Multi-Centre Observational Study of Maintenance Niraparib in Treatment of Ovarian CanceR

NCT ID: NCT04295577

Last Updated: 2022-01-21

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

350 participants

Study Classification

OBSERVATIONAL

Study Start Date

2020-02-03

Study Completion Date

2024-02-03

Brief Summary

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This is a multi-centre, observational (non-interventional) study, designed to follow patients with advanced ovarian fallopian tube and primary peritoneal cancer, who are receiving Niraparib as maintenance treatment, according to the Niraparib access criteria (via TESARO patient access programme, EMA licence and NHS pending NICE assessment due 2018) including assessment of tolerability to Niraparib therapy.

Detailed Description

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This is a multi-centre, observational (non-interventional) study, designed to follow patients with advanced ovarian fallopian tube and primary peritoneal cancer, who are receiving Niraparib as maintenance treatment, according to the Niraparib access criteria (via TESARO patient access programme, EMA licence and NHS pending NICE assessment due 2018) including assessment of tolerability to Niraparib therapy. These pathways will include patients who have been registered and not prescribed drug. In these cases, the reason for patients not receiving Niraparib will be recorded. Up to 16 centres will be involved in the study. Centres will be selected based on interest in or experience of prescribing Niraparib and geographical location in order to give a representative picture of the management of Niraparib in the UK.

Cohort 1: Retrospective Cohort

This cohort will include:

* Patients who have previously commenced maintenance Niraparib prior to the MONITOR study opening at the site and are still receiving Niraparib but in whom quality of life data are not available.
* Patients who have previously commenced Niraparib prior to the MONITOR Study opening at the site but are now deceased but will be eligible for retrospective data collection without the need for informed consent.
* Patients who have previously commenced maintenance Niraparib prior to the MONITOR study opening at the site but have discontinued treatment.
* Data in respect of AEs, SAEs, ADRs and AESIs will be recorded in Case Report Forms and be identified via the patient's medical records. There is no requirement to complete trial specific SAE reporting forms in this cohort.

Cohort 2: Prospective Cohort

This cohort will include:

* Patients who have previously commenced maintenance Niraparib prior to the MONITOR study opening at the site and are still receiving Niraparib and in whom quality of life data is available.
* Patients who are due to commence maintenance Niraparib treatment.

The collection of QoL data, using EQ-5D-5L and EORTC QoL-OV28, FACT-O questionnaires will be mandatory. For patients continuing on Niraparib, data will be collected retrospectively to the point they sign the consent form, and prospectively. Going forward QoL data will not be collected for these patients unless available as part of routine clinical care and baseline QoL is available.

The collection of data relating to adverse events will be mandatory. The scope of adverse events to be recorded includes AEs, SAEs, ADRs and AESIs - see section 5.3.1 for definitions of these events. Details in respect of AEs and SAEs, ADRs and AESIs will be recorded during routine clinic visits or via standard of care contact with the patient.

No additional visits will be required, no study medication will be administrated, and no additional procedures will be performed outside the local routine practice as part of the trial. Patients will be managed and followed up according to routine practice. Only data available in the patient's medical record will be collected. Patients consented to cohort 2 will be asked to complete validated QoL tools; EQ-5D-5L, FACT-O and EORTC QOL-OV28. Approximately 350 patients will be enrolled with an estimated 100 in the retrospective cohort and 250 in the prospective cohort.

Conditions

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Ovarian Cancer Peritoneal Cancer Fallopian Tube Cancer

Study Design

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Observational Model Type

COHORT

Study Time Perspective

OTHER

Study Groups

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Cohort 1: Retrospective Cohort

This cohort will include:

* Patients who have previously commenced maintenance Niraparib prior to the MONITOR study opening at the site and are still receiving Niraparib but in whom quality of life data are not available.
* Patients who have previously commenced Niraparib prior to the MONITOR Study opening at the site but are now deceased but will be eligible for retrospective data collection without the need for informed consent.
* Patients who have previously commenced maintenance Niraparib prior to the MONITOR study opening at the site but have discontinued treatment.
* Data in respect of AEs, SAEs, ADRs and AESIs will be recorded in Case Report Forms and be identified via the patient's medical records. There is no requirement to complete trial specific SAE reporting forms in this cohort.

Niraparib

Intervention Type OTHER

Niraparib - Niraparib is an oral, highly selective PARP-1 and -2 inhibitor. However, it also inhibits other members of the PARP family, including PARP 3, -4, -10, 12, -14, and -15\[13\].

Cohort 2: Prospective Cohort

This cohort will include:

* Patients who have previously commenced maintenance Niraparib prior to the MONITOR study opening at the site and are still receiving Niraparib and in whom quality of life data is available.
* Patients who are due to commence maintenance Niraparib treatment.

Niraparib

Intervention Type OTHER

Niraparib - Niraparib is an oral, highly selective PARP-1 and -2 inhibitor. However, it also inhibits other members of the PARP family, including PARP 3, -4, -10, 12, -14, and -15\[13\].

Interventions

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Niraparib

Niraparib - Niraparib is an oral, highly selective PARP-1 and -2 inhibitor. However, it also inhibits other members of the PARP family, including PARP 3, -4, -10, 12, -14, and -15\[13\].

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Female patient 18 years old or over
* Patients who are planned to receive Niraparib for advanced ovarian fallopian tube or primary peritoneal cancer,
* Patients who have previously commenced maintenance Niraparib prior to study opening at site
* Deceased patients who have previously been prescribed Niraparib
* Patients able to give written informed consent, complete questionnaires in English and comply with study procedures (if applicable).

Exclusion Criteria

* Patients aged \<18 years old
* Patients unable to give informed consent, complete questionnaires in English or comply with study procedures (if applicable).
Minimum Eligible Age

18 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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Royal Marsden NHS Foundation Trust

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Susana Banerjee, MBBS MA PhD FRCP

Role: STUDY_CHAIR

Royal Marsden NHS Foundation Trust

Locations

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Royal United Hospitals Bath

Bath, , United Kingdom

Site Status RECRUITING

Belfast Health & Social Care Trust

Belfast, , United Kingdom

Site Status RECRUITING

University Hospitals Birmingham NHS Foundation Trust

Birmingham, , United Kingdom

Site Status RECRUITING

University Hospitals Bristol NHS Foundation Trust

Bristol, , United Kingdom

Site Status RECRUITING

Addenbrookes Hospital

Cambridge, , United Kingdom

Site Status RECRUITING

Velindre Cancer Centre, Velindre University NHS Trust

Cardiff, , United Kingdom

Site Status RECRUITING

Morecambe Bay NHS Trust

Lancaster, , United Kingdom

Site Status ACTIVE_NOT_RECRUITING

St James's University Hospital

Leeds, , United Kingdom

Site Status RECRUITING

Barts Health NHS Trust

London, , United Kingdom

Site Status RECRUITING

Northampton General Hospital NHS Trust

Northampton, , United Kingdom

Site Status RECRUITING

Mount Vernon Cancer Centre, East and North Hertfordshire NHS Trust

Northwood, , United Kingdom

Site Status RECRUITING

Queen's Hospital

Romford, , United Kingdom

Site Status RECRUITING

University Hospital Southampton NHS Foundation Trust

Southampton, , United Kingdom

Site Status RECRUITING

Royal Marsden NHS Foundation Trust

Sutton, , United Kingdom

Site Status RECRUITING

Royal Cornwall Hospitals NHS Trust

Truro, , United Kingdom

Site Status RECRUITING

Countries

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United Kingdom

Central Contacts

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Kofi Sarfo

Role: CONTACT

0208 915 6766

Facility Contacts

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Samantha Curtis

Role: primary

Trial Coordinator

Role: primary

Trial Coordinator

Role: primary

Trial Coordinator

Role: primary

Joanna Worley

Role: primary

Trial Coordinator

Role: primary

Trial Coordinator

Role: primary

Trial Coordinator

Role: primary

Trial Coordinator

Role: primary

Trial Coordinator

Role: primary

Helen Mackenzie

Role: primary

Rachel Johnson

Role: primary

Laura Pope

Role: primary

Catherine Pentecost

Role: primary

Other Identifiers

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CCR4939

Identifier Type: -

Identifier Source: org_study_id

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