Trial Outcomes & Findings for Impact of Patient Activation and Engagement on Patient-Centered Outcomes of Care in ACOs (NCT NCT02287883)

NCT ID: NCT02287883

Last Updated: 2017-12-15

Results Overview

Patient Reported Social Functioning, scale 1 (always trouble or limited)-5 (never trouble or limited). Outcome measure is the mean of the change in scores reported by each patient between baseline (2015) and at one-year follow-up (2016).

Recruitment status

COMPLETED

Target enrollment

2176 participants

Primary outcome timeframe

1 year

Results posted on

2017-12-15

Participant Flow

Adult patients with diabetes and/or cardiovascular disease from sixteen primary care practice sites at two Accountable Care Organizations (ACOs) in the US (greater Los Angeles and Chicago areas) were surveyed about their patient reported outcomes (PROs), patient assessment of chronic illness care (PACIC) and patient activation and engagement (PAM).

Sixteen primary care practices at two ACOs in the US (greater Los Angeles and Chicago), were selected based on their responses to a 39-item questionnaire of their patient activation and engagement activities. 4168 eligible patients from these sites were included in the baseline survey. 2176 of these patients responded and were included in the study

Participant milestones

Participant milestones
Measure
Patients at High PAE Practices (n=8 Practices)
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with high implementation of patient activation and engagement (PAE) activities (top quartile).
Patients at Low PAE Practices (n=8 Practices)
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with low implementation of patient activation and engagement (PAE) activities (bottom quartile).
Overall Study
STARTED
1081
1095
Overall Study
One-year Follow-up Survey
622
669
Overall Study
COMPLETED
622
669
Overall Study
NOT COMPLETED
459
426

Reasons for withdrawal

Reasons for withdrawal
Measure
Patients at High PAE Practices (n=8 Practices)
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with high implementation of patient activation and engagement (PAE) activities (top quartile).
Patients at Low PAE Practices (n=8 Practices)
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with low implementation of patient activation and engagement (PAE) activities (bottom quartile).
Overall Study
Death
8
7
Overall Study
No longer eligible
222
182
Overall Study
Non-response to survey
229
237

Baseline Characteristics

Impact of Patient Activation and Engagement on Patient-Centered Outcomes of Care in ACOs

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Patients at High PAE Practices
n=1081 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with high implementation of patient activation and engagement (PAE) activities.
Patients at Low PAE Practices
n=1095 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with low implementation of patient activation and engagement (PAE) activities.
Total
n=2176 Participants
Total of all reporting groups
Age, Categorical
<=18 years
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Age, Categorical
Between 18 and 65 years
491 Participants
n=5 Participants
513 Participants
n=7 Participants
1004 Participants
n=5 Participants
Age, Categorical
>=65 years
590 Participants
n=5 Participants
582 Participants
n=7 Participants
1172 Participants
n=5 Participants
Sex: Female, Male
Female
599 Participants
n=5 Participants
592 Participants
n=7 Participants
1191 Participants
n=5 Participants
Sex: Female, Male
Male
482 Participants
n=5 Participants
503 Participants
n=7 Participants
985 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
371 Participants
n=5 Participants
358 Participants
n=7 Participants
729 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
668 Participants
n=5 Participants
699 Participants
n=7 Participants
1367 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
42 Participants
n=5 Participants
38 Participants
n=7 Participants
80 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
8 Participants
n=5 Participants
5 Participants
n=7 Participants
13 Participants
n=5 Participants
Race (NIH/OMB)
Asian
89 Participants
n=5 Participants
107 Participants
n=7 Participants
196 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
4 Participants
n=5 Participants
5 Participants
n=7 Participants
9 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
230 Participants
n=5 Participants
35 Participants
n=7 Participants
265 Participants
n=5 Participants
Race (NIH/OMB)
White
412 Participants
n=5 Participants
601 Participants
n=7 Participants
1013 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
22 Participants
n=5 Participants
27 Participants
n=7 Participants
49 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
316 Participants
n=5 Participants
315 Participants
n=7 Participants
631 Participants
n=5 Participants
Patient Activation Measure (PAM-13)
3.27 units on a scale
STANDARD_DEVIATION 0.45 • n=5 Participants
3.27 units on a scale
STANDARD_DEVIATION 0.44 • n=7 Participants
3.27 units on a scale
STANDARD_DEVIATION 0.45 • n=5 Participants
Patient Assessment of Chronic Illness Care (PACIC)
2.72 units on a scale
STANDARD_DEVIATION 0.83 • n=5 Participants
2.65 units on a scale
STANDARD_DEVIATION 0.84 • n=7 Participants
2.68 units on a scale
STANDARD_DEVIATION 0.83 • n=5 Participants
Patient Reported Outcomes Measurement Information System (PROMIS) Short Form 8a
2.37 units on a scale
STANDARD_DEVIATION 1.03 • n=5 Participants
2.34 units on a scale
STANDARD_DEVIATION 1.06 • n=7 Participants
2.35 units on a scale
STANDARD_DEVIATION 1.05 • n=5 Participants
Patient Reported Outcomes Measurement Information System (PROMIS) Short Form 12a
2.01 units on a scale
STANDARD_DEVIATION 0.89 • n=5 Participants
1.99 units on a scale
STANDARD_DEVIATION 0.88 • n=7 Participants
2.00 units on a scale
STANDARD_DEVIATION 0.88 • n=5 Participants
Patient Health Questionnaire 4 (PHQ-4)
1.55 units on a scale
STANDARD_DEVIATION 0.75 • n=5 Participants
1.51 units on a scale
STANDARD_DEVIATION 0.72 • n=7 Participants
1.53 units on a scale
STANDARD_DEVIATION 0.74 • n=5 Participants
Systolic Blood Pressure
133.11 mmHg
STANDARD_DEVIATION 14.99 • n=5 Participants
130.31 mmHg
STANDARD_DEVIATION 13.19 • n=7 Participants
131.70 mmHg
STANDARD_DEVIATION 14.18 • n=5 Participants
Diastolic Blood Pressure
76.14 mmHg
STANDARD_DEVIATION 8.65 • n=5 Participants
75.47 mmHg
STANDARD_DEVIATION 8.10 • n=7 Participants
75.80 mmHg
STANDARD_DEVIATION 8.39 • n=5 Participants
Low density lipoprotein cholesterol (LDL-C)
91.82 mg/dL
STANDARD_DEVIATION 32.27 • n=5 Participants
90.58 mg/dL
STANDARD_DEVIATION 31.50 • n=7 Participants
91.22 mg/dL
STANDARD_DEVIATION 31.89 • n=5 Participants
Hemoglobin A1c (HbA1c)
7.33 percentage
STANDARD_DEVIATION 1.63 • n=5 Participants
7.20 percentage
STANDARD_DEVIATION 1.49 • n=7 Participants
7.27 percentage
STANDARD_DEVIATION 1.57 • n=5 Participants

PRIMARY outcome

Timeframe: 1 year

Population: Patients who completed surveys at both baseline (2015) and at one year follow-up (2016).

Patient Reported Social Functioning, scale 1 (always trouble or limited)-5 (never trouble or limited). Outcome measure is the mean of the change in scores reported by each patient between baseline (2015) and at one-year follow-up (2016).

Outcome measures

Outcome measures
Measure
Patients at High PAE Practices
n=617 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with high implementation of patient activation and engagement (PAE) activities.
Patients at Low PAE Practices
n=674 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with low implementation of patient activation and engagement (PAE) activities.
PROMIS Short Form 8a
-0.05 units on a scale
Standard Deviation 0.83
-0.03 units on a scale
Standard Deviation 0.86

PRIMARY outcome

Timeframe: 1 year

Population: Patients completing a survey at both baseline (2015) and one-year follow-up (2016).

Patient-Reported Physical Functioning, scale 1 (unable to do activity) -5 (no difficulty). Outcome measure is the mean of the change in scores reported by each patient between baseline (2015) and at one-year follow-up (2016).

Outcome measures

Outcome measures
Measure
Patients at High PAE Practices
n=617 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with high implementation of patient activation and engagement (PAE) activities.
Patients at Low PAE Practices
n=674 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with low implementation of patient activation and engagement (PAE) activities.
PROMIS Short Form 12a
-0.07 units on a scale
Standard Deviation 0.51
-0.05 units on a scale
Standard Deviation 0.55

PRIMARY outcome

Timeframe: 1 year

Population: Patients who completed a survey at both baseline and at one-year follow-up.

Patient Reported Emotional Functioning, scale 1 (anxious or depressed nearly every day) -5 (not at all anxious or depressed). Outcome measure is the mean of the change in scores reported by each patient between baseline (2015) and at one-year follow-up (2016).

Outcome measures

Outcome measures
Measure
Patients at High PAE Practices
n=617 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with high implementation of patient activation and engagement (PAE) activities.
Patients at Low PAE Practices
n=674 Participants
Patients with diabetes or cardiovascular disease receiving care within two Accountable Care Organizations (ACOs) at practices with low implementation of patient activation and engagement (PAE) activities.
PHQ-4
0.03 units on a scale
Standard Deviation 0.62
-0.04 units on a scale
Standard Deviation 0.57

Adverse Events

Patients at High PAE Practices

Serious events: 0 serious events
Other events: 0 other events
Deaths: 14 deaths

Patients at Low PAE Practices

Serious events: 0 serious events
Other events: 0 other events
Deaths: 14 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Patricia Ramsay, Project Drector

University of California, Berkeley

Phone: (510)643-8063

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place