Observational Study Evaluating Long-Term Effectiveness of Duodopa/Duopa in Patients With Advanced Parkinson's Disease

NCT ID: NCT02611713

Last Updated: 2021-12-15

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

213 participants

Study Classification

OBSERVATIONAL

Study Start Date

2016-01-04

Study Completion Date

2020-12-24

Brief Summary

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This study is a non-interventional post-marketing observational study (PMOS) of participants with advanced Parkinson's disease (PD) treated with Duodopa/Duopa in a routine clinical setting. Effectiveness of treatment will be collected with physician and participant/caregiver health outcomes beginning with PMOS enrollment (baseline visit), at the start of Duodopa/Duopa treatment via percutaneous endoscopic gastrostomy-with jejunal extension (PEG-J), at regularly scheduled visits closest to Months 3 and 6, and every 6 months thereafter up to 36 months. An additional cohort of participants will be enrolled who in addition will be evaluated with a wearable device.

Detailed Description

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Conditions

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Advanced Parkinson's Disease

Keywords

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Advanced Parkinson's Disease Duodopa/Duopa carbidopa levodopa enteral suspension (CLES) levodopa-carbidopa intestinal gel (LCIG) OFF time motor and non-motor symptoms dyskinesia tremor Quality of Life Observational Long-term Caregiver Burden effectiveness fluctuations

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Arm A: Participants with Advanced Parkinson's Disease

Participants who along with their physicians have elected for treatment with Duodopa/Duopa and are prescribed according to the local product label and reimbursement guidelines for their participating countries.

No interventions assigned to this group

Arm B: Participants with Advanced Parkinson's Disease

Participants who along with their physicians have elected for treatment with Duodopa/Duopa and are prescribed according to the local product label and reimbursement guidelines for their participating countries. Participants will be evaluated with a wearable device

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Eligibility for Duodopa/Duopa therapy in accordance with the approved local Duodopa/Duopa label in the participating country.
* Duodopa/Duopa naïve participants
* Decision to treat with Duodopa/Duopa made by the physician prior to any decision to approach the participant to participate in this study
* Prior to any study-related procedures being performed, the participant, or legal authorized representative (LAR) has voluntarily signed an Authorization for Use/Disclosure of Data (AUDD)/informed consent form (ICF) according to national regulations after the study has been explained and the subject has had the opportunity to have questions answered.
* For Arm B: Participant and caregiver must be motivated to use the PKG, understand the instructions and be able to handle the device.
* For Arm B: participant must demonstrate at least 75% concordance with the investigator's or qualified designee's assessment of symptoms on the Parkinson's disease diary following training at enrollment visit 1/V1 with concordance on at least 1 time interval of "Off", concordance on at least 1 time interval of "ON regardless of dyskinesia" and at least 1 time interval of "ON with dyskinesia" irrespective of whether the dyskinesia are troublesome or not troublesome.

Exclusion Criteria

* Any condition included in the contraindications section of the approved local Duodopa/Duopa label in the participating country.
* Participants who have had previous surgery for PD including, but not limited to deep brain stimulation (DBS) or cell transplantation (this criterion removed for US sites for Arm A).
* Participants currently in treatment with continuous apomorphine infusion. In case of a previous treatment with continuous subcutaneous apomorphine infusion, there must be at least 4 weeks between discontinuation of this treatment and inclusion into this study.
* Mini-Mental State Examination (MMSE) score \<24
* Participation in a concurrent interventional clinical trial.
* Lack of motivation or insufficient language skills to complete the study questionnaires
Minimum Eligible Age

18 Years

Maximum Eligible Age

99 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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AbbVie

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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AbbVie Inc.

Role: STUDY_DIRECTOR

AbbVie

Locations

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University of Alabama at Birmingham - Main /ID# 144422

Birmingham, Alabama, United States

Site Status

Parkinson's Disease and Moveme /ID# 144413

Boca Raton, Florida, United States

Site Status

University of Florida - Archer /ID# 144415

Gainesville, Florida, United States

Site Status

University of Miami /ID# 144420

Miami, Florida, United States

Site Status

Georgia Regents University /ID# 144417

Augusta, Georgia, United States

Site Status

University of Kansas Health Sy /ID# 154242

Kansas City, Kansas, United States

Site Status

University of Kentucky Chandler Medical Center /ID# 144421

Lexington, Kentucky, United States

Site Status

Johns Hopkins University /ID# 144416

Baltimore, Maryland, United States

Site Status

Mercy St. Mary's Health Center /ID# 144418

Grand Rapids, Michigan, United States

Site Status

Jared Neuroscience Center /ID# 161629

Springfield, Missouri, United States

Site Status

Washington University-School of Medicine /ID# 147235

St Louis, Missouri, United States

Site Status

Univ Nebraska Med Ctr /ID# 147655

Omaha, Nebraska, United States

Site Status

Wake Forest Univ HS /ID# 144419

Winston-Salem, North Carolina, United States

Site Status

Penn State Child Hosp.Hersh,PA /ID# 160671

Hershey, Pennsylvania, United States

Site Status

University of Pennsylvania /ID# 161135

Philadelphia, Pennsylvania, United States

Site Status

Vanderbilt Univ Med Ctr /ID# 150782

Nashville, Tennessee, United States

Site Status

University of Vermont Medical Center /ID# 144410

Burlington, Vermont, United States

Site Status

King County Public Hospital /ID# 144412

Kirkland, Washington, United States

Site Status

Northwest Neurological, PLLC /ID# 144409

Spokane, Washington, United States

Site Status

Concord Repatriation & Gen Hos /ID# 144373

Concord, New South Wales, Australia

Site Status

St. Vincent's Hospital, Darlinghurst /ID# 144376

Darlinghurst, New South Wales, Australia

Site Status

Kingston Centre /ID# 144374

Cheltenham, Victoria, Australia

Site Status

Monash Medical Centre /ID# 144375

Clayton, Victoria, Australia

Site Status

UZ Antwerp /ID# 144378

Edegem, , Belgium

Site Status

AZ Groeninge /ID# 144377

Kortrijk, , Belgium

Site Status

CHU Tivoli /ID# 144379

La Louvière, , Belgium

Site Status

Semmelweis Egyetem /ID# 144381

Budapest, , Hungary

Site Status

Pecsi Tudomanyegyetem Klinikai l.sz. Belgyogyaszati Klinika /ID# 144380

Pécs, , Hungary

Site Status

Tel Aviv Sourasky Medical Center /ID# 153779

Tel Aviv, Tel Aviv, Israel

Site Status

Assaf Harofeh Medical Center /ID# 144383

Be’er Ya‘aqov, , Israel

Site Status

The Edith Wolfson Medical Center /ID# 144382

Holon, , Israel

Site Status

Sheba Medical Center /ID# 147099

Ramat Gan, , Israel

Site Status

Ospedale Santo Stefano /ID# 144386

Prato, , Italy

Site Status

Azienda Ospedaliera Sant' Andrea /ID# 144385

Rome, , Italy

Site Status

A.O. Circolo e Fondazione Macc /ID# 144384

Varese, , Italy

Site Status

Institutul Clinic Fundeni /ID# 144448

Sector 2, București, Romania

Site Status

Spitatlul Clinic Colentina /ID# 144447

Bucharest, , Romania

Site Status

Spital Universitar Bucuresti /ID# 144446

Bucharesti, , Romania

Site Status

Spitalul Clinic Judetean de Ur /ID# 144451

Oradea, Judet Bihor, , Romania

Site Status

Spitalul Clinic Judetean /ID# 144453

Târgu Mureş, , Romania

Site Status

Sp. Clinic de Judetean /ID# 144449

Timișoara, , Romania

Site Status

Sp. Clinic de Judetean /ID# 144452

Timișoara, , Romania

Site Status

Univ Medical Ctr Ljubljana /ID# 144387

Ljubljana, , Slovenia

Site Status

Hospital Arquitecto Marcide - Complejo Hospitalario Universitario de Ferrol /ID# 151782

Ferrol, A Coruna, Spain

Site Status

Hospital Universitario Mutua Terrassa /ID# 144405

Terrassa, Barcelona, Spain

Site Status

CLINICA UNIVERSIDAD DE NAVARRA-Pamplona /ID# 162277

Pamplona, Navarra, Comunidad, Spain

Site Status

Hospital de Tortosa Verge de la Cinta /ID# 153502

Tortosa, Tarragona, Spain

Site Status

OSI Ezkerraldea-Enkarterri-Cruces /ID# 151781

Barakaldo, , Spain

Site Status

Hospital Universitario Vall d'Hebron /ID# 151778

Barcelona, , Spain

Site Status

Hospital Universitario de Burgos /ID# 144406

Burgos, , Spain

Site Status

King's College Hospital NHS /ID# 147130

London, , United Kingdom

Site Status

St. George's Healthcare NHS /ID# 147131

London, , United Kingdom

Site Status

Queens Hospital /ID# 147133

Romford, , United Kingdom

Site Status

Salford Royal NHS Found Trust /ID# 151783

Salford, , United Kingdom

Site Status

Countries

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United States Australia Belgium Hungary Israel Italy Romania Slovenia Spain United Kingdom

References

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Chaudhuri KR, Kovacs N, Pontieri FE, Aldred J, Bourgeois P, Davis TL, Cubo E, Anca-Herschkovitsch M, Iansek R, Siddiqui MS, Simu M, Bergmann L, Ballina M, Kukreja P, Ladhani O, Jia J, Standaert DG. Levodopa Carbidopa Intestinal Gel in Advanced Parkinson's Disease: DUOGLOBE Final 3-Year Results. J Parkinsons Dis. 2023;13(5):769-783. doi: 10.3233/JPD-225105.

Reference Type DERIVED
PMID: 37302039 (View on PubMed)

Aldred J, Anca-Herschkovitsch M, Antonini A, Bajenaru O, Bergmann L, Bourgeois P, Cubo E, Davis TL, Iansek R, Kovacs N, Kukreja P, Onuk K, Pontieri FE, Robieson W, Siddiqui MS, Simu M, Standaert DG, Chaudhuri KR. Application of the '5-2-1' screening criteria in advanced Parkinson's disease: interim analysis of DUOGLOBE. Neurodegener Dis Manag. 2020 Oct;10(5):309-323. doi: 10.2217/nmt-2020-0021. Epub 2020 Sep 2.

Reference Type DERIVED
PMID: 32873195 (View on PubMed)

Other Identifiers

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P14-494

Identifier Type: -

Identifier Source: org_study_id