Mobile Electronic Devices for Visual Impairment

NCT ID: NCT03560765

Last Updated: 2021-11-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

TERMINATED

Clinical Phase

NA

Total Enrollment

25 participants

Study Classification

INTERVENTIONAL

Study Start Date

2018-08-01

Study Completion Date

2020-08-01

Brief Summary

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Mobile electronic devices (MED) including, smartphones and tablets, offer a new type of assistive technology for visually-impaired people (VIP). They offer the possibility to replace optical magnifiers for those with mild impairment, and braille or auditory for those with severe visual loss, using standard consumer devices, which are relatively cheap and convenient. However not all VIP and rehabilitation professionals are familiar with the devices and their potential.

In this study VIP who are interested in purchasing a MED will be recruited and trained. The effectiveness of this training will be determined by assessing the usage of devices by the participants from completion of training to 6 months, using questionnaires, and by remote monitoring of their MED. Validated questionnaires will be used to measure changes in quality of life, depression, adaptation to vision loss, and ability to carry out everyday tasks, before and after training, and 6 months later. Ongoing support has been found to be important when introducing users to new technology, in the form of volunteers to provide assistance and advice. The standard "training course only" model will therefore be compared to a scheme in which each participant is paired with a "buddy" (a university student) who can provide continuing support by visiting the VIP regularly at home.

Detailed Description

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By converting text into speech and being cheaply and readily available, smartphones and tablets offer a completely new type of assistive technology for visually-impaired people (VIP). Research on these mobile electronic devices (MED) is relevant to rehabilitation and enablement of individuals with all types of visual impairment, with all degrees of severity. The majority of UK adults have a smartphone, but take-up is least amongst the over 75s who form the majority of the VI population. This is the population in whom MED have the greatest potential to reduce social isolation and increase independence, so it is important that the potential benefits are not restricted to those already comfortable with technology. Despite the great interest regarding what could be achieved with MED, evidence is currently lacking that they do provide significant improvements in quality of life, and that the specific training which is currently offered by many different organisations can help to facilitate effective use of MED.

The study aim is to evaluate the effectiveness of two different models of training in giving the user on-going access and improved quality of life. The two models to be compared will be a "training course only", versus a scheme in which each participant is paired with a "buddy" (a local university student) who can provide continuing assistance by visiting the participant at home.

VIP who are interested in purchasing a MED will be recruited and trained. The usage of devices will be assessed by questionnaire from completion of training to 6 months and through a tracking app. Validated questionnaires will be used to measure changes in quality of life, depression, adaptation to vision loss, and ability to carry out everyday tasks, before and after training, and 6 months later.

Conditions

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Vision, Low

Keywords

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Rehabilitation Assistive technology

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

SINGLE

Outcome Assessors

Study Groups

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Using MED assigned buddy

Participant has been randomly assigned a student volunteer buddy, and has chosen to purchase an MED following training

Group Type EXPERIMENTAL

MED

Intervention Type DEVICE

Training in the use of mainstream electronic devices with accessibility options

Buddy

Intervention Type OTHER

A buddy who will meet with the participant regularly for social interaction, and assistance with use of any MED purchased

Using MED training only

Participant has been randomly assigned to not have a student volunteer buddy, and has chosen to purchase an MED following training

Group Type ACTIVE_COMPARATOR

MED

Intervention Type DEVICE

Training in the use of mainstream electronic devices with accessibility options

No MED, assigned buddy

Participant has been randomly assigned a student volunteer buddy, and has chosen not to purchase an MED following training

Group Type ACTIVE_COMPARATOR

Buddy

Intervention Type OTHER

A buddy who will meet with the participant regularly for social interaction, and assistance with use of any MED purchased

No MED, no buddy

Participant has been randomly assigned to not have a student volunteer buddy, and has chosen not to purchase an MED following training

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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MED

Training in the use of mainstream electronic devices with accessibility options

Intervention Type DEVICE

Buddy

A buddy who will meet with the participant regularly for social interaction, and assistance with use of any MED purchased

Intervention Type OTHER

Other Intervention Names

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smartphone tablet mobile electronic device Student volunteer

Eligibility Criteria

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Inclusion Criteria

* EITHER expresses an interest/referred specifically for MED training
* OR After evaluation it appears that MED would meet some/all requirements
* Willing to delay involvement in other forms of training or befriending for 6 months
* Has some form vision - does not rely exclusively on other senses
* Willing to travel for training/evaluation/meeting with buddy
* Agree not to seek additional formal/organised MED training elsewhere during the study
* Willing to fund any required MED personally
* Habitual language English
* 6 item Cognitive Impairment Test score 7 or lower
* Best corrected visual acuity logMAR 0.5 - 1.6 and/or log contrast sensitivity \<1.2

Exclusion Criteria

* Will be undergoing other one-to-one/group training (for anything) at the same time
* Will be undergoing other MED/general computer training at the same time
* Will be actively enrolled in a new befriending/social group
* Already knows basics of MED and wants training on advanced skills
* Obvious cognitive impairment or uncorrected hearing loss such that communication is through a third party
* If updated Rx would improve VA by 2 lines or more, participant should be recommended to seek eye exam and then be re-evaluated 1 month later
* Visual condition likely to be treated/improved within study period such that MED no longer required
Minimum Eligible Age

19 Years

Maximum Eligible Age

90 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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City, University of London

OTHER

Sponsor Role collaborator

Schepens Eye Research Institute

OTHER

Sponsor Role collaborator

University of Manchester

OTHER

Sponsor Role lead

Responsible Party

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Chris Dickinson

Professor of Clinical Optometry

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Chris Dickinson

Role: PRINCIPAL_INVESTIGATOR

University of Manchester

Locations

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City University of London

London, , United Kingdom

Site Status

University of Manchester

Manchester, , United Kingdom

Site Status

Countries

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United Kingdom

Other Identifiers

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5049/5050

Identifier Type: -

Identifier Source: org_study_id