Multidisciplinary Model to Guide Employment Amongst PLWSCI

NCT ID: NCT02582619

Last Updated: 2021-10-20

Basic Information

• Recruitment Status: COMPLETED
• Total Enrollment: 180 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2015-10-31
• Study Completion Date: 2021-08-31

Brief Summary

Spinal cord injury often results in complete or partial loss of functioning of the upper and or lower limbs, leading to the affected individual experiencing difficulties in performing activities of daily living. This in turn results in reduced participation in social, religious, recreational and economic activities (employment). Globally, there is a low employment rate (11-67%) amongst PLWSCI. In South Africa, according to Statistics South Africa, the unemployment rate of people with disabilities is estimated to be 25.2%. However, there is no information available on employment amongst PLWSCI in South Africa.

Furthermore, there is insufficient knowledge related to SCI in South Africa to enable a model to be developed and implemented. Data on the current SCI rehabilitation practices (with specific reference to vocational rehabilitation); employment status and factors (both personal and environmental); barriers and facilitators of employment amongst PLWSCI is limited. This information is needed to develop a return to work model for individuals with SCI in South Africa.

In South Africa, a legal framework exists that promotes the employment as well as assistance of people with disabilities in the workplace, such as: the Constitution of Republic of South Africa, 1996; the Employment Equity Act (EEA), 1998; the Promotion of Equality and Prevention of Unfair Discrimination Act (PEPUDA), 2000; Labour Relations Act (LRA), 1995; Skills Development Act (SDA), 1998; Public Service Act (PSA), 1994; Basic Conditions of Employment Act (BCEA), 1997 and the Integrated National Disability Strategy (2000). However, rehabilitation interventions provided in rehabilitation institutions are mainly medical, with limited attempts to prepare those with SCI to return to gainful employment. There is therefore a need for a well-coordinated, multi-sectorial, multi-disciplinary and multi-factorial rehabilitation intervention that will promote the employment of PLWSCI in South Africa.

Detailed Description

This is a cross-sectional study in which mixed methods will be used in various phases of the study. Mixed methods involve the collection and analysis of both quantitative and qualitative data in a single study. Data are collected concurrently or sequentially and integrated at one or more stages during the research process. This study will be divided into 3 phases with stages to answer the objectives.

Phase one of this study will attempt to answer objectives 1-3 of the study. Stage 1 will include a systematic review of literature to identify the most effective vocational rehabilitation interventions amongst PLWSCI. Stage 2 will determine rehabilitation services rendered to individual who sustain SCI in South Africa with an intention of identifying gaps in vocational rehabilitation practices by retrospectively analysing medical files. This phase will be concluded by a focus group to further explore current vocational rehabilitation practices rendered to PLWSCI (Stage3).

Phase two will answer objectives 4-5. Stage 1 of this phase will determine the employment status as well as factors that influence employment amongst PLWSCI. Stage 2 will determine the barriers and facilitators of employment amongst PLWSCI. Results obtained from phase 1 to 2, will be utilised to by the researcher to develop the proposed model.

The final phase will aim to develop, validate and refine the model. Stage 1 of this phase will include the researcher using the information gained in previous phases to develop the proposed model. The second stage will include a focus group to validate the content of the proposed model. The last stage will included obtaining consensus amongst the stakeholders regarding the structure and the content of the proposed model and subsequently refine it.

Conditions

Spinal Cord Injury

Study Design

• Observational Model Type: ECOLOGIC_OR_COMMUNITY
• Study Time Perspective: CROSS_SECTIONAL

Study Groups

Rehabilitation Professionals

Focus group consisting of rehabilitation professionals that will inform the study on vocational rehabilitation interventions rendered during acute to in-patient rehabilitation in KwaZulu-Natal.

Focus groups, semistructured interviews and Delphi rounds

Intervention Type: OTHER

People living with Spinal Cord Injuries (PLWSCI)

Focus group consisting of PLWSCI that will inform the study on the perspective of the patient on vocational rehabilitation needs or desires during acute care and in-patient rehabilitation.

This group will inform the study on the employment rate amongst people living with spinal cord injuries as well as factors that influence employment.

This group will also inform the study on the perceived barriers and facilitators of employment

Focus groups, semistructured interviews and Delphi rounds

Intervention Type: OTHER

Stakeholders

Representatives from the following departments or organisations will be invited to participate in the interviews and focus groups:

Government Departments:

Education Social Development Health Labour Transport

Private Companies:

Insurance Companies and Health Risk Management companies Non-profit Organisations QASA DPSA

Focus groups, semistructured interviews and Delphi rounds

Intervention Type: OTHER

Experts

A delphi technique will be used to get an expert opinion and consensus on the aspects of the model to be developed.

Focus groups, semistructured interviews and Delphi rounds

Intervention Type: OTHER

Interventions

Focus groups, semistructured interviews and Delphi rounds

Intervention Type: OTHER

Eligibility Criteria

Inclusion Criteria

• Rehabilitation professionals who are directly involved in the management of individuals who sustain SCI and have more than 1 year of working experience post community service.

• Person who sustained injury to the spine, resulting in permanent neurological damage (complete or incomplete) and must reside in a rural, peri-urban and urban.

• PLWSCI Injury to who resides in a rural, peri-urban and urban.
• Rehabilitation professionals who are directly involved in the management of individuals who sustain SCI and have more than 2 years of experience post community service.
• An individual who is full time employed in a supervisory and managerial capacity in both private and public sector, currently have subordinates who are PLWSCI.
• A representative from the Disability Section of an insurance company that is the member of the LOA.

Exclusion Criteria

• Rehabilitation professionals who are not directly involved in the management of individuals who sustain SCI and have less than 1 year working experience post community service.

Phase Two :

• People living with spinal cord injuries who cannot verbally communicate

• PLWSCI who cannot verbally communicate.
• Rehabilitation professionals who are not directly involved in the management of individuals who sustain SCI and have less than two years of experience post community service.
• An individual who is employed on a part-time basis and not in supervisory or managerial positions and have no subordinates who are PLWSCI.

• Minimum Eligible Age: 16 Years
• Maximum Eligible Age: 65 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: No

Sponsors

University of KwaZulu

OTHER

Sponsor Role: lead

Responsible Party

Ntsikelelo Pefile

Mr

Responsibility Role: PRINCIPAL_INVESTIGATOR

Principal Investigators

Ntsikelelo Pefile, MScMedSc

Role: PRINCIPAL_INVESTIGATOR

University of KwaZulu

Locations

King Dinizulu Hospital

Durban, KwaZulu-Natal, South Africa

Phoenix Spinal Rehabilitation Centre

Durban, KwaZulu-Natal, South Africa

Greys Hospital

Pietermaritzburg, KwaZulu-Natal, South Africa

Countries

South Africa

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Other Identifiers

BE499/14

Identifier Type: -

Identifier Source: org_study_id