Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.
UNKNOWN
500 participants
OBSERVATIONAL
2020-02-29
2022-12-31
Brief Summary
Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.
* To register VWD patients in retrospective/prospective study, using a database, available online, common to all
* To register the bleeding history, the treatment and the events of VWD patients in the region
* To investigate the influence of VWD on quality of life
Related Clinical Trials
Explore similar clinical trials based on study characteristics and research focus.
The Severe Von Willebrand Disease (sVWD) Patient Registry
NCT05437536
Computerized Registry of Patients With Venous Thromboembolism (RIETE)
NCT02832245
Mexican Multidisciplinary Registry of Patients With Venous Thromboembolic Disease
NCT02877251
Institutional Registry of Haemorrhagic Hereditary Telangiectasia
NCT01761981
Microwaves Ablation of Varicose Veins
NCT05508581
Detailed Description
Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.
There is limited information on the epidemiology of VWD in developing countries. Some countries in Latin America have registries of severe disease that, although it is the rarest form, carries the highest costs for regional health systems. So that the prevalence of clinical symptoms and laboratory features of the disease as well as the management of the disease in Latin America is unknown.
The present project aims to establish a network of centers and professionals with the objective to register and investigate all patients with VWD in Latin America, using a database available online common to all, to gain understanding about phenotype, genotype and management of VWD in the region.
Conditions
See the medical conditions and disease areas that this research is targeting or investigating.
Study Design
Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.
COHORT
CROSS_SECTIONAL
Study Groups
Review each arm or cohort in the study, along with the interventions and objectives associated with them.
Subjects with von Willbrand Disease Acquired
Observation
No interventions planned: treatment of patients at the discretion of the treating/responsible physician
Subjects with von Willbrand Disease Congenital
Observation
No interventions planned: treatment of patients at the discretion of the treating/responsible physician
Interventions
Learn about the drugs, procedures, or behavioral strategies being tested and how they are applied within this trial.
Observation
No interventions planned: treatment of patients at the discretion of the treating/responsible physician
Observation
No interventions planned: treatment of patients at the discretion of the treating/responsible physician
Eligibility Criteria
Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.
Inclusion Criteria
* All types of VWD
* All ages
Exclusion Criteria
ALL
No
Sponsors
Meet the organizations funding or collaborating on the study and learn about their roles.
Academia Nacional de Medicina
OTHER
Responsible Party
Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.
Central Contacts
Reach out to these primary contacts for questions about participation or study logistics.
Other Identifiers
Review additional registry numbers or institutional identifiers associated with this trial.
Protocol_3081
Identifier Type: -
Identifier Source: org_study_id
More Related Trials
Additional clinical trials that may be relevant based on similarity analysis.