Clinical and Sociodemographic Characterization of Multiple Myeloma Participants With Symptomatic Relapse and/or Refractory Disease in Spain (CharisMMa Study)

NCT ID: NCT03188536

Last Updated: 2020-10-12

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

282 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-07-26

Study Completion Date

2019-01-30

Brief Summary

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The purpose of this study is to characterize the multiple myeloma (MM) participants with symptomatic relapse and/or refractory disease in Spain.

Detailed Description

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Adult participants with a diagnosis of MM who have received at least one previous treatment line and have experienced symptomatic relapse and/or refractory disease in the previous 6 months, who are still in follow-up at the time of the study visit will be observed in this study.

The study will look into sociodemographic data, current clinical and therapeutic data, clinical data relative to the latest relapse and clinical data at diagnosis and previous relapses will be collected.

The study will enroll approximately 350 patients.

This multi-center trial will be conducted in a total of 30 public sites in Spain. The overall time to collect data will be approximately 1 year from June 2017 to May 2018.

Conditions

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Multiple Myeloma

Study Design

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Observational Model Type

COHORT

Study Time Perspective

RETROSPECTIVE

Study Groups

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Multiple Myeloma (MM) Participants

Adult participants with a diagnosis of MM who received at least one previous treatment line (standard care of treatment) and experienced symptomatic relapse and/or refractory disease in the previous 6 months, who were followed-up at the time of the study visit. No intervention was administered in this study.

No Intervention

Intervention Type OTHER

As it was an observational study, no intervention was administered in this study.

Interventions

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No Intervention

As it was an observational study, no intervention was administered in this study.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Have a diagnosis of MM and has received at least one previous treatment line.
* Have experienced symptomatic relapse and/or refractory disease in the 6 months before the study.
* Has continued in follow-up at the time of the study visit.
* Is currently treated in the site who have clinical records available.
* Is capable of understanding and completing the questions in the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30), and EORTC Multiple Myeloma Module (QLQ-MY20) questionnaires.

Exclusion Criteria

• Participants who do not agree to participate in the study or who do not give written informed consent.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Takeda

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Medical Monitor Clinical Science

Role: STUDY_DIRECTOR

Takeda

Locations

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H Universitario Puerta del Mar

Cadiz, Andalusia, Spain

Site Status

H Virgen de las Nieves

Granada, Andalusia, Spain

Site Status

Hospital Juan Ramon Jimenez

Huelva, Andalusia, Spain

Site Status

H Jerez

Jerez de la Frontera, Andalusia, Spain

Site Status

Hospital Costa del Sol

Marbella, Andalusia, Spain

Site Status

H. Nuestra Senora de Valme

Seville, Andalusia, Spain

Site Status

Hospital Clinico Universitario Lozano Blesa

Zaragoza, Aragon, Spain

Site Status

H Son Espases

Palma, Balearic Islands, Spain

Site Status

Hospital Son Llatzer

Palma, Balearic Islands, Spain

Site Status

H de Donosti

Donostia / San Sebastian, Basque Country, Spain

Site Status

Hospital de Txagorritxu

Vitoria-Gasteiz, Basque Country, Spain

Site Status

H U Canarias

San Cristóbal de La Laguna, Canary Islands, Spain

Site Status

H Marques de Valdecilla

Santander, Cantabria, Spain

Site Status

Hospital de Burgos

Burgos, Castille and León, Spain

Site Status

Hospital de Leon

León, Castille and León, Spain

Site Status

Hospital de Salamanca

Salamanca, Castille and León, Spain

Site Status

Complejo Asistencial de Segovia

Segovia, Castille and León, Spain

Site Status

H U de Guadalajara

Guadalajara, Castille-La Mancha, Spain

Site Status

Complejo Hospitalario Toledo

Toledo, Castille-La Mancha, Spain

Site Status

Hospital Clinico de Barcelona

Barcelona, Catalonia, Spain

Site Status

Hospital Doctor Trueta ICO Girona

Girona, Catalonia, Spain

Site Status

ICO Bellvitge

L'Hospitalet de Llobregat, Catalonia, Spain

Site Status

H Universitari de Tarragona Joan XXIII

Tarragona, Catalonia, Spain

Site Status

Hospital Lucus Agusti

Lugo, Galicia, Spain

Site Status

H Clinico Universitario de Santiago

Santiago de Compostela, Galicia, Spain

Site Status

Complejo Hospitalario de Navarra

Pamplona, Navarre, Spain

Site Status

H Universitario de Cabuenes

Gijón, Principality of Asturias, Spain

Site Status

H Infanta Leonor

Madrid, , Spain

Site Status

H 12 de Octubre

Madrid, , Spain

Site Status

H Clinico de Valencia

Valencia, , Spain

Site Status

Countries

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Spain

References

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Dachs LR, Gaisan CM, Bustamante G, Lopez SG, Garcia EG, Persona EP, Gonzalez-Calle V, Auzmendi MS, Perez JMA, Gonzalez Montes Y, Rios Tamayo R, de Miguel Llorente D, Bernal LP, Mayol AS, Caro CC, Grande M, Fernandez-Nistal A, Naves A, Miguel EMOS. Assessment of the psychometric properties of the Spanish version of EORTC QLQ-MY20 and evaluation of health-related quality of Life outcomes in patients with relapsed and/or refractory multiple myeloma in the real-world setting in Spain: results from the CharisMMa study. Leuk Lymphoma. 2023 Nov-Dec;64(11):1847-1856. doi: 10.1080/10428194.2023.2240922. Epub 2023 Aug 4.

Reference Type DERIVED
PMID: 37539698 (View on PubMed)

Ocio EM, Montes-Gaisan C, Bustamante G, Garzon S, Gonzalez E, Perez-Persona E, Gonzalez-Calle V, Sirvent M, Arguinano JM, Gonzalez Y, Rios R, de Miguel D, Grande M, Fernandez-Nistal A, Naves A, Rosinol L. Real-World Health Care Services Utilization Associated With the Management of Patients With Relapsed and Refractory Multiple Myeloma in Spain: The CharisMMa Study. Clin Lymphoma Myeloma Leuk. 2023 Oct;23(10):e341-e347. doi: 10.1016/j.clml.2023.07.006. Epub 2023 Jul 15.

Reference Type DERIVED
PMID: 37517875 (View on PubMed)

Provided Documents

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Document Type: Study Protocol and Statistical Analysis Plan

View Document

Other Identifiers

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TAK-MMR-2017-01

Identifier Type: REGISTRY

Identifier Source: secondary_id

RRMM-5012

Identifier Type: -

Identifier Source: org_study_id

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