Trial Outcomes & Findings for The Support, Educate, Empower (SEE) Program (NCT NCT04735653)

NCT ID: NCT04735653

Last Updated: 2025-11-03

Results Overview

Medication adherence will be measured objectively using electronic monitors with a bottle-in-bottle technique where all glaucoma medications are placed inside electronic pill bottles. An adherent event is defined as using an eye drop medication within a specified time window of a dose on the previous day. Adherence will be calculated as the percentage of doses taken on time divided by total doses prescribed over the six-month study period. The calculation censored participants at the time of withdrawal, loss to follow-up, or disengagement (attended the exit visit but may have gone some time before this visit without adherence monitor activity) and their adherence was calculated only during the reduced time on study. Additionally, times noted where monitors malfunctioned or went unused due to vacation or hospitalization were excluded.

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

236 participants

Primary outcome timeframe

Up to 6 months

Results posted on

2025-11-03

Participant Flow

236 participants were consented. 235 were randomized. The unrandomized individual was determined to be ineligible post-consenting.

Participant milestones

Participant milestones
Measure
SEE Intervention - Personalized Glaucoma Coaching
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Enhanced Care Control
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
Overall Study
STARTED
117
118
Overall Study
COMPLETED
90
107
Overall Study
NOT COMPLETED
27
11

Reasons for withdrawal

Reasons for withdrawal
Measure
SEE Intervention - Personalized Glaucoma Coaching
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Enhanced Care Control
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
Overall Study
Lost to Follow-up
17
7
Overall Study
Withdrawal by Subject
8
2
Overall Study
Death
0
2
Overall Study
Removed due to determination of participant noncompliance
2
0

Baseline Characteristics

The Support, Educate, Empower (SEE) Program

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Total
n=235 Participants
Total of all reporting groups
SEE Intervention - Personalized Glaucoma Coaching
n=117 Participants
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Enhanced Care Control
n=118 Participants
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
Age, Continuous
67.3 years
STANDARD_DEVIATION 10.9 • n=18 Participants
66.4 years
STANDARD_DEVIATION 11.5 • n=3 Participants
68.2 years
STANDARD_DEVIATION 10.4 • n=15 Participants
Sex/Gender, Customized
Female
124 Participants
n=18 Participants
64 Participants
n=3 Participants
60 Participants
n=15 Participants
Sex/Gender, Customized
Male
110 Participants
n=18 Participants
53 Participants
n=3 Participants
57 Participants
n=15 Participants
Sex/Gender, Customized
Not Reported
1 Participants
n=18 Participants
0 Participants
n=3 Participants
1 Participants
n=15 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
6 Participants
n=18 Participants
2 Participants
n=3 Participants
4 Participants
n=15 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
202 Participants
n=18 Participants
101 Participants
n=3 Participants
101 Participants
n=15 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
27 Participants
n=18 Participants
14 Participants
n=3 Participants
13 Participants
n=15 Participants
Race/Ethnicity, Customized
Black
139 Participants
n=18 Participants
68 Participants
n=3 Participants
71 Participants
n=15 Participants
Race/Ethnicity, Customized
White
68 Participants
n=18 Participants
32 Participants
n=3 Participants
36 Participants
n=15 Participants
Race/Ethnicity, Customized
Asian
10 Participants
n=18 Participants
6 Participants
n=3 Participants
4 Participants
n=15 Participants
Race/Ethnicity, Customized
Other
10 Participants
n=18 Participants
5 Participants
n=3 Participants
5 Participants
n=15 Participants
Race/Ethnicity, Customized
Not Reported
8 Participants
n=18 Participants
6 Participants
n=3 Participants
2 Participants
n=15 Participants
Region of Enrollment
United States
235 Participants
n=18 Participants
117 Participants
n=3 Participants
118 Participants
n=15 Participants

PRIMARY outcome

Timeframe: Up to 6 months

Population: Data is shown for participants who provided data for this outcome.

Medication adherence will be measured objectively using electronic monitors with a bottle-in-bottle technique where all glaucoma medications are placed inside electronic pill bottles. An adherent event is defined as using an eye drop medication within a specified time window of a dose on the previous day. Adherence will be calculated as the percentage of doses taken on time divided by total doses prescribed over the six-month study period. The calculation censored participants at the time of withdrawal, loss to follow-up, or disengagement (attended the exit visit but may have gone some time before this visit without adherence monitor activity) and their adherence was calculated only during the reduced time on study. Additionally, times noted where monitors malfunctioned or went unused due to vacation or hospitalization were excluded.

Outcome measures

Outcome measures
Measure
SEE Intervention - Personalized Glaucoma Coaching
n=113 Participants
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Enhanced Care Control
n=114 Participants
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
Mean Percent Electronically Monitored Medication Adherence Over Six Months
77.6 percent adherence
Standard Deviation 19.7
58.0 percent adherence
Standard Deviation 25.2

PRIMARY outcome

Timeframe: Up to 6 months

Population: Data is shown for participants who provided data for this outcome.

Medication adherence will be measured objectively using electronic monitors with a bottle-in-bottle technique where all glaucoma medications are placed inside electronic pill bottles. An adherent event is defined as using an eye drop medication within a specified time window of a dose on the previous day. Adherence will be calculated as the percentage of doses taken on time divided by total doses prescribed over the six-month study period. The calculation censored participants at the time of withdrawal, loss to follow-up, or disengagement (attended the exit visit but may have gone some time before this visit without adherence monitor activity) and their adherence was calculated only during the reduced time on study. Additionally, times noted where monitors malfunctioned or went unused due to vacation or hospitalization were excluded. Continuous percentage adherence was dichotomized to a binary outcome as \>= 80% vs \< 80% medication adherence.

Outcome measures

Outcome measures
Measure
SEE Intervention - Personalized Glaucoma Coaching
n=113 Participants
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Enhanced Care Control
n=114 Participants
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
Percentage of Participants Who Achieved >= 80% Medication Adherence Over the 6 Month Study Period
Adherence >= 80%
62 Participants
27 Participants
Percentage of Participants Who Achieved >= 80% Medication Adherence Over the 6 Month Study Period
Adherence < 80%
51 Participants
87 Participants

SECONDARY outcome

Timeframe: 6 months

Population: Data is reported for people who came to the exit visit and provided both baseline and 6-month data

Glaucoma-related Distress will be measured by the Diabetes Distress Scale adapted for glaucoma, a 17-item scale where each item is assessed on a 6-point Likert scale. A composite score is calculated as a mean of the 17 items, ranging from 1 to 6, where a higher score indicates a higher distress level. Mean change in Glaucoma-related Distress will be compared between the intervention and control groups. Six-month change from baseline is calculated by subtracting the baseline value from the six-month score. Negative number for change indicates that participant distress decreased over time and a positive number for change would indicate that distress increased.

Outcome measures

Outcome measures
Measure
SEE Intervention - Personalized Glaucoma Coaching
n=90 Participants
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Enhanced Care Control
n=107 Participants
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
Change in Glaucoma-related Distress
6 month change from Baseline
-0.6 score on a scale
Standard Deviation 0.9
-0.2 score on a scale
Standard Deviation 0.7
Change in Glaucoma-related Distress
Baseline
2.5 score on a scale
Standard Deviation 0.9
2.4 score on a scale
Standard Deviation 0.8
Change in Glaucoma-related Distress
6 months
1.9 score on a scale
Standard Deviation 0.8
2.2 score on a scale
Standard Deviation 0.9

Adverse Events

Enhanced Care Control

Serious events: 0 serious events
Other events: 7 other events
Deaths: 2 deaths

SEE Intervention - Personalized Glaucoma Coaching

Serious events: 0 serious events
Other events: 18 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Enhanced Care Control
n=118 participants at risk
Enhanced Care Control: Participants will receive non-tailored educational materials about glaucoma from leading sources by mail every 2 months for a total of 3 mailings during the 6-month study period.
SEE Intervention - Personalized Glaucoma Coaching
n=117 participants at risk
SEE Intervention - Personalized Glaucoma Coaching: This is a six-month personalized glaucoma coaching program where a coach trained in motivational interviewing (MI)-based counseling uses a web based tool that generates tailored education to help glaucoma patients identify their barriers to optimal medication adherence and explore potential solutions during three in-person coaching sessions. The coach provides between-session support through four phone calls, with two phone calls between the first and second session and one phone call after each subsequent session. Participants can elect to receive any of the following type of alarm when a dose of medication is due: visual or audible alert or automated text or phone call reminder.
Eye disorders
High Intraocular Pressure (IOP)
5.9%
7/118 • Number of events 118 • 6 months
IOP was checked five times in the intervention group and twice in the control group.
15.4%
18/117 • Number of events 117 • 6 months
IOP was checked five times in the intervention group and twice in the control group.

Additional Information

Dr. Paula Anne Newman-Casey

University of Michigan Medical School

Phone: 734-763-6967

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place