Trial Outcomes & Findings for Contacting Authors to Retrieve Individual Patient Data (NCT NCT02569411)

NCT ID: NCT02569411

Last Updated: 2020-07-01

Results Overview

We contacted authors of eligible studies from June 2016 to October 2016. Authors were first contacted in June 2016, where we sent: a) an email requesting their IPD, b) email reminders (4 in total) at 2, 6, 10, and 14-week intervals after the initial email, c) reminders by post in week 7, and d) reminders via telephone in week 15.

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

129 participants

Primary outcome timeframe

June 2016 - October 2016

Results posted on

2020-07-01

Participant Flow

Authors identified in randomized controlled trials that were eligible for inclusion in two systematic review and network meta-analysis papers.

Authors whose contact information was unidentifiable were excluded.

Participant milestones

Participant milestones
Measure
No Incentive (Control)
Those allocated to the control group will be contacted using the same approaches as the intervention arm for their participation to share individual patient data of their study. No financial incentive is provided.
Financial Incentive (Intervention)
Those allocated to the intervention group will be contacted by email, mail, and phone to share individual patient data from their study. They will be given a financial incentive (an offer of a $100 CAD gift card at first contact (or equivalent amount in the author's relevant currency) for their participation to share individual patient data of their study).
Overall Study
STARTED
65
64
Overall Study
COMPLETED
0
0
Overall Study
NOT COMPLETED
65
64

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Contacting Authors to Retrieve Individual Patient Data

Baseline characteristics by cohort

Baseline data not reported

PRIMARY outcome

Timeframe: June 2016 - October 2016

Population: None of the authors in either arm shared individual patient data from their study.

We contacted authors of eligible studies from June 2016 to October 2016. Authors were first contacted in June 2016, where we sent: a) an email requesting their IPD, b) email reminders (4 in total) at 2, 6, 10, and 14-week intervals after the initial email, c) reminders by post in week 7, and d) reminders via telephone in week 15.

Outcome measures

Outcome measures
Measure
No Incentive (Control)
n=65 Participants
Those allocated to the control group will be contacted using the same approaches as the intervention arm for their participation to share individual patient data of their study. No financial incentive is provided.
Financial Incentive (Intervention)
n=64 Participants
Those allocated to the intervention group will be contacted by email, mail, and phone to share individual patient data from their study. They will be given a financial incentive (an offer of a $100 CAD gift card at first contact (or equivalent amount in the author's relevant currency) for their participation to share individual patient data of their study).
Proportion of Authors Who Provided Complete IPD
0 Participants
0 Participants

SECONDARY outcome

Timeframe: June 2016 - October 2016

Population: None of the authors in either arm shared individual patient data from their study therefore no data collected for this Outcome Measure.

We contacted authors of eligible studies from June 2016 to October 2016. Authors were first contacted in June 2016, where we sent: a) an email requesting their IPD, b) email reminders (4 in total) at 2, 6, 10, and 14-week intervals after the initial email, c) reminders by post in week 7, and d) reminders via telephone in week 15.

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: June 2016 - October 2016

Population: None of the authors in either arm shared individual patient data from their study therefore no data collected for this Outcome Measure

We contacted authors of eligible studies from June 2016 to October 2016. Authors were first contacted in June 2016, where we sent: a) an email requesting their IPD, b) email reminders (4 in total) at 2, 6, 10, and 14-week intervals after the initial email, c) reminders by post in week 7, and d) reminders via telephone in week 15.

Outcome measures

Outcome data not reported

Adverse Events

No Incentive (Control)

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Financial Incentive (Intervention)

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Areti Angeliki Veroniki

St. Michael's Hospital

Phone: 416-360-4000

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place