Trial Outcomes & Findings for Use of ACTIMMUNE in Patients With ADO2 (NCT NCT02584608)

NCT ID: NCT02584608

Last Updated: 2021-01-08

Results Overview

Evaluate for changes in bone resorption markers including CTX, NTX/creatinine ratio between baseline and 14 weeks

Recruitment status

COMPLETED

Study phase

PHASE2

Target enrollment

12 participants

Primary outcome timeframe

baseline, 14 weeks

Results posted on

2021-01-08

Participant Flow

Participant milestones

Participant milestones
Measure
Treatment
ACTIMMUNE 50 µg/m2 subcutaneously three times per week (TIW) for 8 weeks ACTIMMUNE
Overall Study
STARTED
12
Overall Study
COMPLETED
12
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Total matches.

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Treatment
n=12 Participants
ACTIMMUNE 50 µg/m2 subcutaneously three times per week (TIW) for 8 weeks ACTIMMUNE
Age, Categorical
<=18 years
3 Participants
n=5 Participants
Age, Categorical
Between 18 and 65 years
9 Participants
n=5 Participants
Age, Categorical
>=65 years
0 Participants
n=5 Participants
Age, Continuous
Total
30.48 years
n=5 Participants • Total matches.
Sex: Female, Male
Female
6 Participants
n=5 Participants
Sex: Female, Male
Male
6 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
0 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
12 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
0 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
1 Participants
n=5 Participants
Race (NIH/OMB)
White
11 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Region of Enrollment
United States
12 participants
n=5 Participants

PRIMARY outcome

Timeframe: baseline, 14 weeks

Population: All subjects

Evaluate for changes in bone resorption markers including CTX, NTX/creatinine ratio between baseline and 14 weeks

Outcome measures

Outcome measures
Measure
Treatment
n=12 Participants
ACTIMMUNE 50 µg/m2 subcutaneously three times per week (TIW) for 8 weeks ACTIMMUNE
Changes in Bone Resorption Markers From Baseline to 14 Weeks.
Percent change of CTX
2.2 percentage of change
Interval -35.7 to 90.5
Changes in Bone Resorption Markers From Baseline to 14 Weeks.
Percent change of NTX/creatinine ratio
-2.1 percentage of change
Interval -50.5 to 55.5

SECONDARY outcome

Timeframe: 6-12 weeks

Population: all subjects

Evaluate for changes in bone turnover markers including TRAP5b, NTX, CTX/TRAP5b ratio after 6-12 weeks of treatment.

Outcome measures

Outcome measures
Measure
Treatment
n=12 Participants
ACTIMMUNE 50 µg/m2 subcutaneously three times per week (TIW) for 8 weeks ACTIMMUNE
Change in Bone Turnover Markers Between After Completion of 6-12 Weeks of Treatment
TRAP5B
-15.34 percentage of change
Interval -57.07 to 13.1
Change in Bone Turnover Markers Between After Completion of 6-12 Weeks of Treatment
NTX
-2.09 percentage of change
Interval -50.51 to 55.54
Change in Bone Turnover Markers Between After Completion of 6-12 Weeks of Treatment
CTX/TRAP5b ratio
26.31 percentage of change
Interval -35.91 to 144.57

Adverse Events

Treatment

Serious events: 0 serious events
Other events: 10 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Treatment
n=12 participants at risk
ACTIMMUNE 50 µg/m2 subcutaneously three times per week (TIW) for 8 weeks ACTIMMUNE
Nervous system disorders
Headache
83.3%
10/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Nervous system disorders
Fatigue
75.0%
9/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Gastrointestinal disorders
nausea
75.0%
9/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Product Issues
flu like symptoms
66.7%
8/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Musculoskeletal and connective tissue disorders
myalgia
58.3%
7/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Blood and lymphatic system disorders
white blood cell decreased
50.0%
6/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Musculoskeletal and connective tissue disorders
arthralgia
41.7%
5/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Gastrointestinal disorders
diarrhea
41.7%
5/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Blood and lymphatic system disorders
neutrophil count decreased
41.7%
5/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Gastrointestinal disorders
vomiting
41.7%
5/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Musculoskeletal and connective tissue disorders
back pain
33.3%
4/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Skin and subcutaneous tissue disorders
injection site reaction
33.3%
4/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Musculoskeletal and connective tissue disorders
pain in extremity
33.3%
4/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Musculoskeletal and connective tissue disorders
bone pain
33.3%
4/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Immune system disorders
chills
25.0%
3/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Investigations
CPK increased
25.0%
3/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Endocrine disorders
hypertriglycerides
25.0%
3/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Blood and lymphatic system disorders
platelet count decrease
25.0%
3/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Blood and lymphatic system disorders
anemia
16.7%
2/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Gastrointestinal disorders
constipation
16.7%
2/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Nervous system disorders
dizziness
16.7%
2/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Psychiatric disorders
agitation
8.3%
1/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Blood and lymphatic system disorders
aspartate Aminotransferase increased
8.3%
1/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Musculoskeletal and connective tissue disorders
chest wall pain
8.3%
1/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)
Respiratory, thoracic and mediastinal disorders
cough
8.3%
1/12 • From signing consent till final followup at 18 weeks (4 weeks after stopping study drug)

Additional Information

Micheal Econs

Indiana Univerity School of Medicine

Phone: 317-274-1339

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place