Twitter Based Social Support for Hispanic and Black Dementia Caregivers

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

966 participants

Study Classification

INTERVENTIONAL

Study Start Date

2022-01-12

Study Completion Date

2023-11-20

Brief Summary

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The prevalence of dementia is higher in Hispanics and African Americans than non-Hispanic Whites. Moreover, dementia caregivers often experience loneliness as well decreased health status. The expansion of social media use among Hispanics and African Americans, particularly Twitter - a short message service - offers great promise for improving social support. This study aims to evaluate changes of discussion topics, sentiment and networking styles (i.e., number of followers) among anonymous followers of our two Twitter networks; the African American/Black dementia caregiver group and the Hispanic dementia caregiver group.

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Detailed Description

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The study will utilize Twitter networks to post a daily message for dementia caregivers for a year, and set up a monthly group chat.

Conditions

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Loneliness Emotional Stress

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Hispanic dementia caregivers

De-identified followers of our Hispanic dementia caregiver Twitter network will receive messages from the network (Twitter for Hispanic caregivers' intervention).

Group Type EXPERIMENTAL

Twitter for Hispanic caregivers

Intervention Type BEHAVIORAL

This group will be asked to follow and use (i.e., retweet, reply, like) our Hispanic Twitter network for social support

African American dementia caregivers

De-identified followers of our African American dementia caregiver Twitter network will receive messages from the network (Twitter for African American caregivers' intervention).

Group Type EXPERIMENTAL

Twitter for African American caregivers

Intervention Type BEHAVIORAL

This group will be asked to follow and use (i.e., retweet, reply, like) our African American Twitter network for social support.

Interventions

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Twitter for Hispanic caregivers

This group will be asked to follow and use (i.e., retweet, reply, like) our Hispanic Twitter network for social support

Intervention Type BEHAVIORAL

Twitter for African American caregivers

This group will be asked to follow and use (i.e., retweet, reply, like) our African American Twitter network for social support.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* 18 years of age or older
* Black or Hispanic, living in the U.S. including the U.S. territories
* a dementia caregiver with any duration, able to speak English or Spanish/bilingual
* must agree to terms of conditions of use and privacy policy and rules of one of the two dementia caregiver network (Hispanic @dcnh, Black @dcnaab), the Twitter user agreement of the terms of service, Twitter privacy policy and Twitter rules including intellectual property, violence, misconduct, abuse behavior, private information and spam and security
* use a smartphone or a feature phone (i.e., a cell phone with text messaging)