A Study to Evaluate Ibrutinib Retention in Chronic Lymphocytic Leukemia Participants Treated in a Real World Setting

NCT ID: NCT03720561

Last Updated: 2022-01-03

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

312 participants

Study Classification

OBSERVATIONAL

Study Start Date

2018-10-30

Study Completion Date

2021-11-12

Brief Summary

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The purpose of this study is to describe the 2-year retention rate of ibrutinib treatment for chronic lymphocytic leukemia (CLL) in Italian routine clinical practice.

Detailed Description

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Conditions

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Leukemia, Lymphocytic, Chronic, B-Cell

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Group: Ibrutinib Treatment

Participants will not receive any intervention as a part of this study. This study will collect retrospective and prospective real-world data to describe retention rates for participants of chronic lymphocytic leukemia (CLL) receiving ibrutinib in routine Italian clinical practice over a 2-year follow-up period. Participants with CLL who have started ibrutinib treatment within 3 months before enrollment visit or in case ibrutinib was prescribed before or on the enrollment day as per routine clinical practice within the 30 days after enrollment visit will be included in the study. The primary data source for this observational study will be the medical records of each enrolled participant, as well as questionnaires concerning quality of life and treatment adherence. Data will be collected every 3 months for the first year and every 6 months for the second year during prospective period.

Ibrutinib

Intervention Type DRUG

Participants in this observational study with confirmed diagnosis of CLL receiving ibrutinib in routine clinical practice settings will be observed approximately for 3 years.

Interventions

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Ibrutinib

Participants in this observational study with confirmed diagnosis of CLL receiving ibrutinib in routine clinical practice settings will be observed approximately for 3 years.

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Must have a confirmed diagnosis of Chronic Lymphocytic Leukemia (CLL) requiring treatment (iwCLL \[International Workshop on Chronic Lymphocytic Leukemia\] criteria)
* If alive, must sign an Informed Consent Form (ICF) allowing data collection and source data verification in accordance with Italian requirements
* Participants with one of the following characteristics: a) Participants starting ibrutinib treatment according to the summary of product characteristics (SmPC) at enrolment or within 30 days starting from informed consent signature, as per routine clinical practice and independently of this non-interventional study; OR b) Participants who have started ibrutinib within 3 months before enrollment, according to the SmPC, as per routine clinical practice and independently of this non- interventional study (including also participants who, by the time of enrollment, are not receiving ibrutinib)
* If alive, must be able to read and write in Italian and to understand and sign the ICF

Exclusion Criteria

* Currently enrolled in any interventional clinical trial
* Currently enrolled in observational studies sponsored or managed by Janssen company
* Treated with any investigational compound or any invasive investigational medical device within 30 days before start of ibrutinib treatment
* Having contraindications to ibrutinib use as described in the SmPC
* Pregnant or breast-feeding
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Janssen-Cilag S.p.A.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Janssen-Cilag S.p.A., Italy Clinical Trial

Role: STUDY_DIRECTOR

Janssen-Cilag S.p.A.

Locations

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Ospedali Riuniti Di Ancona

Ancona, , Italy

Site Status

U.O.C. Ematologia e Terapia Cellulare Ospedale C e G Mazzoni

Ascoli Piceno, , Italy

Site Status

U.O. Ematologia con Trapianto- AOU Policlinico di Bari

Bari, , Italy

Site Status

U.O. Ematologia Istituto Tumori Giovanni Paolo II

Bari, , Italy

Site Status

S.C. Ematologia e CTMO P.O. Businco A.O. Brotzu

Cagliari, , Italy

Site Status

AORN Sant'anna e San Sebastiano

Caserta, , Italy

Site Status

Div.Clinicizzata EmatologiaconTrapiantodi MidolloOsseo P.O.Rodoligo AOUPoliclinico-Vittorio Emanuele

Catania, , Italy

Site Status

S.O.C. Ematologia P.O. Ciaccio A.O. Pugliese-Ciaccio

Catanzaro, , Italy

Site Status

Azienda Ospedaliero Universitaria di Ferrara

Cona, , Italy

Site Status

S.C. Ematologia Azienda Ospedaliera S. Croce e Carle

Cuneo, , Italy

Site Status

Unità Funzionale di Ematologia Azienda ospedaliero-universitaria Careggi

Florence, , Italy

Site Status

S.C. Ematologia A.O.U. Ospedali Riuniti

Foggia, , Italy

Site Status

Ematologia Ospedale San Martino

Genova, , Italy

Site Status

U.O.C. Ematologia Ospedale V. Fazzi

Lecce, , Italy

Site Status

Istituto Scientifico Romagnolo per lo Studio e la Cura dei Tumori

Meldola, , Italy

Site Status

U.O.C. Ematologia Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico

Milan, , Italy

Site Status

Programma di ricerca strategica sulla LLC Ospedale San Raffaele

Milan, , Italy

Site Status

Divisione ematologia Grande Ospedale Metropolitano Niguarda

Milan, , Italy

Site Status

Division of Hematology, Cardarelli Hospital

Napoli, , Italy

Site Status

U.O.C. Ematologia e Trapianti di midollo A.O.U. Federico II

Napoli, , Italy

Site Status

Ospedale San Francesco

Nuoro, , Italy

Site Status

U.O.C. Ematologia e Immunologia Clinica Azienda Ospedaliera Padova

Padua, , Italy

Site Status

U.O. Ematologia ed Oncologia Ospedale A. Tortora

Pagani, , Italy

Site Status

Ospedale 'Villa Sofia-Cervello

Palermo, , Italy

Site Status

Fondazione IRCCS Policlinico San Matteo

Pavia, , Italy

Site Status

S.C. Ematologia A.O.U. Santa Maria della Misericordia

Perugia, , Italy

Site Status

UOSD Centro diagnosi e terapia dei linfomi Ospedale Santo Spirito

Pescara, , Italy

Site Status

U.O.C. Ematologia Ospedale S. Maria delle Croci

Ravenna, , Italy

Site Status

Arcispedale Santa Maria Nuova - IRCCS

Reggio Emilia, , Italy

Site Status

DH Oncoematologia Policlinico Tor Vergata

Roma, , Italy

Site Status

Università di Roma 'La Sapienza' - Ospedale Umberto 1°

Roma, , Italy

Site Status

Ematologia Fondazione Univ. Policlinico Gemelli Università Cattolica del Sacro Cuore

Roma, , Italy

Site Status

Azienda Ospedaliera Sant Andrea

Roma, , Italy

Site Status

UO Oncologia ed Ematologia Istituto Clinico Humanitas

Rozzano, , Italy

Site Status

U.O.C. Ematologia e Trapianti Cellule Staminali Emopoietiche AOU S.Giovanni di Dio e Ruggi D'Aragona

Salerno, , Italy

Site Status

Ospedale 'Casa Sollievo della Sofferenza' - U.O. Ematologia-

San Giovanni Rotondo, , Italy

Site Status

Azienda Ospedaliera 'Santa Maria'

Terni, , Italy

Site Status

S.C. Ematologia U A.O.U. Citta della Salute e della Scienza P.O.Molinette

Torino, , Italy

Site Status

U.O. Ematologia Ospedale San Bortolo

Vicenza, , Italy

Site Status

Countries

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Italy

Other Identifiers

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54179060CLL4013

Identifier Type: OTHER

Identifier Source: secondary_id

CR108517

Identifier Type: -

Identifier Source: org_study_id

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