Clinical Trial to Evaluate the Efficacy, Safety, and Tolerability of RO7239361 in Ambulatory Boys With Duchenne Muscular Dystrophy

NCT ID: NCT03039686

Last Updated: 2020-12-21

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE2/PHASE3

Total Enrollment

166 participants

Study Classification

INTERVENTIONAL

Study Start Date

2017-07-06

Study Completion Date

2020-04-28

Brief Summary

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This is a multi-center, randomized, double-blind, placebo-controlled study to assess the efficacy, safety and tolerability of two different weekly doses of RO7239361 in ambulatory boys with Duchenne Muscular Dystrophy (DMD).

Detailed Description

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Conditions

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Duchenne Muscular Dystrophy

Keywords

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muscular dystrophy Duchenne's Muscular Dystrophy DMD

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors

Study Groups

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RO7239361 Low Dose

Participants received low dose RO7239361 SC on specified days of the 48-week DB period. Following the DB period participants received low dose RO7239361 on specified days for up to 192 weeks during the open-label period followed by 24 weeks of follow-up.

Group Type EXPERIMENTAL

RO7239361

Intervention Type DRUG

Take RO7239361 subcutaneously on specified days over a 48 week blinded period

RO7239361 High Dose

Participants received high dose RO7239361 SC on specified days of the 48-week DB period. Following the DB period participants received high dose RO7239361 on specified days for up to 192 weeks during the open-label period followed by 24 weeks of follow-up.

Group Type EXPERIMENTAL

RO7239361

Intervention Type DRUG

Take RO7239361 subcutaneously on specified days over a 48 week blinded period

Placebo

Participants received matching placebo solution subcutaneously (SC) on specified days of the 48-week double-blind (DB) period. Following the DB period participants received low dose or high dose RO7239361 on specified days for up to 192 weeks during the open-label period followed by 24 weeks of follow-up.

Group Type PLACEBO_COMPARATOR

Placebo for RO7239361

Intervention Type DRUG

Take placebo subcutaneously on specified days over a 48 week blinded period

Interventions

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RO7239361

Take RO7239361 subcutaneously on specified days over a 48 week blinded period

Intervention Type DRUG

Placebo for RO7239361

Take placebo subcutaneously on specified days over a 48 week blinded period

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Diagnosed with DMD by confirmed medical history and genetic testing
* Able to walk without assistance
* Minimum North Star Ambulatory Assessment score of 15 at screening
* Able to walk up 4 stairs in 8 seconds or less
* Weigh at least 15 kg (33 lbs)
* Taking corticosteroids for DMD

Exclusion Criteria

* Any behavior or mental issue that will affect the ability to complete the required study procedures
* Previously or currently taking medications like androgens or human growth hormone
* Use of a ventilator during the day
* Unable to have blood samples collected or receive an injection under the skin
* Concomitant or previous participation at any time in a gene therapy study
Minimum Eligible Age

6 Years

Maximum Eligible Age

11 Years

Eligible Sex

MALE

Accepts Healthy Volunteers

No

Sponsors

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Hoffmann-La Roche

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Clinical Trials

Role: STUDY_DIRECTOR

Hoffmann-La Roche

Locations

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Neuromuscular Research Center

Phoenix, Arizona, United States

Site Status

Stanford University

Palo Alto, California, United States

Site Status

University of California Davis Medical Center

Sacramento, California, United States

Site Status

Yale University School of Medicine ; Pulmonary & Critical Care

New Haven, Connecticut, United States

Site Status

University of Florida

Gainesville, Florida, United States

Site Status

Nemours Children's Hospital

Orlando, Florida, United States

Site Status

Rare Disease Research, LLC

Atlanta, Georgia, United States

Site Status

Rush University Medical Center - PPDS

Chicago, Illinois, United States

Site Status

University of Iowa

Iowa City, Iowa, United States

Site Status

University of Kansas Medical Center

Kansas City, Kansas, United States

Site Status

Kennedy Krieger Institute

Baltimore, Maryland, United States

Site Status

University of Massachusetts Memorial Childrens Medical Center; Department of Neurology

Worcester, Massachusetts, United States

Site Status

Saint Louis Children's Hospital

St Louis, Missouri, United States

Site Status

Las Vegas Clinic

Las Vegas, Nevada, United States

Site Status

Cincinnati Childrens Hospital Medical Center;Investigational Pharmacy

Cincinnati, Ohio, United States

Site Status

Nationwide Childrens Hospital; Research Institute at Nationwide Childrens Hospital

Columbus, Ohio, United States

Site Status

Seattle Children's Hospital

Seattle, Washington, United States

Site Status

Instituto centenario

Buenos Aires, , Argentina

Site Status

Children's Hospital Westmead; Paediatrics & Child Health

Westmead, New South Wales, Australia

Site Status

Lady Cilento Children's Hospital; Neurosciences Department

South Brisbane, Queensland, Australia

Site Status

Royal Children's Hospital

Parkville, Victoria, Australia

Site Status

UZ Gent

Ghent, , Belgium

Site Status

London Health Sciences Centre; Children's Hospital; Pediatrics

London, Ontario, Canada

Site Status

Children'S Hospital of Eastern Ontario

Ottawa, Ontario, Canada

Site Status

Hospices Civils de Lyon

Lyon, , France

Site Status

Hotel Dieu; Service Pharmacie Essais Cliniques

Nantes, , France

Site Status

Hopital Armand Trousseau; centre reference Maladies Neuro-musculaires Est parisien Neuropediatrie

Paris, , France

Site Status

Hopitaux Universitaires de Strasbourg

Strasbourg, , France

Site Status

Universitatsklinikum Essen; Innere Klinik

Essen, , Germany

Site Status

Fondazione Serena Onlus - CENTRO CLINICO NEMO

Milano, Emilia-Romagna, Italy

Site Status

Fondazione Policlinico Universitario A Gemelli; Servizio di Farmacia

Rome, Lazio, Italy

Site Status

Az. Osp. Universitaria Pol. G. Martino; Dip. Neuroscienze, Scienze Psichiatriche e Anest.

Messina, Sicily, Italy

Site Status

Hyogo College of Medicine Hospital

Hyōgo, , Japan

Site Status

Miyagi Children's Hospital

Miyagi, , Japan

Site Status

Shinshu University Hospital

Nagano, , Japan

Site Status

National Hospital Organization Osaka Toneyama Medical Center

Osaka, , Japan

Site Status

National Center of Neurology and Psychiatry

Tokyo, , Japan

Site Status

Leids Universitair Medisch Centrum

Leiden, , Netherlands

Site Status

Radboud University Nijmegen Medical Centre; Ophthalmology

Nijmegen, , Netherlands

Site Status

Hospital Sant Joan De Deu

Esplugues de Llobregas, Barcelona, Spain

Site Status

Hospital Universitari i Politecnic La Fe de Valencia; Servicio de Farmacia

Valencia, , Spain

Site Status

Drottning Silvias Barn- och ungdomssjukhus; Kliniken for barnmedicin

Gothenburg, , Sweden

Site Status

Alder Hey Children s Hospital; Department of Pediatrics

Liverpool, , United Kingdom

Site Status

UCL Institute of Child Health & Great Ormond Street Hospital for Children

London, , United Kingdom

Site Status

Countries

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United States Argentina Australia Belgium Canada France Germany Italy Japan Netherlands Spain Sweden United Kingdom

References

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Muntoni F, Byrne BJ, McMillan HJ, Ryan MM, Wong BL, Dukart J, Bansal A, Cosson V, Dreghici R, Guridi M, Rabbia M, Staunton H, Tirucherai GS, Yen K, Yuan X, Wagner KR; Taldefgrobep Alfa Study Group. The Clinical Development of Taldefgrobep Alfa: An Anti-Myostatin Adnectin for the Treatment of Duchenne Muscular Dystrophy. Neurol Ther. 2024 Feb;13(1):183-219. doi: 10.1007/s40120-023-00570-w. Epub 2024 Jan 8.

Reference Type DERIVED
PMID: 38190001 (View on PubMed)

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Related Links

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http://www.fda.gov/Safety/Recalls/

FDA Safety Alerts and Recalls

http://roche-duchenne-clinicaltrials.com

Provides information about the Roche clinical trial NCT03039686 and molecule being investigated in Duchenne

Other Identifiers

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2016-001654-18

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

WN40227

Identifier Type: OTHER

Identifier Source: secondary_id

CN001-016

Identifier Type: -

Identifier Source: org_study_id