Non-invasive Ventilation and Physical Activity

NCT ID: NCT02951572

Last Updated: 2020-11-23

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

TERMINATED

Clinical Phase

NA

Total Enrollment

8 participants

Study Classification

INTERVENTIONAL

Study Start Date

2013-02-28

Study Completion Date

2017-06-30

Brief Summary

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As fatigue and daytime sleepiness are typical symptoms of alveolar hypoventilation in patients with neuromuscular disorders and thoracic deformations, we hope, by starting non-invasive ventilation and improving these symptoms, to increase their physical activity.

Detailed Description

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Patients with neuromuscular disorders and thoracic deformations develop alveolar hypoventilation during their disease progression. At that time, non-invasive ventilation(NIV) can be started as treatment.

Fatigue and daytime sleepiness are typical symptoms of alveolar hypoventilation. NIV has the intention to improve these symptoms but no research has been performed whether these improvements also objectively improve physical activity. Further on, no research has been performed on muscle strength and muscle fatigue.

Patients' physical activity, physical capacity and sleep quality will be measured before NIV initiation, after 3 months and 1 year of NIV use.

To start NIV, patients will be admitted to our sleep laboratory for 5 days/4 nights. Polysomnography will be used during NIV titration.

Physical activity will each time be measured by 2 activity monitors during 5 days.

Conditions

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Neuromuscular Diseases

Keywords

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Noninvasive Ventilation Physical activity

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Patients with RLD initiating NIV

Patients with RLD initiating NIV according to Belgian Health guidelines are followed-up before and after NIV initiation

Group Type OTHER

NIV

Intervention Type DEVICE

Interventions

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NIV

Intervention Type DEVICE

Eligibility Criteria

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Inclusion Criteria

* restrictive pulmonary function test AND
* symptoms of nocturnal alveolar hypoventilation or
* increased daytime pressure of arterial CO2 (PaCO2) (\>45 mmHg) or
* \>= 10 mmHg increase in PaCO2 during sleep in comparison to a normal awake supine value

Exclusion Criteria

* patients \< 16 years
* severe cardiac arrythmias or conduction disturbances
* severe mental disturbances
* amyotrophic lateral sclerosis
* total wheelchair-dependent patients
Minimum Eligible Age

16 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Universitaire Ziekenhuizen KU Leuven

OTHER

Sponsor Role lead

Responsible Party

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Dr. Dries Testelmans

MD, PhD

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Dries Testelmans, MD, PhD

Role: PRINCIPAL_INVESTIGATOR

Universitaire Ziekenhuizen KU Leuven

Bertien Buyse, MD,PhD

Role: STUDY_DIRECTOR

Universitaire Ziekenhuizen KU Leuven

Locations

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UZ Leuven

Leuven, , Belgium

Site Status

Countries

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Belgium

Other Identifiers

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S54220

Identifier Type: -

Identifier Source: org_study_id