 minutes after their results are available.

ARM III (RETURN OF RESULTS PLUS PRE-TEST EDUCATION): Patients view HOPE-Genomics tool (containing educational content) over 15-20 minutes before their sequencing results are available. Patients also receive their genomics test results both from their clinician and from the HOPE-Genomics tool.

After completion of study intervention, patients are followed up at 2 weeks, 3 and 9 months after receiving genomic test results.

Conditions

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Breast Carcinoma Colorectal Carcinoma Lung Carcinoma Malignant Solid Neoplasm Ovarian Carcinoma Pancreatic Carcinoma Prostate Carcinoma

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Arm I (usual care)

Patients receive education pamphlet about WES and have their genomics test results returned by their clinician in a typical manner.

Group Type ACTIVE_COMPARATOR

Survey Administration

Intervention Type OTHER

Ancillary studies

Best Practice

Intervention Type OTHER

Receive usual care

Arm II (genomics test results, HOPE-Genomics)

Patients receive their genomics test results both from their clinician and from the HOPE-Genomics tool. Patients then view HOPE-Genomics tool over 15-20 minutes after their results are available.

Group Type EXPERIMENTAL

Genomic Profile

Intervention Type PROCEDURE

Receive genomics test results

Survey Administration

Intervention Type OTHER

Ancillary studies

Educational Intervention

Intervention Type OTHER

View HOPE-Genomics tool after genomic test results are available

Arm III (HOPE-Genomics, genomics test results)

Patients view HOPE-Genomics tool (containing educational content) over 15-20 minutes before their sequencing results are available. Patients also receive their genomics test results both from their clinician and from the HOPE-Genomics tool.

Group Type EXPERIMENTAL

Survey Administration

Intervention Type OTHER

Ancillary studies

Educational Intervention

Intervention Type OTHER

View HOPE-Genomics before sequencing results are available

Interventions

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Genomic Profile

Receive genomics test results

Intervention Type PROCEDURE

Survey Administration

Ancillary studies

Intervention Type OTHER

Best Practice

Receive usual care

Intervention Type OTHER

Educational Intervention

View HOPE-Genomics tool after genomic test results are available

Intervention Type OTHER

Educational Intervention

View HOPE-Genomics before sequencing results are available

Intervention Type OTHER

Other Intervention Names

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standard of care standard therapy Education for Intervention Intervention by Education Intervention through Education Intervention, Educational Education for Intervention Intervention by Education Intervention through Education Intervention, Educational genetic profile Genome Profile Genomic Profiling Genomic Test Genomic Testing

Eligibility Criteria

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Inclusion Criteria

* Are enrolled in City of Hope (COH) Institutional Review Board (IRB) 07047
* Have a diagnosis of lung, breast, colorectal, pancreatic, ovarian or prostate cancer
* Having somatic, germline or paired somatic/germline sequencing
* Are fluent in English
* Have an Eastern Cooperative Oncology Group (ECOG) performance status of 0-2
* Are \>= 18 years old

Exclusion Criteria

* Are unable to provide informed consent
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

City of Hope Medical Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Stacy W Gray

Role: PRINCIPAL_INVESTIGATOR

City of Hope Comprehensive Cancer Center

Locations

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City of Hope Medical Center

Duarte, California, United States

Site Status

Countries

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United States

Provided Documents

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Document Type: Study Protocol and Statistical Analysis Plan

View Document

Document Type: Informed Consent Form

View Document

Other Identifiers

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NCI-2021-03114

Identifier Type: REGISTRY

Identifier Source: secondary_id

20430

Identifier Type: OTHER

Identifier Source: secondary_id

P30CA033572

Identifier Type: NIH

Identifier Source: secondary_id

View Link

20430

Identifier Type: -

Identifier Source: org_study_id

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