Trial Outcomes & Findings for Teduglutide for Enterocutaneous Fistula (ECF) (NCT NCT02889393)

NCT ID: NCT02889393

Last Updated: 2021-10-06

Results Overview

Percent fistula volume will be reported from the participant

Recruitment status

COMPLETED

Study phase

PHASE2

Target enrollment

6 participants

Primary outcome timeframe

Baseline, Up to 8 weeks

Results posted on

2021-10-06

Participant Flow

Participant milestones

Participant milestones
Measure
Standard of Care Followed by Teduglutide
Participants in this group will receive standard of care treatment for the first 8 weeks followed by daily Teduglutide for the next 8 weeks. Subjects with a favorable response will be offered an open label extension during which they will continue to receive teduglutide for up to another 12 months or permanent fistula closure. Teduglutide: Daily 0.05 mg/kg Teduglutide administered subcutaneously. Standard of Care: The standard of care treatment of ECF which includes meticulous wound care, optimizations of nutrition, use of acid-suppression medications and anti-motility agents as per treating physician discretion.
Teduglutide Followed by Standard of Care
Participants in this group will receive daily Teduglutide treatment for the first 8 weeks followed by standard of care for the next 8 weeks. Subjects with a favorable response will be offered an open label extension during which they will continue to receive teduglutide for up to another 12 months or permanent fistula closure Teduglutide: Daily 0.05 mg/kg Teduglutide administered subcutaneously. Standard of Care: The standard of care treatment of ECF which includes meticulous wound care, optimizations of nutrition, use of acid-suppression medications and anti-motility agents as per treating physician discretion.
Overall Study
STARTED
3
3
Overall Study
COMPLETED
3
3
Overall Study
NOT COMPLETED
0
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Teduglutide for Enterocutaneous Fistula (ECF)

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Standard of Care Followed by Teduglutide
n=3 Participants
Participants in this group will receive standard of care treatment for the first 8 weeks followed by daily Teduglutide for the next 8 weeks. Subjects with a favorable response will be offered an open label extension during which they will continue to receive teduglutide for up to another 12 months or permanent fistula closure. Teduglutide: Daily 0.05 mg/kg Teduglutide administered subcutaneously. Standard of Care: The standard of care treatment of ECF which includes meticulous wound care, optimizations of nutrition, use of acid-suppression medications and anti-motility agents as per treating physician discretion.
Teduglutide Followed by Standard of Care
n=3 Participants
Participants in this group will receive daily Teduglutide treatment for the first 8 weeks followed by standard of care for the next 8 weeks. Subjects with a favorable response will be offered an open label extension during which they will continue to receive teduglutide for up to another 12 months or permanent fistula closure Teduglutide: Daily 0.05 mg/kg Teduglutide administered subcutaneously. Standard of Care: The standard of care treatment of ECF which includes meticulous wound care, optimizations of nutrition, use of acid-suppression medications and anti-motility agents as per treating physician discretion.
Total
n=6 Participants
Total of all reporting groups
Age, Categorical
<=18 years
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Age, Categorical
Between 18 and 65 years
3 Participants
n=5 Participants
2 Participants
n=7 Participants
5 Participants
n=5 Participants
Age, Categorical
>=65 years
0 Participants
n=5 Participants
1 Participants
n=7 Participants
1 Participants
n=5 Participants
Sex: Female, Male
Female
0 Participants
n=5 Participants
2 Participants
n=7 Participants
2 Participants
n=5 Participants
Sex: Female, Male
Male
3 Participants
n=5 Participants
1 Participants
n=7 Participants
4 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
1 Participants
n=5 Participants
1 Participants
n=7 Participants
2 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
2 Participants
n=5 Participants
2 Participants
n=7 Participants
4 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
1 Participants
n=5 Participants
0 Participants
n=7 Participants
1 Participants
n=5 Participants
Race (NIH/OMB)
White
2 Participants
n=5 Participants
3 Participants
n=7 Participants
5 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants

PRIMARY outcome

Timeframe: Baseline, Up to 8 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Percent fistula volume will be reported from the participant

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Change in Average 3-day Fistula Percent Volume
76.33 Percent change in fistula volume
Standard Deviation 355.36
441.67 Percent change in fistula volume
Standard Deviation 824.87

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: Ceased fistula output was reported for all participants at the end of treatment after receiving both interventions.

As evaluated by treating physician of having at least 1 ceased fistula output

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
Participants that received Standard of Care for 8 weeks
Number of Participants With Ceased Fistula Output
3 Participants

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Adult Sickle Cell Quality of Life Measurement (ASCQ-Me) Version 2.0 Social Functioning - Short Form questionnaire has a total score ranging from 5-25 with the higher score indicating a healthier status.

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by ASCQ-Me® v2.0 Social Functioning - Short Form
20.5 score on a scale
Standard Deviation 5.2
20 score on a scale
Standard Deviation 7.7

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Adult Sickle Cell Quality of Life Measurement (ASCQ-Me) Version 2.0 Sleep Impact - Short Form questionnaire has a total score ranging from 5-25 with the higher score indicating a healthier status

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by the ASCQ-Me® v2.0 Sleep Impact - Short Form
19.5 score on a scale
Standard Deviation 1.3
19.5 score on a scale
Standard Deviation 4.1

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each. 1 participant in the teduglutide arm did not complete the global health questionnaire.

Patient Reported Outcome Measures Information Systems Global Health has a total score ranging from 10-50 with the higher score indicating a healthier status

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=5 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by the PROMIS Scale v1.2 - Global Health
30 score on a scale
Standard Deviation 6.3
35 score on a scale
Standard Deviation 10.2

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Patient Reported Outcome Measures Information Systems (PROMIS-GI) Gastrointestinal Belly Pain 5a questionnaire has a total score ranging from 1-25 with the lower score indicating a healthier status

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by the PROMIS Scale v1.0 - Gastrointestinal Belly Pain 5a
6.0 score on a scale
Standard Deviation 8.2
7.5 score on a scale
Standard Deviation 6.9

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Patient Reported Outcome Measures Information Systems (PROMIS-GI) Gastrointestinal Diarrhea 6a questionnaire has a total score ranging from 1-30 with the lower score indicating a healthier status

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by the PROMIS Scale v1.0 - Gastrointestinal Diarrhea 6a
8.0 score on a scale
Standard Deviation 4.4
6.0 score on a scale
Standard Deviation 4.0

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Patient Reported Outcome Measures Information Systems (PROMIS-GI) Gastrointestinal Nausea and Vomiting 4a questionnaire has a total score ranging from 1-20 with the lower score indicating a healthier status

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by the PROMIS Scale v1.0 - Gastrointestinal Nausea and Vomiting 4a
3.0 score on a scale
Standard Deviation 2.8
3.5 score on a scale
Standard Deviation 3.3

SECONDARY outcome

Timeframe: Up to 16 weeks

Population: This is a cross-over study. Each participant received both teduglutide intervention and the standard of care intervention for 8 weeks each.

Patient Reported Outcome Measures Information Systems (PROMIS) Ability to Participate in Social Roles and Activities - Short Form 8a questionnaire has a total score ranging from 8-40 with the lower score indicating a healthier status

Outcome measures

Outcome measures
Measure
Teduglutide Intervention
n=6 Participants
Participants that received Teduglutide for 8 weeks
Standard of Care Intervention
n=6 Participants
Participants that received Standard of Care for 8 weeks
Quality of Life as Measured by the PROMIS Scale v2.0 - Ability to Participate in Social Roles and Activities - Short Form 8a
32.0 score on a scale
Standard Deviation 7.8
34.0 score on a scale
Standard Deviation 13.0

Adverse Events

On Teduglutide

Serious events: 0 serious events
Other events: 6 other events
Deaths: 0 deaths

On Standard of Care

Serious events: 0 serious events
Other events: 2 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
On Teduglutide
n=6 participants at risk
The study is a crossover design. All participants received 8 weeks of daily Teduglutide. Teduglutide: Daily 0.05 mg/kg Teduglutide administered subcutaneously.
On Standard of Care
n=6 participants at risk
The study is a crossover design. All participants received 8 weeks of daily Standard of Care Therapy. Standard of Care: The standard of care treatment of ECF which includes meticulous wound care, optimizations of nutrition, use of acid-suppression medications and anti-motility agents as per treating physician discretion.
Gastrointestinal disorders
Nausea
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months
Gastrointestinal disorders
Vomiting
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months
Skin and subcutaneous tissue disorders
Stoma hypertrophy
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
Skin and subcutaneous tissue disorders
Pain at fistula site
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months
Musculoskeletal and connective tissue disorders
Leg Cramps
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months
Skin and subcutaneous tissue disorders
Lip Swelling
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
General disorders
Headache
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
Infections and infestations
Upper Respiratory Infection
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months
Musculoskeletal and connective tissue disorders
Right Sided Chest Pain
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months
Skin and subcutaneous tissue disorders
Small Bleeding from Fistula
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
Surgical and medical procedures
IV Infiltration
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
Renal and urinary disorders
Increased Creatinine
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
Skin and subcutaneous tissue disorders
Edema around ostomy site
16.7%
1/6 • Number of events 1 • Up to 19 months
0.00%
0/6 • Up to 19 months
Skin and subcutaneous tissue disorders
Cellulitis
0.00%
0/6 • Up to 19 months
16.7%
1/6 • Number of events 1 • Up to 19 months

Additional Information

Dr. D. Dante Yeh

University of Miami

Phone: 3055851178

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place