Trial Outcomes & Findings for Open-label Study of Tofacitinib for Moderate to Severe Skin Involvement in Young Adults With Lupus (NCT NCT03288324)

NCT ID: NCT03288324

Last Updated: 2024-07-30

Results Overview

Apparent total clearance of the drug from plasma after oral administration

Recruitment status

COMPLETED

Study phase

PHASE1/PHASE2

Target enrollment

13 participants

Primary outcome timeframe

Day 5

Results posted on

2024-07-30

Participant Flow

Participant milestones

Participant milestones
Measure
Cohort 1 & Cohort 2
Tofacitinib: Tofacitinib 5 mg twice daily
Overall Study
STARTED
12
Overall Study
COMPLETED
11
Overall Study
NOT COMPLETED
1

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Open-label Study of Tofacitinib for Moderate to Severe Skin Involvement in Young Adults With Lupus

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Cohort 1 & Cohort 2
n=11 Participants
Tofacitinib: Tofacitinib 5 mg twice daily Comparison was not planned for Cohort 1 vs Cohort 2. Cohort 1 received pk analysis. Since only 1 subject was enrolled in cohort 2 the study team is completing analysis with the cohorts combined except for those indicated cohort 1 only in the protocol
Age, Categorical
<=18 years
0 Participants
n=5 Participants
Age, Categorical
Between 18 and 65 years
11 Participants
n=5 Participants
Age, Categorical
>=65 years
0 Participants
n=5 Participants
Age, Continuous
21.04 years
STANDARD_DEVIATION 5.89 • n=5 Participants
Sex: Female, Male
Female
10 Participants
n=5 Participants
Sex: Female, Male
Male
1 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
0 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
11 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
1 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
3 Participants
n=5 Participants
Race (NIH/OMB)
White
7 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Region of Enrollment
United States
11 participants
n=5 Participants

PRIMARY outcome

Timeframe: Day 5

Population: Tofacitinib PK was collected from in total of 8 patients, PK parameters were generated for N=7 patients. The PK data for one patient was not used when generating the PK parameters and descriptive summaries due to a dosing event error.

Apparent total clearance of the drug from plasma after oral administration

Outcome measures

Outcome measures
Measure
Cohort 1
n=7 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
Oral Clearance (CL/F) (Cohort 1 Only)
28.4 (L/hr)
Geometric Coefficient of Variation 23.5

SECONDARY outcome

Timeframe: weeks 4, 8 and 24 compared to baseline.

Proportion of subjects who achieve a skin response per the validated CLASI The Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) activity score consists of two scores. The first summarizes the activity of the disease while the second is a measure of the damage done by the disease. The Activity Score range is 0-70 with the maximum score (70) indicating the worst outcome. The Damage Score range is 0-80 with the maximum score (80) indicating the worst outcome.

Outcome measures

Outcome measures
Measure
Cohort 1
n=11 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) Activity Score
Baseline
16.55 score on a scale
Standard Deviation 8.03
Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) Activity Score
Week 4
10.91 score on a scale
Standard Deviation 8.4
Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) Activity Score
Week 8
8.64 score on a scale
Standard Deviation 7.8
Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) Activity Score
Week 24
8.82 score on a scale
Standard Deviation 7.9

SECONDARY outcome

Timeframe: Day 5

Area under the plasma concentration-time curve linear scale Median Concentration (ng/mL) per nominal time 0-8 hours.

Outcome measures

Outcome measures
Measure
Cohort 1
n=7 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
AUCt (Cohort 1 Only)
176 (ng.hr/mL)
Geometric Coefficient of Variation 23.5

SECONDARY outcome

Timeframe: Day 5

Population: Tofacitinib PK was collected from in total of 8 patients, PK parameters were generated for N=7 patients. The PK data for one patient was not used when generating the PK parameters and descriptive summaries due to a dosing event error.

Maximum (or peak) plasma concentration of Tofacitinib

Outcome measures

Outcome measures
Measure
Cohort 1
n=7 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
Cmax (Cohort 1 Only)
51.7 (ng/mL)
Geometric Coefficient of Variation 21.6

SECONDARY outcome

Timeframe: Day 5

Population: Tofacitinib PK was collected from in total of 8 patients, PK parameters were generated for N=7 patients. The PK data for one patient was not used when generating the PK parameters and descriptive summaries due to a dosing event error.

Time to reach maximum (peak) plasma concentration following administration of Tofacitinib

Outcome measures

Outcome measures
Measure
Cohort 1
n=7 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
Tmax (Cohort 1 Only)
1 hr
Interval 0.5 to 2.0

SECONDARY outcome

Timeframe: Day 5

Population: Tofacitinib PK was collected from in total of 8 patients, PK parameters were generated for N=7 patients. The PK data for one patient was not used when generating the PK parameters and descriptive summaries due to a dosing event error.

Apparent volume of distribution during terminal phase after non-intravenous administration

Outcome measures

Outcome measures
Measure
Cohort 1
n=7 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
Vz/F (Cohort 1 Only)
85.2 L
Geometric Coefficient of Variation 25.6

SECONDARY outcome

Timeframe: Day 5

Population: Tofacitinib PK was collected from in total of 8 patients, PK parameters were generated for N=7 patients. The PK data for one patient was not used when generating the PK parameters and descriptive summaries due to a dosing event error.

half-life of Tofacitinib

Outcome measures

Outcome measures
Measure
Cohort 1
n=7 Participants
Tofacitinib: Tofacitinib 5 mg twice daily
Half-life of Tofacitinib (Cohort 1 Only)
2.1 hr
Standard Deviation 0.321

SECONDARY outcome

Timeframe: 76 weeks

Rate and severity of adverse events and lab abnormalities

Outcome measures

Outcome data not reported

OTHER_PRE_SPECIFIED outcome

Timeframe: 76 weeks

Assess steroid sparing properties of Tofacitinib by comparing doses to baseline and rate of steroid discontinuation

Outcome measures

Outcome data not reported

OTHER_PRE_SPECIFIED outcome

Timeframe: 76 weeks

Measure Tofacitinib impact on disease activity

Outcome measures

Outcome data not reported

OTHER_PRE_SPECIFIED outcome

Timeframe: 76 weeks

Measure Tofacitinib impact on disease activity

Outcome measures

Outcome data not reported

OTHER_PRE_SPECIFIED outcome

Timeframe: Baseline, week 24 and week 76

Quality-of-life measure for patients with skin disease

Outcome measures

Outcome data not reported

OTHER_PRE_SPECIFIED outcome

Timeframe: Baseline, week 24 and week 76

Quality-of-life measure for patients

Outcome measures

Outcome data not reported

Adverse Events

Cohort 1 and 2

Serious events: 1 serious events
Other events: 9 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
Cohort 1 and 2
n=11 participants at risk
Tofacitinib: Tofacitinib 5 mg twice daily
Infections and infestations
Pelvic inflammatory disease
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Appendicitis
9.1%
1/11 • Number of events 1 • 76 weeks
Nervous system disorders
Migraine with aura
9.1%
1/11 • Number of events 1 • 76 weeks

Other adverse events

Other adverse events
Measure
Cohort 1 and 2
n=11 participants at risk
Tofacitinib: Tofacitinib 5 mg twice daily
Gastrointestinal disorders
Abdominal tenderness
9.1%
1/11 • Number of events 1 • 76 weeks
Skin and subcutaneous tissue disorders
Acne
9.1%
1/11 • Number of events 1 • 76 weeks
Musculoskeletal and connective tissue disorders
Arthralgia
9.1%
1/11 • Number of events 1 • 76 weeks
Musculoskeletal and connective tissue disorders
Back pain
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Bronchitis
9.1%
1/11 • Number of events 1 • 76 weeks
Injury, poisoning and procedural complications
Burns second degree
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Chlamydial infection
9.1%
1/11 • Number of events 1 • 76 weeks
Eye disorders
Conjunctival haemorrhage
9.1%
1/11 • Number of events 1 • 76 weeks
Psychiatric disorders
Depression
9.1%
1/11 • Number of events 1 • 76 weeks
Gastrointestinal disorders
Diarrhoea
18.2%
2/11 • Number of events 2 • 76 weeks
Renal and urinary disorders
Dysuria
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Ear infection
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Folliculitis
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Fungal infection
18.2%
2/11 • Number of events 2 • 76 weeks
Infections and infestations
Gastroenteritis
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Gastrointestinal viral infection
9.1%
1/11 • Number of events 1 • 76 weeks
Nervous system disorders
Headache
18.2%
2/11 • Number of events 3 • 76 weeks
Metabolism and nutrition disorders
Hypokalaemia
9.1%
1/11 • Number of events 1 • 76 weeks
Blood and lymphatic system disorders
Iron deficiency anaemia
9.1%
1/11 • Number of events 1 • 76 weeks
Injury, poisoning and procedural complications
Ligament sprain
9.1%
1/11 • Number of events 1 • 76 weeks
Musculoskeletal and connective tissue disorders
Medial tibial stress syndrome
9.1%
1/11 • Number of events 1 • 76 weeks
Reproductive system and breast disorders
Menorrhagia
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Nasopharyngitis
18.2%
2/11 • Number of events 4 • 76 weeks
Gastrointestinal disorders
Nausea
27.3%
3/11 • Number of events 3 • 76 weeks
Infections and infestations
Onychomycosis
18.2%
2/11 • Number of events 2 • 76 weeks
Infections and infestations
Otitis externa
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Pelvic inflammatory disease
9.1%
1/11 • Number of events 1 • 76 weeks
Skin and subcutaneous tissue disorders
Rash
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Sinusitis
9.1%
1/11 • Number of events 2 • 76 weeks
Neoplasms benign, malignant and unspecified (incl cysts and polyps)
Skin papilloma
18.2%
2/11 • Number of events 2 • 76 weeks
Infections and infestations
Staphylococcal infection
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Streptococcal infection
9.1%
1/11 • Number of events 1 • 76 weeks
Psychiatric disorders
Suicidal ideation
9.1%
1/11 • Number of events 1 • 76 weeks
Nervous system disorders
Syncope
9.1%
1/11 • Number of events 1 • 76 weeks
Musculoskeletal and connective tissue disorders
Systemic lupus erythematosus
18.2%
2/11 • Number of events 2 • 76 weeks
Ear and labyrinth disorders
Tinnitus
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Upper respiratory tract infection
27.3%
3/11 • Number of events 4 • 76 weeks
Infections and infestations
Urinary tract infection
18.2%
2/11 • Number of events 2 • 76 weeks
Skin and subcutaneous tissue disorders
Urticaria
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Viral infection
9.1%
1/11 • Number of events 1 • 76 weeks
Infections and infestations
Viral upper respiratory tract infection
9.1%
1/11 • Number of events 4 • 76 weeks
Gastrointestinal disorders
Vomiting
18.2%
2/11 • Number of events 9 • 76 weeks

Additional Information

Hermine Brunner

Cincinnati Childrens Hospital Medical Center

Phone: (513) 636-6320

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place