Psychometric Properties of the EORTC QLQ-LC29

NCT ID: NCT02745691

Last Updated: 2019-12-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

523 participants

Study Classification

OBSERVATIONAL

Study Start Date

2016-04-01

Study Completion Date

2018-09-26

Brief Summary

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The aim of the Phase 4 study is to test the scale structure, reliability, responsiveness to change and validity of the EORTC QLQ-LC29 in conjunction with the EORTC QLQ-C30 in patients diagnosed with lung cancer. Participants will be enrolled in four groups according to their primary therapy (A. Surgery, B. Radiochemotherapy, C. Targeted therapy, D. Immunotherapy). According to sample size calculations the investigators will include a total of N = 450 patients, but inflating the recruitment goal is permissible.

Detailed Description

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Background The EORTC QLQ-C30 assesses quality of life of cancer patients and comprises 30 items that are grouped in five functional scales (physical, role, cognitive, emotional and social), one scale to rate global health and quality of life, three multi-item symptom scales (fatigue, nausea and vomiting, pain) and five single symptom items (dyspnoea, insomnia, appetite loss, constipation and diarrhea), one item assessing perceived financial impact of disease and treatment.

The updated lung cancer module, the QLQ-LC29, is a module to be used in conjunction with the QLQ-C30 for the assessment of specific aspects of quality of life in patients with lung cancer. All items are accompanied by the classic EORTC four-point Likert response scale with the labels 1 "not at all", 2 "a little", 3 "quite a bit", and 4 "very much". The time frame is the past week ("Please indicate the extent to which you have experienced these symptoms or problems during the past week").

Eligibility Patients are eligible for this study if they have a histologically confirmed diagnosis of lung cancer, are able to understand the language of the questionnaire, are mentally fit to complete the questionnaire, and have provided written informed consent.

Sampling matrix Participants will be enrolled in four groups according to their primary therapy: A. Surgery, B. Radiochemotherapy, C. Targeted therapy, D. Immunotherapy. Various combinations of therapies are possible, resulting in a total of eight subgroups: A.1 Surgery alone and/or before any adjuvant therapy, A.2 Surgery (late effects), B.1 Chemotherapy alone, B.2 Radiotherapy alone, B.3 Sequential radiochemotherapy, B.4 Concurrent radiochemotherapy, C.1 Targeted therapy alone, C.2 Targeted therapy in combination with any other therapy, D. Immunotherapy.

Procedure Patients are informed about the goal of the study. After granting informed consent, patients fill in the self-administered paper version of the EORTC QLQ-C30 plus the new lung module QLQ-LC29. Their physicians provide the clinical documentation. A subsample of the patients will fill in the questionnaires at a second time point two to four weeks later.

Sample size According to sample size calculations we will include a total of N = 450 patients, but inflating the recruitment goal is permissible.

Statistical analyses Scale structure will be analysed by confirmatory factor analyses, and backed by classical test theory (convergent/discriminant validity). Reliability will be calculated by means of Cronbach's alpha (internal consistency) and intra-class coefficient (ICC, test-retest reliability). Sensitivity of the module will be assessed by means of known group differences (Karnofsky Performance Status). Responsiveness to change over time will take into account differences between the second and first assessment.

Conditions

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Lung Cancer

Keywords

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quality of life psychometric validation international field study patient-reported outcome (PRO)

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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A. Surgery

A.1 Surgery alone and/or before any adjuvant therapy A.2 Surgery (late effects)

Surgery

Intervention Type OTHER

Thoracic surgery for lung cancer

B. Radiochemotherapy

B.1 Chemotherapy alone B.2 Radiotherapy alone B.3 Sequential radiochemotherapy B.4 Concurrent radiochemotherapy

Radiochemotherapy

Intervention Type OTHER

Either chemotherapy or radiotherapy alone or combination of both (either subsequent or concurrent)

C. Targeted therapy

C.1 Targeted therapy alone C.2 Targeted therapy in combination with any other therapy

Targeted therapy

Intervention Type OTHER

New targeted therapies for lung cancer

D. Immunotherapy

Any new immunotherapy for lung cancer

Immunotherapy

Intervention Type OTHER

New immunotherapies for lung cancer

Interventions

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Surgery

Thoracic surgery for lung cancer

Intervention Type OTHER

Radiochemotherapy

Either chemotherapy or radiotherapy alone or combination of both (either subsequent or concurrent)

Intervention Type OTHER

Targeted therapy

New targeted therapies for lung cancer

Intervention Type OTHER

Immunotherapy

New immunotherapies for lung cancer

Intervention Type OTHER

Other Intervention Names

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Bevacizumab, Erlotinib, Gefitinib, and Crizotinib

Eligibility Criteria

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Inclusion Criteria

* histologically confirmed diagnosis of lung cancer
* no previous primary or recurrent tumour
* ability to understand the language of the questionnaire
* mental fitness to complete a questionnaire
* 18 years of age or above
* written informed consent.-

Exclusion Criteria

* no histologically confirmed diagnosis of lung cancer-
* previous primary or recurrent tumour
* not mentally fit to complete a questionnaire
* not able to understand the language of the questionnaire
* younger than 18
* refusal of informed consent.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University Hospital Regensburg

OTHER

Sponsor Role lead

Responsible Party

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Michael Koller

Head, Center of Clinical Studies

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Michael Koller, PhD

Role: PRINCIPAL_INVESTIGATOR

University Hospital Regensburg

Locations

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Center for Clinical Studies, University Hospital Regensburg

Regensburg, , Germany

Site Status

Countries

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Germany

References

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Koch M, Grafenstein L, Karnosky J, Schulz C, Koller M. Psychosocial Burden and Quality of Life of Lung Cancer Patients: Results of the EORTC QLQ-C30/QLQ-LC29 Questionnaire and Hornheide Screening Instrument. Cancer Manag Res. 2021 Aug 7;13:6191-6197. doi: 10.2147/CMAR.S314310. eCollection 2021.

Reference Type DERIVED
PMID: 34393512 (View on PubMed)

Koller M, Shamieh O, Hjermstad MJ, Hornslien K, Young T, Chalk T, Ioannidis G, Harle A, Johnson CD, Tomaszewski KA, Serpentini S, Pinto M, van der Weijst L, Janssens A, Morag O, Chie WC, Arraras JI, Pompili C, Jungraithmayr W, Hechtner M, Katsochi D, Muller K, Grafenstein L, Schulz C, Bottomley A; European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group; EORTC Lung Cancer Group; European Society of Thoracic Surgeons. Psychometric properties of the updated EORTC module for assessing quality of life in patients with lung cancer (QLQ-LC29): an international, observational field study. Lancet Oncol. 2020 May;21(5):723-732. doi: 10.1016/S1470-2045(20)30093-0. Epub 2020 Mar 23.

Reference Type DERIVED
PMID: 32213338 (View on PubMed)

Other Identifiers

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LC29_Phase4

Identifier Type: -

Identifier Source: org_study_id