Post-authorization Safety Study on the Long Term Safety of Sonidegib in Patients With Locally Advanced Cell Carcinoma

NCT ID: NCT04066504

Last Updated: 2025-06-24

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.

Recruitment Status

COMPLETED

Total Enrollment

323 participants

Study Classification

OBSERVATIONAL

Study Start Date

2019-03-11

Study Completion Date

2025-03-14

Brief Summary

Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.

Collect real world safety data on the use of sonidegib in adult patients with laBCC. Document major safety parameters such as on treatment deaths, adverse events (AEs)/ serious adverse events (SAEs) and discontinuation secondary to AEs.

Detailed Description

Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.

This is a non-interventional, multinational, multi-center post-authorization safety study (PASS), to assess the safety of sonidegib administered in routine clinical practice in patients with laBCC who are not amendable to curative surgery or radiation therapy. This study is observational in nature and does not impose a therapy protocol, diagnostic/therapeutic interventions or a specific visit schedule. For this study, each enrolled patient will be followed up for 3 years after enrollment.

Conditions

See the medical conditions and disease areas that this research is targeting or investigating.

Basal Cell Carcinoma

Study Design

Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.

Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

Review each arm or cohort in the study, along with the interventions and objectives associated with them.

Sonidegib

Patients with laBCC undergoing sonidegib treatment in routine clinical practice

sonidegib

Intervention Type DRUG

Sonidegib 200 mg orally taken once daily (dose modifications according to the approved local country prescribing information are permitted)

Interventions

Learn about the drugs, procedures, or behavioral strategies being tested and how they are applied within this trial.

sonidegib

Sonidegib 200 mg orally taken once daily (dose modifications according to the approved local country prescribing information are permitted)

Intervention Type DRUG

Other Intervention Names

Discover alternative or legacy names that may be used to describe the listed interventions across different sources.

LDE225

Eligibility Criteria

Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.

Inclusion Criteria

* Written informed consent or equivalent document (e.g., written information) as per country regulation
* Patients aged 18 years or older with a diagnosis of laBCC who are not amenable to curative surgery or radiation therapy
* Patients must be treated with sonidegib 200 mg orally taken once daily (dose modifications according to the approved local country prescribing information are permitted)
* Sonidegib treatment must be started either at the first visit for this study or prior to study entry.

Exclusion Criteria

* Patients treated with any hedgehog pathway inhibitor besides sonidegib within 3 months prior to study entry
* Patients currently enrolled in an interventional clinical trial
* Hypersensitivity to the active substance or to any of the excipients listed in section 6.1 of the Summary of Product Characteristics (SmPC)
* Pregnancy and breast-feeding
* Women of childbearing potential who do not comply with the Odomzo Pregnancy Prevention Programme (as defined in sections 4.4 and 4.6 of the approved SmPC).
* Male patients who are unable to follow or comply with the required contraception measures (as defined in sections 4.4 and 4.6 of the approved SmPC).
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

Meet the organizations funding or collaborating on the study and learn about their roles.

Sun Pharmaceutical Industries Limited

INDUSTRY

Sponsor Role lead

Responsible Party

Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.

Responsibility Role SPONSOR

Principal Investigators

Learn about the lead researchers overseeing the trial and their institutional affiliations.

Ralf Gutzmer

Role: PRINCIPAL_INVESTIGATOR

Universitätsklinik für Dermatologie, Venerologie, Allergologie und Phlebologie Johannes Wesling Klinikum Minden Mühlenkreiskliniken Universitätsklinikum der Ruhr-Universität Bochum

Locations

Explore where the study is taking place and check the recruitment status at each participating site.

Katholisches Klinikum Bochum St. Josef-Hospital

Bochum, , Germany

Site Status

Elbe Kliniken Stade - Buxtehude GmbH

Buxtehude, , Germany

Site Status

Klinikum Darmstadt GmbH

Darmstadt, , Germany

Site Status

Universitätsklinik Carl Gustav Carus der Technischen Universität Dresden

Dresden, , Germany

Site Status

Helios Klinikum

Erfurt, , Germany

Site Status

Universitaetsklinikum Essen

Essen, , Germany

Site Status

Universitätsklinikum Freiburg

Freiburg im Breisgau, , Germany

Site Status

SRH Wald-Klinikum

Gera, , Germany

Site Status

Universitätsklinikum Hamburg-Eppendorf

Hamburg, , Germany

Site Status

Medizinische Hochschule Hannover

Hanover, , Germany

Site Status

Universitaets-Hautklinik Kiel

Kiel, , Germany

Site Status

Klinikum Ludwigshafen gGmbH

Ludwigshafen, , Germany

Site Status

Universitaetsklinikum Schleswig-Holstein

Lübeck, , Germany

Site Status

Universitätsklinik Magdeburg

Magdeburg, , Germany

Site Status

Johannes Wesling Klinikum Minden

Minden, , Germany

Site Status

Klinikum rechts der Isar

München, , Germany

Site Status

Fachklinik Muenster-Hornheide

Münster, , Germany

Site Status

Helios St. Elisabeth Klinik

Oberhausen, , Germany

Site Status

Harzklinikum Dorothea Christiane Erxleben GmbH

Quedlinburg, , Germany

Site Status

Universitätsklinikum Regensburg

Regensburg, , Germany

Site Status

Universitaetsklinikum Tuebingen

Tübingen, , Germany

Site Status

Universitätsklinikum Ulm

Ulm, , Germany

Site Status

I.R.C.C.S Istituto Tumori "Giovanni Paolo II"

Bari, , Italy

Site Status

ASST Spedali Civili di Brescia

Brescia, , Italy

Site Status

Azienda Toscana Centro - Università di Firenze

Florence, , Italy

Site Status

Ospedale Policlinico San Martino

Genova, , Italy

Site Status

ASL1 Avezzano-Sulmona-L'Aquila

L’Aquila, , Italy

Site Status

Ist. Scien. Romagnolo per lo Studio e la Cura dei Tumori - IRST

Meldola, , Italy

Site Status

Forndazione I.R.C.C.S. Istituto nazionale dei tumori

Milan, , Italy

Site Status

Istituto Tumori Napoli Fondazione G. Pascale

Napoli, , Italy

Site Status

Università Degli Studi di Napoli Federico II

Napoli, , Italy

Site Status

AOU Maggiore della Carità - Università del Piemonte Orientale

Novara, , Italy

Site Status

IDI

Roma, , Italy

Site Status

Università Cattolica del Sacro Cuore

Roma, , Italy

Site Status

Hospital Germans Trias i Pujol

Badalona, , Spain

Site Status

Hospital Vall d'Hebron

Barcelona, , Spain

Site Status

Hospital Clínic de Barcelona

Barcelona, , Spain

Site Status

Hospital de la Santa Creu i Sant Pau

Barcelona, , Spain

Site Status

Hospital Universitario de Gran Canaria Doctor Negrín

Las Palmas de Gran Canaria, , Spain

Site Status

Hospital Universitario Ramón y Cajal

Madrid, , Spain

Site Status

Hospital Universitario La Paz

Madrid, , Spain

Site Status

Complejo Hospitalario Universitario de Pontevedra

Pontevedra, , Spain

Site Status

Hospital Universitario Nuestra Señora de Candelaria

Santa Cruz de Tenerife, , Spain

Site Status

Hospital General Universitari València

Valencia, , Spain

Site Status

Hospital Universitario La Fe

Valencia, , Spain

Site Status

Inselspital

Bern, , Switzerland

Site Status

Universitätsspital Zürich

Zurich, , Switzerland

Site Status

Countries

Review the countries where the study has at least one active or historical site.

Germany Italy Spain Switzerland

References

Explore related publications, articles, or registry entries linked to this study.

Gutzmer R, Leiter U, Mohr P, Kahler KC, Ascierto PA, Scalvenzi M, Peris K, Perez-Pastor GM, Fernandez-de-Misa R, Botella-Estrada R, Hunger RE, Martelli S, Guneli N, Arntz R, Hauschild A. Interim analysis of the multinational, post-authorization safety study (NISSO) to assess the long-term safety of sonidegib in patients with locally advanced basal cell carcinoma. BMC Cancer. 2024 Nov 14;24(1):1401. doi: 10.1186/s12885-024-13101-z.

Reference Type DERIVED
PMID: 39538176 (View on PubMed)

Other Identifiers

Review additional registry numbers or institutional identifiers associated with this trial.

CLDE225A2404

Identifier Type: -

Identifier Source: org_study_id

More Related Trials

Additional clinical trials that may be relevant based on similarity analysis.

A Study of LM-24C5 For Advanced Solid Tumors
NCT06187402 RECRUITING PHASE1/PHASE2