Long-Term Quality of Life in Patients With Metastatic Melanoma Treated With Checkpoint Inhibitors

NCT ID: NCT03326973

Last Updated: 2020-12-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

107 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-10-25

Study Completion Date

2020-12-14

Brief Summary

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To identify and describe long-term quality of life (QOL) issues in patients with metastatic melanoma treated with checkpoint inhibitors who achieved cancer control for a minimum of 12 months and remain on maintenance checkpoint inhibitor therapy.

Detailed Description

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Conditions

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Metastatic Melanoma

Keywords

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Quality of Life (QoL) 17-518

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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online or telephone survey

This is a cross-sectional survey. Our main method of communication with patients will be email. Participants will complete a single online or telephone survey at a minimum of 12 months post initial treatment of checkpoint inhibitors and remain on maintenance therapy.

EuroQoL EQ-5D-3L

Intervention Type BEHAVIORAL

Overall QOL

EORTC QLQ-C30

Intervention Type BEHAVIORAL

General symptoms; physical, role, emotional, cognitive, and social functioning scales; fatigue, nausea/vomiting , and pain scales

PRO-CTCAE

Intervention Type OTHER

Additional potential immune-specific symptoms

Fatigue severity score questionnaire

Intervention Type BEHAVIORAL

Fatigue severity

The COST

Intervention Type BEHAVIORAL

Financial toxicity; satisfaction with ability to work

Physician information

Intervention Type BEHAVIORAL

Details on outside health providers

Interventions

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EuroQoL EQ-5D-3L

Overall QOL

Intervention Type BEHAVIORAL

EORTC QLQ-C30

General symptoms; physical, role, emotional, cognitive, and social functioning scales; fatigue, nausea/vomiting , and pain scales

Intervention Type BEHAVIORAL

PRO-CTCAE

Additional potential immune-specific symptoms

Intervention Type OTHER

Fatigue severity score questionnaire

Fatigue severity

Intervention Type BEHAVIORAL

The COST

Financial toxicity; satisfaction with ability to work

Intervention Type BEHAVIORAL

Physician information

Details on outside health providers

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Be able to speak and read English
* Be able to provide informed consent
* Have been diagnosed with metastatic melanoma at age 18 years or older
* Have been treated with either single agent or combination checkpoint inhibitor
* Be at least 12 months since first dose of above named agents
* Received no other systemic therapy after initiation of immunotherapy (interval radiation or surgery will be permitted based on review with primary treating medical oncologist)

Exclusion Criteria

* Patients with cognitive, visual, or motor impairment such that they cannot complete the survey as assessed by the research or clinical team
* Patients who developed a subsequent cancer after starting on checkpoint inhibitor(s), exclusive of non-melanoma superficial skin cancers
* Patients with clinical documentation of progressive disease on the most recent assessment in the electronic medical record
* Patients with symptomatic progression but continue on immunotherapy

* Note: For any patients where the disease status is not clear, we will confirm that the disease is either stable or responsive with their primary treating medical oncologist
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Memorial Sloan Kettering Cancer Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Deborah Korenstein, MD

Role: PRINCIPAL_INVESTIGATOR

Memorial Sloan Kettering Cancer Center

Locations

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Memoral Sloan Kettering Basking Ridge

Basking Ridge, New Jersey, United States

Site Status

Memoral Sloan Kettering Monmouth

Middletown, New Jersey, United States

Site Status

Memorial Sloan Kettering Commack

Commack, New York, United States

Site Status

Memorial Sloan Kettering Westchester

Harrison, New York, United States

Site Status

Memorial Sloan Kettering Cancer Center

New York, New York, United States

Site Status

Memorial Sloan Kettering Rockville Centre

Rockville Centre, New York, United States

Site Status

Countries

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United States

Related Links

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http://www.mskcc.org/mskcc/html/44.cfm

Memorial Sloan Kettering Cancer Center

Other Identifiers

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17-518

Identifier Type: -

Identifier Source: org_study_id