Patisiran in Patients With Hereditary Transthyretin-mediated Amyloidosis (hATTR Amyloidosis) Disease Progression Post-Liver Transplant

NCT ID: NCT03862807

Last Updated: 2024-04-22

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

24 participants

Study Classification

INTERVENTIONAL

Study Start Date

2019-03-27

Study Completion Date

2020-10-20

Brief Summary

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The purpose of this study is to evaluate the efficacy, safety and pharmacokinetics of patisiran in participants with hereditary transthyretin-mediated amyloidosis (hATTR amyloidosis) with disease progression after liver transplant.

Detailed Description

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Conditions

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Amyloidosis, Familial Transthyretin Amyloidosis

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Patisiran

Participants received patisiran 0.3 milligrams/kilogram (mg/kg) via intravenous (IV) infusion once every 3 weeks (q3w) for 12 months. Dosing was based on actual body weight. For participants weighing 100 kg or more, patisiran was administered at a total dose of 30 mg IV q3w.

Group Type EXPERIMENTAL

Patisiran

Intervention Type DRUG

Patisiran was administered via IV infusion.

Interventions

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Patisiran

Patisiran was administered via IV infusion.

Intervention Type DRUG

Other Intervention Names

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ALN-TTR02 ONPATTRO

Eligibility Criteria

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Inclusion Criteria

* Received liver transplant for treatment of hATTR amyloidosis ≥12 months before study start
* Has increase in polyneuropathy disability (PND) score after liver transplant
* Has received stable immunosuppressive regimen with ≤10 mg/day of prednisone for at least 3 months before study start
* Has Karnofsky Performance Status (KPS) of ≥70%
* Has vitamin A level greater than or equal to lower limit of normal

Exclusion Criteria

* Has previously received inotersen or patisiran
* Has clinically significant liver function test abnormalities
* Has known portal hypertension with ascites
* Has estimated glomerular filtration rate (eGFR) ≤30 mL/min/1.73 m\^2
* Has known leptomeningeal amyloidosis
* Has infection with hepatitis B, hepatitis C or human immunodeficiency virus (HIV)
* Has New York Heart Association heart failure classification of \>2
* Is wheelchair bound or bedridden
* Has received organ transplants other than liver transplant
* Will be using another tetramer stabilizer during the study
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Alnylam Pharmaceuticals

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Medical Director

Role: STUDY_DIRECTOR

Alnylam Pharmaceuticals

Locations

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Clinical Trial Site

Créteil, , France

Site Status

Clinical Trial Site

Le Kremlin-Bicêtre, , France

Site Status

Clinical Trial Site

Münster, , Germany

Site Status

Clinical Trial Site

Messina, , Italy

Site Status

Clinical Trial Site

Porto, , Portugal

Site Status

Clinical Trial Site

Barcelona, , Spain

Site Status

Clinical Trial Site

Huelva, , Spain

Site Status

Clinical Trial Site

Umeå, , Sweden

Site Status

Clinical Trial Site

London, , United Kingdom

Site Status

Countries

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France Germany Italy Portugal Spain Sweden United Kingdom

References

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Badri P, Habtemariam B, Melch M, Clausen VA, Arum S, Li X, Jay PY, Vest J, Robbie GJ. Pharmacokinetics and Pharmacodynamics of Patisiran in Patients with hATTR Amyloidosis and with Polyneuropathy After Liver Transplantation. Clin Pharmacokinet. 2023 Oct;62(10):1509-1522. doi: 10.1007/s40262-023-01292-w. Epub 2023 Aug 28.

Reference Type DERIVED
PMID: 37639169 (View on PubMed)

Schmidt HH, Wixner J, Plante-Bordeneuve V, Munoz-Beamud F, Llado L, Gillmore JD, Mazzeo A, Li X, Arum S, Jay PY, Adams D; Patisiran Post-LT Study Group. Patisiran treatment in patients with hereditary transthyretin-mediated amyloidosis with polyneuropathy after liver transplantation. Am J Transplant. 2022 Jun;22(6):1646-1657. doi: 10.1111/ajt.17009. Epub 2022 Mar 26.

Reference Type DERIVED
PMID: 35213769 (View on PubMed)

Seibert K, Wlodarski R, Sarswat N, Appelbaum D, Issa NP, Soliven B, Rezania K. Progressive Multiple Mononeuropathy in a Patient With Familial Transthyretin Amyloidosis After Liver Transplantation. J Clin Neuromuscul Dis. 2022 Mar 1;23(3):143-147. doi: 10.1097/CND.0000000000000368.

Reference Type DERIVED
PMID: 35188911 (View on PubMed)

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Other Identifiers

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2018-003519-24

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

ALN-TTR02-008

Identifier Type: -

Identifier Source: org_study_id

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