Trial Outcomes & Findings for PLAN Intervention to Enhance Engagement of Latino Cancer Patients in Advanced Care Planning (NCT NCT04889144)

NCT ID: NCT04889144

Last Updated: 2025-09-09

Results Overview

Will be measured by intervention completion (Benchmark: \>= 70% complete the intervention sessions).

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

27 participants

Primary outcome timeframe

Five weeks post-randomization (for intervention arm only)

Results posted on

2025-09-09

Participant Flow

Please note that a total of n=27 patients enrolled in this study, n=22 completed baseline, and n=20 were randomized. As such, we can only provide baseline characteristics by intervention group for n=20 patients. Additionally, n=11 patients completed follow-up surveys, so all data reporting requiring follow-up data is provided for those n=11 patients.

Participant milestones

Participant milestones
Measure
Arm I (PLAN Intervention)
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Overall Study
STARTED
11
9
Overall Study
COMPLETED
4
7
Overall Study
NOT COMPLETED
7
2

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

For age, n=1 patient in the control condition did not provide a value so only n=8 are reported out of the n=9 who completed the baseline. Similarly, n=19 are reported out of n=20 for the overall column.

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Arm I (PLAN Intervention)
n=11 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
n=9 Participants
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Total
n=20 Participants
Total of all reporting groups
Age, Continuous
52.3 years
STANDARD_DEVIATION 9.31 • n=11 Participants • For age, n=1 patient in the control condition did not provide a value so only n=8 are reported out of the n=9 who completed the baseline. Similarly, n=19 are reported out of n=20 for the overall column.
50.2 years
STANDARD_DEVIATION 12.10 • n=8 Participants • For age, n=1 patient in the control condition did not provide a value so only n=8 are reported out of the n=9 who completed the baseline. Similarly, n=19 are reported out of n=20 for the overall column.
51.4 years
STANDARD_DEVIATION 10.29 • n=19 Participants • For age, n=1 patient in the control condition did not provide a value so only n=8 are reported out of the n=9 who completed the baseline. Similarly, n=19 are reported out of n=20 for the overall column.
Sex/Gender, Customized
Female
2 Participants
n=11 Participants
5 Participants
n=9 Participants
7 Participants
n=20 Participants
Sex/Gender, Customized
Male
8 Participants
n=11 Participants
4 Participants
n=9 Participants
12 Participants
n=20 Participants
Sex/Gender, Customized
Other
1 Participants
n=11 Participants
0 Participants
n=9 Participants
1 Participants
n=20 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
11 Participants
n=11 Participants
9 Participants
n=9 Participants
20 Participants
n=20 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
0 Participants
n=11 Participants
0 Participants
n=9 Participants
0 Participants
n=20 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=11 Participants
0 Participants
n=9 Participants
0 Participants
n=20 Participants
Race (NIH/OMB)
American Indian or Alaska Native
1 Participants
n=11 Participants
0 Participants
n=9 Participants
1 Participants
n=20 Participants
Race (NIH/OMB)
Asian
0 Participants
n=11 Participants
0 Participants
n=9 Participants
0 Participants
n=20 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=11 Participants
0 Participants
n=9 Participants
0 Participants
n=20 Participants
Race (NIH/OMB)
Black or African American
0 Participants
n=11 Participants
0 Participants
n=9 Participants
0 Participants
n=20 Participants
Race (NIH/OMB)
White
4 Participants
n=11 Participants
1 Participants
n=9 Participants
5 Participants
n=20 Participants
Race (NIH/OMB)
More than one race
1 Participants
n=11 Participants
0 Participants
n=9 Participants
1 Participants
n=20 Participants
Race (NIH/OMB)
Unknown or Not Reported
5 Participants
n=11 Participants
8 Participants
n=9 Participants
13 Participants
n=20 Participants
Region of Enrollment
United States
11 participants
n=11 Participants
9 participants
n=9 Participants
20 participants
n=20 Participants

PRIMARY outcome

Timeframe: Five weeks post-randomization (for intervention arm only)

Population: Please note: Only participants assigned to the intervention arm (Arm 1) were assessed for this outcome measure.

Will be measured by intervention completion (Benchmark: \>= 70% complete the intervention sessions).

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=11 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Feasibility (Number/Proportion of Participants Who Completed the Intervention)
5 Participants

PRIMARY outcome

Timeframe: Five weeks post-randomization (for intervention arm only)

Population: Please note: Only participants who completed the intervention were assessed for this outcome measure.

Will be measured by a single-item question assessing helpfulness of the intervention (1 = not at all helpful, 5 = very helpful) as well an open-ended question about helpfulness of the intervention ("What was helpful about the intervention?") (Benchmark: \>= 70% rate it as "helpful" or "very helpful"). Data reported as a count number of those who reported "4=helpful" or "5=very helpful" to this question.

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=5 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Acceptability (Helpfulness of the Intervention)
Reported "4=helpful"
0 Participants
Acceptability (Helpfulness of the Intervention)
Reported "5=very helpful"
5 Participants

PRIMARY outcome

Timeframe: Baseline, five weeks post-randomization (after randomizing and completing the 3-week intervention if assigned)

Population: Due to the small sample size, inferential statistics were not run. Only participants who completed all study activities (e.g., follow-up surveys) were assessed for this outcome measure.

Knowledge subscale of the Advance Care Planning Engagement survey, which is a 49-item scale with high reliability (Cronbach's alpha = .94). Subscale is 6 items with Likert-type answers ranging from 1=not at all to 5=extremely. Responses to these 6 items are summed to create total scores, ranging from 6 (low levels of knowledge) to 30 (high levels of knowledge). Higher scores indicate higher levels of knowledge. Mean score differences were calculated between baseline and follow-up for each study arm and tested for significance.

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=4 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
n=7 Participants
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Change in Knowledge of Advance Care Planning
2.75 score on a scale
Standard Deviation 3.40
1.86 score on a scale
Standard Deviation 3.48

PRIMARY outcome

Timeframe: Baseline, five weeks post-randomization (after randomizing and completing the 3-week intervention if assigned)

Population: Due to the small sample size, inferential statistics were not run. Only participants who completed all study activities (e.g., follow-up surveys) were assessed for this outcome measure.

Readiness/motivation subscale of the Advance Care Planning Engagement survey, which is a 49-item scale with high reliability (Cronbach's alpha = .94). Subscale is 10 items with Likert-type answers ranging from 1=not at all to 5=extremely. Scores from these items are summed to created total scores, ranging from 10 (low level of readiness/motivation) to 60 (high level of readiness/motivation). Higher scores indicate higher levels of readiness/motivation. Mean score differences were calculated between baseline and follow-up for each study arm and tested for significance.

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=4 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
n=7 Participants
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Change in Readiness/Motivation to Engage in Advance Care Planning
10.0 score on a scale
Standard Deviation 18.89
1.0 score on a scale
Standard Deviation 6.08

PRIMARY outcome

Timeframe: Baseline, five weeks post-randomization (after randomizing and completing the 3-week intervention if assigned)

Population: Due to the small sample size, inferential statistics were not run. Only participants who completed all study activities (e.g., follow-up surveys) were assessed for this outcome measure.

Self-efficacy subscale of the Advance Care Planning Engagement survey, which is a 49-item scale with high reliability (Cronbach's alpha = .94). Subscale is 6 items with Likert-type answers ranging from 1=not at all to 5=extremely. These items are summed to create total scores, ranging from 6 (low levels of self-efficacy) to 30 (high levels of self-efficacy). Higher scores indicated higher levels of self-efficacy. Mean score differences were calculated between baseline and follow-up for each study arm and tested for significance. Data reported is the mean change in this outcome from pre-randomization/baseline to post-randomization.

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=4 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
n=7 Participants
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Change in Self-efficacy to Engage in Advance Care Planning
0.00 score on a scale
Standard Deviation 4.27
0.86 score on a scale
Standard Deviation 5.30

PRIMARY outcome

Timeframe: Baseline, five weeks post-randomization (after randomizing and completing the 3-week intervention if assigned)

Population: Due to the small sample size, inferential statistics were not run. Only participants who completed all study activities (e.g., follow-up surveys) were assessed for this outcome measure.

End-of-life care discussions will be measured by asking patients to self-report whether they have discussed any of the following: (1) wishes they have about the care they would like to receive if they were dying and/or (2) advance care directives, with an oncology provider or family member: DNR orders, living wills, durable powers of attorney for health care (yes/no format). Engagement will be measured as a count to the degree to which they engaged in each of these, with no=0 and yes=1. Total score can range from 0 (low or none) to 8 (high or discussed all domains with providers and family). Data reported is the mean change in this outcome from pre-randomization/baseline to post-randomization,

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=4 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
n=7 Participants
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Change in Engagement in Advance Care Planning (End-of-life Care Discussions)
2.50 score on a scale
Standard Deviation 1.73
1.29 score on a scale
Standard Deviation 3.20

PRIMARY outcome

Timeframe: Baseline, five weeks post-randomization (after randomizing and completing the 3-week intervention if assigned)

Population: Due to the small sample size, inferential statistics were not run. Only participants who completed all study activities (e.g., follow-up surveys) were assessed for this outcome measure.

Completion of advance directives will be assessed by examining the medical chart for completed advance directive documents (DNR order, living will, health care proxy/durable power of attorney). Completion will be measured as a count to the degree to which they completed each of these, with no=0 and yes=1. Scores can range from 0 (low or none completed) to 3 (high or all completed). Data reported is the mean change in this outcome from pre-randomization/baseline to post-randomization.

Outcome measures

Outcome measures
Measure
Arm I (PLAN Intervention)
n=4 Participants
Patients participate in PLAN intervention, consisting of 3 coaching sessions over 45-60 minutes each with a health coach. Communication Intervention: Participate in PLAN intervention Questionnaire Administration: Ancillary studies
Arm II (Best Practice)
n=7 Participants
Patients receive usual care. Best Practice: Receive usual care Questionnaire Administration: Ancillary studies
Change in Completion of Advance Directives
0.0 score on a scale
Standard Deviation 0.82
0.43 score on a scale
Standard Deviation 0.53

Adverse Events

Arm I (PLAN Intervention)

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Arm II (Best Practice)

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Megan Shen, Associate Professor

Fred Hutchinson Cancer Center

Phone: 206-667-4172

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place