Outcomes in CF Patients Accessing Their Registry Health Records
NCT ID: NCT03434886
Last Updated: 2018-02-15
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
NA
282 participants
INTERVENTIONAL
2016-03-31
2017-09-30
Brief Summary
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Detailed Description
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Conditions
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Study Design
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RANDOMIZED
PARALLEL
SUPPORTIVE_CARE
NONE
Study Groups
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CF View
CFView
Registry patient portal
CF Educational videos
CF educational videos
CF educational videos
CF View and videos
CFView
Registry patient portal
CF educational videos
CF educational videos
Usual standard of care
No interventions assigned to this group
Interventions
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CFView
Registry patient portal
CF educational videos
CF educational videos
Eligibility Criteria
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Inclusion Criteria
* registered with their national CF patient registry
* FEV1pp ≥40
* aged 13-30 years
Exclusion Criteria
* FEV1pp \<40
13 Years
30 Years
ALL
No
Sponsors
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Cystic Fibrosis Registry of Ireland
OTHER
Responsible Party
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Abaigeal Jackson
Research Lead
Other Identifiers
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CFView
Identifier Type: -
Identifier Source: org_study_id
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