Evaluation of the Effect of Custom Compression Garments on Standing Static Balance in Ehlers Danlos Syndrome

NCT ID: NCT03986229

Last Updated: 2022-12-15

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

16 participants

Study Classification

INTERVENTIONAL

Study Start Date

2019-04-10

Study Completion Date

2022-03-15

Brief Summary

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Studies have shown the existence of a proprioceptive deficit in patients with Ehlers Danlos Syndrome (EDS) (genetic pathology of connective tissue with hypermobility, multifactor joint instability). A study dating from 2010 showed a qualitative improvement in disability when wearing compression garments (CG) in this pathology, particularly in the fields of proprioception and balance.

The purpose of this study is to quantify the effect of CG on standing static balance in patients with EDS.

Detailed Description

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To evaluate the effect of CG on standing static balance in patients with EDS, this study is a pilot study, carried out according to a cross-over scheme of type AB/BA.

Each patient will benefit from 2 posturological evaluations, namely without CG (treatment A) and with CG (treatment B). Patients will be randomly assigned to 2 groups: the AB or BA sequence will be randomized for each patient.

For each evaluation, a measurement with eyes open and eyes closed will be performed.

A clinical balance assessment by the Berg test will be performed for each of the conditions.

Conditions

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Ehlers-Danlos Syndrome

Keywords

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ehlers-danlos syndrome static balance custom compression garments

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

CROSSOVER

15 patients exposed to the AB sequence and 15 patients exposed to the BA sequence
Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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With compression garments

Evaluation of the variation in the travel speed of the "center of pressure" with compression garments and the standing static balance.

Group Type ACTIVE_COMPARATOR

Evaluate the variation in the travel speed of the "center of pressure" with and without compression garments.

Intervention Type OTHER

Each evaluation will be done according to the following protocol:

* Evaluation of the pain
* Berg test
* One test per condition starting with open eyes
* Standardized instructions:
* Break about 15 minutes (wash-out) between each test.
* Both conditions will be tested on the same day.
* Evaluation in an environment free from visual and audible interference.

Without compression garments

Evaluation of the variation in the travel speed of the "center of pressure" with compression garments and the standing static balance.

Group Type ACTIVE_COMPARATOR

Evaluate the variation in the travel speed of the "center of pressure" with and without compression garments.

Intervention Type OTHER

Each evaluation will be done according to the following protocol:

* Evaluation of the pain
* Berg test
* One test per condition starting with open eyes
* Standardized instructions:
* Break about 15 minutes (wash-out) between each test.
* Both conditions will be tested on the same day.
* Evaluation in an environment free from visual and audible interference.

Interventions

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Evaluate the variation in the travel speed of the "center of pressure" with and without compression garments.

Each evaluation will be done according to the following protocol:

* Evaluation of the pain
* Berg test
* One test per condition starting with open eyes
* Standardized instructions:
* Break about 15 minutes (wash-out) between each test.
* Both conditions will be tested on the same day.
* Evaluation in an environment free from visual and audible interference.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* EDS patients over 18 years of age walking around without technical assistance.
* Patients will need to be diagnosed both during the interview (presence of a family history, hypermobility and joint instability that has been evolving for years) and with a guide for analysis from EDS to AP-HP.
* Beighton's score must be 5/9 or higher.
* Free from any other pathology likely to have an impact on the balance.
* Patient with a CG as part of his or her management of the EDS
* Sufficient understanding to understand the objectives of the study and give consent.
* Patient affiliated or benefiting from a social security scheme
* Allergies to one of the components (Polyamide and Elastane) of the CG
* Recent compression garments less than 6 months old.

Exclusion Criteria

* Patient under guardianship, curators, justice protection.
* Comorbidity likely to influence balance.
* Significant pain (assessed by the patient) induced by the use of CG.
* Any acute event requires the postponement of the assessment to ensure that the patient's progress is in the usual conditions.
* Any acute pathology having an impact on the musculoskeletal system and/or general condition.
* Pregnancy/breastfeeding
* Compression garments over 6 months old.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University Hospital, Toulouse

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Thomas Van Den Bossche

Role: PRINCIPAL_INVESTIGATOR

University Hospital, Toulouse

Locations

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Service de Medecine physique et réadaptation

Toulouse, Salies Du Salat, France

Site Status

Countries

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France

Other Identifiers

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RC31/18/0360

Identifier Type: -

Identifier Source: org_study_id