Evaluating a Novel Onco-genetic BRCA Testing Counselling Model Among Patients With Ovarian Cancer

NCT ID: NCT02406235

Last Updated: 2017-09-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

710 participants

Study Classification

OBSERVATIONAL

Study Start Date

2015-04-21

Study Completion Date

2016-09-30

Brief Summary

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The overall objective of this study is to assess turnaround time, pre-BRCA test onco-genetic counselling quality and satisfaction with a new onco-genetic BRCA testing model.

Detailed Description

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This will be a prospective observational study of patients diagnosed with epithelial ovarian/fallopian tube/primary peritoneal cancer prior to, or at enrolment in this study. The study is descriptive in nature and does not attempt to test any specific a priori hypotheses.

Clinical teams (physicians and nurses) will be trained to discuss BRCA testing with ovarian cancer patients who meet study criteria and consent to participate in the study. Patients will be recruited from participating sites in North America and Europe. Patients selected per the study inclusion and exclusion criteria will be consented for participation in the study. Patients will be recruited during an estimated 12 month period and participating patients will be followed from enrollment in the study until provision of BRCA test results, final genetics counselling, and completion of satisfaction survey or death. A case report form will be developed to collect information on the primary variable of interest (i.e., turnaround time), patient and disease characteristics, medical history, treatment patterns and outcome of the BRCA test. In addition, a survey will be developed to evaluate patient's assessment of pre- BRCA onco-genetic counseling quality and satisfaction with onco-genetic testing process.

Finally, surveys will be developed to evaluate oncologist (or oncology nurse) and genetic counselor's assessment of the processes associated with the onco-genetic testing pathway.

Conditions

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Epithelial Ovarian/Fallopian Tube/Primary Peritoneal Cancer

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* Patients diagnosed with epithelial ovarian/fallopian tube/primary peritoneal cancer
* Patients aged 18 years or older at ovarian cancer diagnosis
* Provision of written informed consent
* Patient is able to read, write, and understand the material presented to them as part of this study, per the discretion of the physician

Exclusion Criteria

* Patients with low grade epithelial ovarian cancer or non-epithelial ovarian cancer
* Patients enrolled in an interventional clinical trial for ovarian cancer or other malignancy at the time of conduct of this study
* Patients with BRCA testing any time prior to the study enrollment
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Optum, Inc.

INDUSTRY

Sponsor Role collaborator

AstraZeneca

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Research Site

San Francisco, California, United States

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Gainesville, Florida, United States

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Sarasota, Florida, United States

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Augusta, Georgia, United States

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Worcester, Massachusetts, United States

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Hackensack, New York, United States

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Lake Success, New York, United States

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Mineola, New York, United States

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The Bronx, New York, United States

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Chapel Hill, North Carolina, United States

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Providence, Rhode Island, United States

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Brescia, IT, Italy

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Genova, IT, Italy

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Milan, IT, Italy

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Modena, IT, Italy

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Napoli, IT, Italy

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Roma, IT, Italy

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Torino, IT, Italy

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A Coruña, SP, Spain

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Barcelona, SP, Spain

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Cáceres, SP, Spain

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Córdoba, SP, Spain

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Madrid, SP, Spain

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Murcia, SP, Spain

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Palma de Mallorca, SP, Spain

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Zaragoza, SP, Spain

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Countries

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United States Italy Spain

References

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Colombo N, Huang G, Scambia G, Chalas E, Pignata S, Fiorica J, Van Le L, Ghamande S, Gonzalez-Santiago S, Bover I, Grana Suarez B, Green A, Huot-Marchand P, Bourhis Y, Karve S, Blakeley C. Evaluation of a Streamlined Oncologist-Led BRCA Mutation Testing and Counseling Model for Patients With Ovarian Cancer. J Clin Oncol. 2018 May 1;36(13):1300-1307. doi: 10.1200/JCO.2017.76.2781. Epub 2018 Mar 20.

Reference Type DERIVED
PMID: 29558274 (View on PubMed)

Related Links

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Other Identifiers

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D0816R00006

Identifier Type: -

Identifier Source: org_study_id