Real World Outcomes Study of Hepatic Encephalopathy Patients' Experience on Rifaximin (PROSPER)

NCT ID: NCT02488993

Last Updated: 2018-12-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

389 participants

Study Classification

OBSERVATIONAL

Study Start Date

2015-06-30

Study Completion Date

2018-09-29

Brief Summary

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This study evaluates hepatic encephalopathy (HE) and liver-related hospitalization rates and duration of stay in patients with HE treated with rifaximin-α 550mg compared to patients receiving other therapies.

This registry study aims to comprehensively and rigorously characterize the impact of rifaximin-α 550 mg on hospitalization, clinical safety and effectiveness outcomes, and quality of life in patients with HE in Europe and Australasia.

Detailed Description

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Whilst clinical trial data and a few small observational studies have demonstrated the potential of rifaximin-α 550 mg to reduce overt HE episodes and hospitalizations, there is a need by physicians, commissioners and other healthcare professionals caring for patients with HE to understand the impact of management with rifaximin-α 550 mg on healthcare resource use in real world clinical practice. Currently available data are from evaluations undertaken in single UK centres. In addition, the overall burden of HE has not been well characterized, including the impact on patient quality of life, or impaired productivity incurred by patients' caregivers. This multinational, multicentre disease registry study aims to comprehensively and rigorously characterize the impact of rifaximin-α 550 mg on hospitalization, clinical safety and effectiveness outcomes, and quality of life in patients with HE in Europe and Australasia. The study will expand upon previous work in the following ways:

* Provide characterization of the burden of HE and the impact of rifaximin-α 550 mg in a real world setting, to complement RCT evidence;
* Allow for more rigorous characterization of the impact of rifaximin-α 550 mg on patient outcomes for individuals with HE over time. This will be achieved by prospectively enrolling patients not taking rifaximin-α 550 mg to characterize outcomes over time in the absence of treatment, and by assessing the quality of life and workplace productivity implications of HE.

There will be no change to the management of patients for the purposes of this study beyond normal clinical practice.

Conditions

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Hepatic Encephalopathy

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

OTHER

Study Groups

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Prospective Phase Rifaximin-α 550mg

Prospective data collection of patients treated with Rifaximin-α 550mg from point of study entry.

Prospective Phase Rifaximin-α 550mg

Intervention Type OTHER

Prospective data collection of all patients receiving rifaximin-α 550 mg from the point of study entry.

Prospective Phase No Rifaximin-α 550mg

Prospective data collection of patients NOT treated with Rifaximin-α 550mg from point of study entry.

Prospective Phase No Rifaximin-α 550mg

Intervention Type OTHER

Prospective data collection of all patients not receiving rifaximin-α 550 mg from the point of study entry.

Retrospective Phase

Review of medical records and electronic hospital admissions data for patients with HE who have not received Rifaximin-α 550mg within the previous 12 months.

Retrospective Phase

Intervention Type OTHER

Review of medical records and electronic hospital admissions data for patients with HE who have not received rifaximin-α 550 mg during the previous 12 months.

Interventions

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Prospective Phase Rifaximin-α 550mg

Prospective data collection of all patients receiving rifaximin-α 550 mg from the point of study entry.

Intervention Type OTHER

Prospective Phase No Rifaximin-α 550mg

Prospective data collection of all patients not receiving rifaximin-α 550 mg from the point of study entry.

Intervention Type OTHER

Retrospective Phase

Review of medical records and electronic hospital admissions data for patients with HE who have not received rifaximin-α 550 mg during the previous 12 months.

Intervention Type OTHER

Other Intervention Names

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TARGAXAN XIFAXAN

Eligibility Criteria

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Inclusion Criteria

* Diagnosis of cirrhosis;
* Patient is ≥18 years of age;
* Patient is enrolled within 12 weeks of resolution of an episode of overt HE associated with a hospital visit;
* Patient is able to provide informed consent to participate in the study (individually or via caregiver);
* Patient meets clinical eligibility to receive rifaximin-α 550 mg in the opinion of the participating physician, regardless of HE treatment actually received.

Exclusion Criteria

* West Haven Conn score of ≥2 at time of study entry (i.e. at provision of informed consent);
* Mental health disorder such as dementia or psychosis which makes diagnoses of HE questionable;
* Prior treatment with rifaximin in the 12 months before qualifying episode of overt HE associated with a hospital visit;
* Contraindications to the use of rifaximin-α as per local summary of product characteristics
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Norgine

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Richard Ng

Role: STUDY_DIRECTOR

Norgine

Locations

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Queen Elizabeth Hospital

Birmingham, , United Kingdom

Site Status

Countries

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United Kingdom

References

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Zacharias HD, Kamel F, Tan J, Kimer N, Gluud LL, Morgan MY. Rifaximin for prevention and treatment of hepatic encephalopathy in people with cirrhosis. Cochrane Database Syst Rev. 2023 Jul 19;7(7):CD011585. doi: 10.1002/14651858.CD011585.pub2.

Reference Type DERIVED
PMID: 37467180 (View on PubMed)

Krag A, Schuchmann M, Sodatonou H, Pilot J, Whitehouse J, Strasser SI, Hudson M. Design of the Prospective Real-world Outcomes Study of hepatic encephalopathy Patients' Experience on Rifaximin-alpha (PROSPER): an observational study among 550 patients. Hepatol Med Policy. 2018 Jan 8;3:4. doi: 10.1186/s41124-017-0029-9. eCollection 2018.

Reference Type DERIVED
PMID: 30288327 (View on PubMed)

Other Identifiers

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ZZ2014GL03

Identifier Type: -

Identifier Source: org_study_id