PPCM Observational Study (Peripartum Cardiomyopathy)

NCT ID: NCT04234659

Last Updated: 2021-12-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

10 participants

Study Classification

OBSERVATIONAL

Study Start Date

2021-01-11

Study Completion Date

2023-02-01

Brief Summary

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The purpose of this study is to examine the clinical treatment of patients diagnosed with peripartum cardiomyopathy complicated by cardiogenic shock.

Detailed Description

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This single-site, virtual, longitudinal, observational study will investigate two cohorts (study groups) by enrolling a total of ten participants, five in each cohort. The two cohorts include individuals who received mechanical circulatory support (specifically the IMPELLA® device) compared to individuals who did not receive mechanical circulatory support for treatment of their PPCM complicated by cardiogenic shock index event.

The duration of enrollment for each participant is about 5 months. It is anticipated that the trial will be complete in 12 months. Participant engagement to the study will be self-initiated.

Under the guidance and support of Medical College of Wisconsin research coordinator, participants will directly access the study REDCapTM database for enrollment and follow-up data entry for this study. The research coordinator will obtain and abstract participant medical records documenting the event.

Conditions

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Peripartum Cardiomyopathy Cardiogenic Shock

Study Design

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Observational Model Type

COHORT

Study Time Perspective

RETROSPECTIVE

Study Groups

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Individuals Receiving Mechanical Circulatory Device Support

Individuals receiving mechanical circulatory support device (specifically the IMPELLA® device) for treatment of their index peripartum cardiomyopathy complicated by cardiogenic shock event.

Clinical placement of a temporary IMPELLA® mechanical circulatory support device.

Intervention Type DEVICE

Surgical placement of the IMPELLA® device for life threatening cardiogenic shock not responsive to other medical treatment.

Individuals Without Mechanical Circulatory Device Support

Individuals not receiving mechanical circulatory support device (specifically the IMPELLA® device) for treatment of their index peripartum cardiomyopathy complicated by cardiogenic shock event.

No interventions assigned to this group

Interventions

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Clinical placement of a temporary IMPELLA® mechanical circulatory support device.

Surgical placement of the IMPELLA® device for life threatening cardiogenic shock not responsive to other medical treatment.

Intervention Type DEVICE

Eligibility Criteria

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Inclusion Criteria

Females:

* age ≥ 18 years old at the time of entry into the study
* who have capacity to provide consent for study participation
* with self-reported PPCM complicated by cardiogenic shock
* individuals should have US citizenship
* index event occurring within the continental United States.

Exclusion Criteria

* lack of medical records supporting pregnancy, peripartum cardiomyopathy or cardiogenic shock by study definition
* inability of participant to provide informed consent
Minimum Eligible Age

18 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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Abiomed Inc.

INDUSTRY

Sponsor Role collaborator

University of Pennsylvania

OTHER

Sponsor Role collaborator

Medical College of Wisconsin

OTHER

Sponsor Role lead

Responsible Party

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Sarah Thordsen

Assistant Professor Cardiovascular Medicine

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Sarah Thordsen, MD

Role: PRINCIPAL_INVESTIGATOR

Medical College of Wisconsin

Locations

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Medical College of Wisconsin

Milwaukee, Wisconsin, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Susan K. Mauermann, RN

Role: CONTACT

Phone: 414-955-6749

Email: [email protected]

Mary C Wexler, BS

Role: CONTACT

Phone: 414-955-6741

Email: [email protected]

Facility Contacts

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Mary C Wexler, BS

Role: primary

References

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McNamara DM, Elkayam U, Alharethi R, Damp J, Hsich E, Ewald G, Modi K, Alexis JD, Ramani GV, Semigran MJ, Haythe J, Markham DW, Marek J, Gorcsan J 3rd, Wu WC, Lin Y, Halder I, Pisarcik J, Cooper LT, Fett JD; IPAC Investigators. Clinical Outcomes for Peripartum Cardiomyopathy in North America: Results of the IPAC Study (Investigations of Pregnancy-Associated Cardiomyopathy). J Am Coll Cardiol. 2015 Aug 25;66(8):905-14. doi: 10.1016/j.jacc.2015.06.1309.

Reference Type BACKGROUND
PMID: 26293760 (View on PubMed)

Kolte D, Khera S, Aronow WS, Palaniswamy C, Mujib M, Ahn C, Jain D, Gass A, Ahmed A, Panza JA, Fonarow GC. Temporal trends in incidence and outcomes of peripartum cardiomyopathy in the United States: a nationwide population-based study. J Am Heart Assoc. 2014 Jun 4;3(3):e001056. doi: 10.1161/JAHA.114.001056.

Reference Type BACKGROUND
PMID: 24901108 (View on PubMed)

Doerr M, Grayson S, Moore S, Suver C, Wilbanks J, Wagner J. Implementing a universal informed consent process for the All of Us Research Program. Pac Symp Biocomput. 2019;24:427-438.

Reference Type BACKGROUND
PMID: 30963079 (View on PubMed)

Other Identifiers

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PRO35709

Identifier Type: -

Identifier Source: org_study_id