Trial Outcomes & Findings for Impact of Active Choice on Advance Directive Completion Rates (NCT NCT02289105)

NCT ID: NCT02289105

Last Updated: 2017-01-27

Results Overview

We will analyze the effects of the active choice intervention on rates of completion.

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

1279 participants

Primary outcome timeframe

Baseline - up to 1 year

Results posted on

2017-01-27

Participant Flow

Participant milestones

Participant milestones
Measure
Mandatory Active Choice
The mandatory active choice group could choose to: complete an AD, confirm prior completion of an AD, or complete a form declining AD completion and indicate their reason(s) for doing so. Mandatory active choice: the mandatory active choice group, unlike the control group, could not simply skip the task. If they didn't want to complete an AD, they had to fill out a declination form.
Control
Participants in the control group could choose to: complete an AD, confirm prior AD completion, or skip the task.
Overall Study
STARTED
642
637
Overall Study
COMPLETED
642
637
Overall Study
NOT COMPLETED
0
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Impact of Active Choice on Advance Directive Completion Rates

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Mandatory Active Choice
n=642 Participants
The mandatory active choice group could choose to: complete an AD, confirm prior completion of an AD, or complete a form declining AD completion and indicate their reason(s) for doing so. Mandatory active choice: the mandatory active choice group, unlike the control group, could not simply skip the task. If they didn't want to complete an AD, they had to fill out a declination form.
Control
n=637 Participants
Participants in the control group could choose to: complete an AD, confirm prior AD completion, or skip the task.
Total
n=1279 Participants
Total of all reporting groups
Race/Ethnicity, Customized
Black
177 participants
n=5 Participants
167 participants
n=7 Participants
344 participants
n=5 Participants
Race/Ethnicity, Customized
Asian
51 participants
n=5 Participants
41 participants
n=7 Participants
92 participants
n=5 Participants
Race/Ethnicity, Customized
Mixed or Other
55 participants
n=5 Participants
50 participants
n=7 Participants
105 participants
n=5 Participants
Race/Ethnicity, Customized
Prefer not to answer or missing
26 participants
n=5 Participants
34 participants
n=7 Participants
60 participants
n=5 Participants
Region of Enrollment
United States
642 participants
n=5 Participants
637 participants
n=7 Participants
1279 participants
n=5 Participants
Employment Status
Full-time
464 participants
n=5 Participants
469 participants
n=7 Participants
933 participants
n=5 Participants
Employment Status
Part-time
178 participants
n=5 Participants
168 participants
n=7 Participants
346 participants
n=5 Participants
Highest level of education
Graduate Degree
115 participants
n=5 Participants
109 participants
n=7 Participants
224 participants
n=5 Participants
Highest level of education
College Degree
304 participants
n=5 Participants
298 participants
n=7 Participants
602 participants
n=5 Participants
Highest level of education
Some College
136 participants
n=5 Participants
133 participants
n=7 Participants
269 participants
n=5 Participants
Highest level of education
High School or Less
57 participants
n=5 Participants
51 participants
n=7 Participants
108 participants
n=5 Participants
Highest level of education
Missing
30 participants
n=5 Participants
46 participants
n=7 Participants
76 participants
n=5 Participants
Clinical Degree
No
500 participants
n=5 Participants
510 participants
n=7 Participants
1010 participants
n=5 Participants
Clinical Degree
Yes
142 participants
n=5 Participants
127 participants
n=7 Participants
269 participants
n=5 Participants
Age, Continuous
29 years
n=5 Participants
29 years
n=7 Participants
29 years
n=5 Participants
Sex/Gender, Customized
Male
446 participants
n=5 Participants
472 participants
n=7 Participants
918 participants
n=5 Participants
Sex/Gender, Customized
Female
186 participants
n=5 Participants
147 participants
n=7 Participants
333 participants
n=5 Participants
Sex/Gender, Customized
Prefer not to answer or missing
10 participants
n=5 Participants
18 participants
n=7 Participants
28 participants
n=5 Participants
Race/Ethnicity, Customized
White
333 participants
n=5 Participants
345 participants
n=7 Participants
678 participants
n=5 Participants

PRIMARY outcome

Timeframe: Baseline - up to 1 year

We will analyze the effects of the active choice intervention on rates of completion.

Outcome measures

Outcome measures
Measure
Mandatory Active Choice
n=642 Participants
The mandatory active choice group could choose to: complete an AD, confirm prior completion of an AD, or complete a form declining AD completion and indicate their reason(s) for doing so. Mandatory active choice: the mandatory active choice group, unlike the control group, could not simply skip the task. If they didn't want to complete an AD, they had to fill out a declination form.
Control
n=637 Participants
Participants in the control group could choose to: complete an AD, confirm prior AD completion, or skip the task.
Proportion of Participants That Select to Complete an Advance Directive
0.35 proportion of participants
Interval 0.31 to 0.39
0.20 proportion of participants
Interval 0.17 to 0.24

SECONDARY outcome

Timeframe: Baseline - up to 1 year

Outcome measures

Outcome measures
Measure
Mandatory Active Choice
n=642 Participants
The mandatory active choice group could choose to: complete an AD, confirm prior completion of an AD, or complete a form declining AD completion and indicate their reason(s) for doing so. Mandatory active choice: the mandatory active choice group, unlike the control group, could not simply skip the task. If they didn't want to complete an AD, they had to fill out a declination form.
Control
n=637 Participants
Participants in the control group could choose to: complete an AD, confirm prior AD completion, or skip the task.
Proportion of Participants Who Already Have ADs
.065 proportion of participants
.063 proportion of participants

SECONDARY outcome

Timeframe: Baseline - up to 1 year

This measures the proportion of participants who return a signed and printed copy of their AD of those who completed an AD online.

Outcome measures

Outcome measures
Measure
Mandatory Active Choice
n=642 Participants
The mandatory active choice group could choose to: complete an AD, confirm prior completion of an AD, or complete a form declining AD completion and indicate their reason(s) for doing so. Mandatory active choice: the mandatory active choice group, unlike the control group, could not simply skip the task. If they didn't want to complete an AD, they had to fill out a declination form.
Control
n=637 Participants
Participants in the control group could choose to: complete an AD, confirm prior AD completion, or skip the task.
Proportion of Participants Who Return a Signed AD
.078 proportion of participants
Interval 0.058 to 0.101
.039 proportion of participants
Interval 0.026 to 0.057

OTHER_PRE_SPECIFIED outcome

Timeframe: Baseline - up to 1 year

Outcome measures

Outcome data not reported

Adverse Events

Mandatory Active Choice

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Control

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Scott Halpern

Fostering Improvement in End-of-Life Decision Science Program

Phone: 215-5739461

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place