Impact Study on Cerecare Compression Garments in the Treatment of Ehlers-Danlos Syndromes

NCT ID: NCT03451188

Last Updated: 2021-12-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

76 participants

Study Classification

OBSERVATIONAL

Study Start Date

2018-05-22

Study Completion Date

2021-11-30

Brief Summary

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EDS (Ehlers-Danlos syndromes) form a heterogeneous group of hereditary connective tissue pathologies, which present a characteristic triad: cutaneous hyperelasticity, articular hyperlaxity and connective tissue fragility.

The innumerable sprains and dislocations of all the joints require recurrent immobilizations and are responsible for a musculoskeletal handicap, chronic pains and a great fatigability, resounding on the quality of life of the patient.

The use of custom-made compression garments seems to provide relief from pain, especially nociceptive pain and in stabilizing joints by proprioceptive effect.

The SEDCARE study is an observational monocentric, non-comparative study. 76 patients will be followed in this study for 2 years during which they will wear compression custom-made garments (Cerecare®).The main objective of this study is to demonstrate the effectiveness of pressure garments Cerecare in the EDS, especially in terms of joint pain.

Detailed Description

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Conditions

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Eds, Unspecified Type

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Interventions

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Cerecare compression garments

all Cerecare compression garments

Intervention Type DEVICE

Eligibility Criteria

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Inclusion Criteria

* Ehlers-Danlos syndrome diagnosis confirmed by a medical specialist, according to the new diagnostic criteria of 2017,
* Articular hyperlaxity,
* Have not used compression garments for at least 1 year,
* Without expected body weight change within 6 months,
* Having agreed to participate in the study

Exclusion Criteria

* Presenting a known allergy to the components of compression garments,
* Presenting acute and unusual pain, not medically controlled,
* Pregnant woman,
* Participating simultaneously with another study or having recently participated in another study for which the exclusion period would not be completed.
Minimum Eligible Age

16 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Cerecare

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Dr Pontier

Clermont-Ferrand, , France

Site Status

Dr Benistan

Garches, , France

Site Status

Dr Michot

Paris, , France

Site Status

Dr Enjalbert

Perpignan, , France

Site Status

SLB Pharma

Rennes, , France

Site Status

Countries

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France

Other Identifiers

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SEDCARE

Identifier Type: -

Identifier Source: org_study_id