Incorporating Multidimensional Psychosocial Interventions Improves the Well-being of Individuals With Epilepsy

NCT ID: NCT03484039

Last Updated: 2024-12-20

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

332 participants

Study Classification

INTERVENTIONAL

Study Start Date

2018-06-06

Study Completion Date

2020-02-18

Brief Summary

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The purpose of this study is to incorporate multidimensional self-management programs into the routine care of epilepsy patients. Consenting patients will enroll in one of four interventions that help improve medication adherence, increase seizure awareness and documentation, improve memory and deal with stress and depression.

Detailed Description

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Though tremendous advances have been made in the diagnosis and treatment of individuals with epilepsy, much remains to be done when it comes to improving their psychosocial well-being. Many individuals with epilepsy have difficulty adhering to treatment, documenting their seizure types, coping with memory difficulties, dealing with stress, and suffer from depression. These factors limit the quality of life of epilepsy patients and prevent them from realizing their full potential.

Patients will enroll in one of four interventions that help improve medication adherence, increase seizure awareness and documentation, improve memory and deal with stress and depression. Patient assessments will be conducted before and after intervention to gauge the efficacy of the programs.

The specific aims of this study are to assess the feasibility and patient acceptability of incorporating multidimensional self-management and psychosocial interventions into routine epileptic care, as well as, determine whether these incorporations improve self-management, quality-of-life, and other measures of well-being.

Conditions

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Epilepsy Seizure Disorder

Keywords

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memory problems stress depression adherence seizure documentation

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Patients will be enrolled in one module of own choice. Except for Module 3 Submodule 2, every module will consist of a particular intervention, as well as, its accompanying set of assessments.
Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Epilepsy Patients

The group will receive the module (a 1-2 hour course on either medication adherence, seizure documentation, memory improvement or stress management) right after a baseline assessment. A post assessment and delayed post assessment will be conducted after the module is administered.

Group Type EXPERIMENTAL

Medication Adherence

Intervention Type BEHAVIORAL

Some subjects will be enrolled in a medication adherence course.

Seizure Documentation

Intervention Type BEHAVIORAL

Some subjects will be enrolled in a seizure documentation course.

Memory Improvement

Intervention Type BEHAVIORAL

Some subjects will be enrolled in a memory improvement course.

Stress Management

Intervention Type BEHAVIORAL

Some subjects will be enrolled in a stress management course.

Interventions

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Medication Adherence

Some subjects will be enrolled in a medication adherence course.

Intervention Type BEHAVIORAL

Seizure Documentation

Some subjects will be enrolled in a seizure documentation course.

Intervention Type BEHAVIORAL

Memory Improvement

Some subjects will be enrolled in a memory improvement course.

Intervention Type BEHAVIORAL

Stress Management

Some subjects will be enrolled in a stress management course.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Clinical diagnosis of epilepsy using established criteria
* Patient self-identified as own primary caregiver
* English fluency
* Ability to provide informed consent
* Ability to complete the study assessments

Exclusion Criteria

* History of non-epileptic seizures
* History of cognitive impairments that prevents them from providing informed consent and completing study assessments
Minimum Eligible Age

18 Years

Maximum Eligible Age

88 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Dupont Fund, Jesse Ball

UNKNOWN

Sponsor Role collaborator

Florida Blue Foundation

UNKNOWN

Sponsor Role collaborator

Riverside Hospital Foundation

UNKNOWN

Sponsor Role collaborator

University of Florida

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Ramon Edmundo D Bautista, MD

Role: PRINCIPAL_INVESTIGATOR

University of Florida

Locations

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UF Health Jacksonville

Jacksonville, Florida, United States

Site Status

Countries

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United States

Other Identifiers

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IRB201800512

Identifier Type: -

Identifier Source: org_study_id