Trial Outcomes & Findings for Repeat Dose Safety Study of NRL-1 in Epilepsy Subjects (NCT NCT02721069)

NCT ID: NCT02721069

Last Updated: 2022-01-31

Results Overview

Assess the number of participants who received at least one dose of NRL-1 (Valtoco) during the study and comprised the safety population.

Recruitment status

COMPLETED

Study phase

PHASE3

Target enrollment

175 participants

Primary outcome timeframe

12 months

Results posted on

2022-01-31

Participant Flow

Participant milestones

Participant milestones
Measure
NRL-1
Intranasal dose of NRL-1 will be administered at either 5 mg, 10 mg, 15 mg, or 20 mg based on the subject's body weight. NRL-1
Overall Study
STARTED
175
Overall Study
COMPLETED
117
Overall Study
NOT COMPLETED
58

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Repeat Dose Safety Study of NRL-1 in Epilepsy Subjects

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
NRL-1
n=175 Participants
Intranasal dose of NRL-1 will be administered at either 5 mg, 10 mg, 15 mg, or 20 mg based on the subject's body weight. NRL-1
Age, Categorical
<=18 years
92 Participants
n=5 Participants
Age, Categorical
Between 18 and 65 years
82 Participants
n=5 Participants
Age, Categorical
>=65 years
1 Participants
n=5 Participants
Age, Continuous
22.3 years
STANDARD_DEVIATION 14.87 • n=5 Participants
Sex: Female, Male
Female
93 Participants
n=5 Participants
Sex: Female, Male
Male
82 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
4 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
5 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
19 Participants
n=5 Participants
Race (NIH/OMB)
White
143 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
4 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Region of Enrollment
United States
175 Participants
n=5 Participants

PRIMARY outcome

Timeframe: 12 months

Population: Subjects who received at least one dose of NRL-1.

Assess the number of participants who received at least one dose of NRL-1 (Valtoco) during the study and comprised the safety population.

Outcome measures

Outcome measures
Measure
NRL-1 5mg
n=11 Participants
Intranasal dose of NRL-1 will be administered at 5 mg based on age and weight.
NRL-1 10mg
n=61 Participants
Intranasal dose of NRL-1 will be administered at 10 mg based on age and weight.
NRL-1 15 mg
n=46 Participants
Intranasal dose of NRL-1 will be administered at 15 mg based on age and weight.
NRL-1 20mg
n=57 Participants
Intranasal dose of NRL-1 will be administered at 20 mg based on age and weight.
Number of Participants Who Received NRL-1 (Valtoco)
9 Participants
54 Participants
46 Participants
54 Participants

Adverse Events

NRL-1 5mg

Serious events: 2 serious events
Other events: 6 other events
Deaths: 0 deaths

NRL-1 10mg

Serious events: 20 serious events
Other events: 34 other events
Deaths: 0 deaths

NRL-1 15mg

Serious events: 15 serious events
Other events: 24 other events
Deaths: 0 deaths

NRL-1 20mg

Serious events: 13 serious events
Other events: 21 other events
Deaths: 1 deaths

Serious adverse events

Serious adverse events
Measure
NRL-1 5mg
n=9 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
NRL-1 10mg
n=54 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
NRL-1 15mg
n=46 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
NRL-1 20mg
n=54 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
Nervous system disorders
Seizure
11.1%
1/9 • Number of events 1 • 12 months
20.4%
11/54 • Number of events 16 • 12 months
17.4%
8/46 • Number of events 14 • 12 months
7.4%
4/54 • Number of events 5 • 12 months
Nervous system disorders
Status Epilepticus
0.00%
0/9 • 12 months
9.3%
5/54 • Number of events 7 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
1.9%
1/54 • Number of events 2 • 12 months
Nervous system disorders
Epilepsy
0.00%
0/9 • 12 months
3.7%
2/54 • Number of events 3 • 12 months
2.2%
1/46 • Number of events 2 • 12 months
3.7%
2/54 • Number of events 3 • 12 months
Nervous system disorders
Seizure Cluster
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
3.7%
2/54 • Number of events 4 • 12 months
Nervous system disorders
Amnesia
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Disturbance in Attention
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Nervous system disorders
Generalised tonic-clonic seizure
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Lennox-Gastaut Syndrome
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Lethargy
11.1%
1/9 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Muscle Spasticity
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Partial Seizures
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Petit Mal Epilepsy
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Nervous system disorders
Postictal State
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Gastrointestinal disorders
Pancreatitis
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Gastrointestinal disorders
Vomiting
0.00%
0/9 • 12 months
3.7%
2/54 • Number of events 3 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Gastrointestinal disorders
Constipation
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Gastrointestinal disorders
Large Intestinal Ulcer
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Gastrointestinal disorders
Proctalgia
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Injury, poisoning and procedural complications
Hip Fracture
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Injury, poisoning and procedural complications
Joint Dislocation
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Injury, poisoning and procedural complications
Thermal Burn
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Injury, poisoning and procedural complications
Wound Dehiscence
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Injury, poisoning and procedural complications
Wrist Fracture
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
General disorders
Pyrexia
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
General disorders
Chest Pain
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
General disorders
Sudden Unexplained Death in Epilepsy
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Respiratory, thoracic and mediastinal disorders
Pneumonia Aspiration
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Respiratory, thoracic and mediastinal disorders
Acute Respiratory Failure
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Respiratory, thoracic and mediastinal disorders
Asthma
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Respiratory, thoracic and mediastinal disorders
Dyspnoea
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Respiratory, thoracic and mediastinal disorders
Restrictive Pulmonary Disease
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Neoplasms benign, malignant and unspecified (incl cysts and polyps)
Chronic Myeloid Leukaemia
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Neoplasms benign, malignant and unspecified (incl cysts and polyps)
Colorectal Adenocarcinoma
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Neoplasms benign, malignant and unspecified (incl cysts and polyps)
Leiomyoma
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Psychiatric disorders
Anxiety
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Psychiatric disorders
Depression
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Psychiatric disorders
Hallucination, Visual
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Psychiatric disorders
Major Depression
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Psychiatric disorders
Suicidal Ideation
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Metabolism and nutrition disorders
Dehydration
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Metabolism and nutrition disorders
Feeding Disorder
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Metabolism and nutrition disorders
Hyponatraemia
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Musculoskeletal and connective tissue disorders
Scoliosis
0.00%
0/9 • 12 months
3.7%
2/54 • Number of events 2 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Reproductive system and breast disorders
Menorrhagia
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Reproductive system and breast disorders
Uterine Haemorrhage
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
0.00%
0/46 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Cardiac disorders
Mitral Valve Prolapse
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Surgical and medical procedures
Brain Lobectomy
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Infections and infestations
Pneumonia
0.00%
0/9 • 12 months
7.4%
4/54 • Number of events 4 • 12 months
2.2%
1/46 • Number of events 3 • 12 months
3.7%
2/54 • Number of events 2 • 12 months
Infections and infestations
Abscess
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Infections and infestations
Appendicitis Perforated
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Infections and infestations
Colonic Abscess
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
0.00%
0/54 • 12 months
Infections and infestations
Influenza
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months
Infections and infestations
Pharyngitis Streptococcal
0.00%
0/9 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
0.00%
0/46 • 12 months
0.00%
0/54 • 12 months

Other adverse events

Other adverse events
Measure
NRL-1 5mg
n=9 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
NRL-1 10mg
n=54 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
NRL-1 15mg
n=46 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
NRL-1 20mg
n=54 participants at risk
Intranasal dose of NRL-1 will be administered at 5, 10, 15, and 20 mg based on age and weight.
Infections and infestations
Nasopharyngitis
11.1%
1/9 • Number of events 3 • 12 months
22.2%
12/54 • Number of events 13 • 12 months
6.5%
3/46 • Number of events 3 • 12 months
7.4%
4/54 • Number of events 6 • 12 months
Infections and infestations
Upper Respiratory Tract Infection
0.00%
0/9 • 12 months
16.7%
9/54 • Number of events 10 • 12 months
15.2%
7/46 • Number of events 8 • 12 months
7.4%
4/54 • Number of events 4 • 12 months
Infections and infestations
Influenza
33.3%
3/9 • Number of events 4 • 12 months
9.3%
5/54 • Number of events 5 • 12 months
6.5%
3/46 • Number of events 3 • 12 months
1.9%
1/54 • Number of events 1 • 12 months
Infections and infestations
Urinary Tract Infection
11.1%
1/9 • Number of events 2 • 12 months
7.4%
4/54 • Number of events 8 • 12 months
6.5%
3/46 • Number of events 3 • 12 months
5.6%
3/54 • Number of events 4 • 12 months
Nervous system disorders
Seizure
0.00%
0/9 • 12 months
7.4%
4/54 • Number of events 5 • 12 months
15.2%
7/46 • Number of events 8 • 12 months
3.7%
2/54 • Number of events 4 • 12 months
Nervous system disorders
Somnolence
0.00%
0/9 • 12 months
9.3%
5/54 • Number of events 5 • 12 months
8.7%
4/46 • Number of events 4 • 12 months
3.7%
2/54 • Number of events 2 • 12 months
Respiratory, thoracic and mediastinal disorders
Nasal Discomfort
0.00%
0/9 • 12 months
0.00%
0/54 • 12 months
8.7%
4/46 • Number of events 11 • 12 months
11.1%
6/54 • Number of events 16 • 12 months
Gastrointestinal disorders
Diarrhoea
22.2%
2/9 • Number of events 2 • 12 months
7.4%
4/54 • Number of events 4 • 12 months
2.2%
1/46 • Number of events 1 • 12 months
3.7%
2/54 • Number of events 2 • 12 months
Gastrointestinal disorders
Vomiting
11.1%
1/9 • Number of events 1 • 12 months
7.4%
4/54 • Number of events 5 • 12 months
4.3%
2/46 • Number of events 2 • 12 months
3.7%
2/54 • Number of events 4 • 12 months
General disorders
Pyrexia
11.1%
1/9 • Number of events 1 • 12 months
18.5%
10/54 • Number of events 10 • 12 months
6.5%
3/46 • Number of events 3 • 12 months
1.9%
1/54 • Number of events 1 • 12 months

Additional Information

Cyndi Guerra

Neurelis, Inc.

Phone: 9736156258

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place