Trial Outcomes & Findings for Psychosocial Outcomes and Contralateral Prophylactic Mastectomy (CPM) (NCT NCT02263014)

NCT ID: NCT02263014

Last Updated: 2025-11-26

Results Overview

Cancer-specific distress was measured with the Impact of Events Scale (IES) to assess 2 common categories of responses to stressful events: intrusion and avoidance. The IES scale consists of 15 items. For the intrusion category (7 items), participants are asked to rate the items on a 4 point scale: 0 (not at all), 1 (rarely), 3 (sometimes), and 5 (often) and the sum is the total score (complete range is 0 to 35). For the avoidance category (8 items), participants are asked to rate the items on a 4 point scale: 0 (not at all), 1 (rarely), 3 (sometimes), and 5 (often) and the sum is the total score (complete range 0 to 40). The total cancer-specific distress score is the sum of the total intrusion score and the total avoidance score (complete range is 0 to 75). The total distress score was averaged for surveys completed at each time point. Higher mean scores indicate greater cancer-specific distress.

Recruitment status

ACTIVE_NOT_RECRUITING

Target enrollment

345 participants

Primary outcome timeframe

Baseline to 12 months post surgery, up to 18 months. Survey administered at 1, 6, 12 months following surgery.

Results posted on

2025-11-26

Participant Flow

Recruitment Period: February 24, 2014 to December 31, 2015. All recruitment done at The University of Texas MD Anderson and Kelsey Seybold Clinics.

Of the 345 women enrolled some were excluded from the study, 37 were determined to be ineligible for participation (reasons included BRCA1/2 carrier, no breast surgery performed, no breast surgery at institutions, metastatic disease at diagnosis) and another 56 women did not complete the required baseline (pre-surgery) assessment.

Participant milestones

Participant milestones
Measure
CPM Group
Contralateral prophylactic mastectomy (CPM) along with scheduled mastectomy. Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after surgery.
No CPM Group
No CPM performed during scheduled mastectomy. Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after unilateral mastectomy or breast conserving surgery.
Overall Study
STARTED
44
208
Overall Study
COMPLETED
44
208
Overall Study
NOT COMPLETED
0
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Psychosocial Outcomes and Contralateral Prophylactic Mastectomy (CPM)

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
CPM Group
n=44 Participants
CPM along with scheduled mastectomy. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after the surgery.
No CPM Group
n=208 Participants
No CPM performed during scheduled mastectomy. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after unilateral mastectomy or breast conserving surgery.
Total
n=252 Participants
Total of all reporting groups
Age, Continuous
50.9 years
n=492 Participants
57.4 years
n=492 Participants
56 years
n=984 Participants
Sex: Female, Male
Female
44 Participants
n=492 Participants
208 Participants
n=492 Participants
252 Participants
n=984 Participants
Sex: Female, Male
Male
0 Participants
n=492 Participants
0 Participants
n=492 Participants
0 Participants
n=984 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
14 Participants
n=492 Participants
24 Participants
n=492 Participants
38 Participants
n=984 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
27 Participants
n=492 Participants
174 Participants
n=492 Participants
201 Participants
n=984 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
3 Participants
n=492 Participants
10 Participants
n=492 Participants
13 Participants
n=984 Participants
Region of Enrollment
United States
44 participants
n=492 Participants
208 participants
n=492 Participants
252 participants
n=984 Participants
Stage, Breast Cancer
0
25 percentage of participants
n=492 Participants
18.4 percentage of participants
n=492 Participants
19.4 percentage of participants
n=984 Participants
Stage, Breast Cancer
I
38.6 percentage of participants
n=492 Participants
38.2 percentage of participants
n=492 Participants
36.5 percentage of participants
n=984 Participants
Stage, Breast Cancer
II
27.3 percentage of participants
n=492 Participants
38.6 percentage of participants
n=492 Participants
36.9 percentage of participants
n=984 Participants
Stage, Breast Cancer
III
9.1 percentage of participants
n=492 Participants
6.8 percentage of participants
n=492 Participants
7.2 percentage of participants
n=984 Participants
Type of Surgery
Bilateral mastectomy
100 percentage of participants
n=492 Participants
0 percentage of participants
n=492 Participants
17.5 percentage of participants
n=984 Participants
Type of Surgery
Unilateral mastectomy
0 percentage of participants
n=492 Participants
32.7 percentage of participants
n=492 Participants
27.0 percentage of participants
n=984 Participants
Type of Surgery
Breast conserving surgery
0 percentage of participants
n=492 Participants
67.3 percentage of participants
n=492 Participants
55.6 percentage of participants
n=984 Participants

PRIMARY outcome

Timeframe: Baseline to 12 months post surgery, up to 18 months. Survey administered at 1, 6, 12 months following surgery.

Population: Two participants of the CPM Group (N=44) who had CPM after the date of their primary surgery were excluded from the longitudinal study analysis. \*The overall number of patients analyzed may differ from the total number analyzed at each time point since not all surveys were returned at each time point.

Cancer-specific distress was measured with the Impact of Events Scale (IES) to assess 2 common categories of responses to stressful events: intrusion and avoidance. The IES scale consists of 15 items. For the intrusion category (7 items), participants are asked to rate the items on a 4 point scale: 0 (not at all), 1 (rarely), 3 (sometimes), and 5 (often) and the sum is the total score (complete range is 0 to 35). For the avoidance category (8 items), participants are asked to rate the items on a 4 point scale: 0 (not at all), 1 (rarely), 3 (sometimes), and 5 (often) and the sum is the total score (complete range 0 to 40). The total cancer-specific distress score is the sum of the total intrusion score and the total avoidance score (complete range is 0 to 75). The total distress score was averaged for surveys completed at each time point. Higher mean scores indicate greater cancer-specific distress.

Outcome measures

Outcome measures
Measure
No CPM Group
n=208 Participants
No CPM performed during scheduled mastectomy. Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after unilateral mastectomy or breast conserving surgery.
CPM Group
n=42 Participants
CPM along with scheduled mastectomy. Questionnaires completed at baseline (pre-surgery) and at 1, 6, and 12 months post-surgery.
Psychosocial Outcomes of CPM Versus no CPM: Cancer Distress Score
Pre-Surgery
24.62 units on a scale
Standard Error 16.52
29.98 units on a scale
Standard Error 16.77
Psychosocial Outcomes of CPM Versus no CPM: Cancer Distress Score
1 Month Post-surgery
19.84 units on a scale
Standard Error 14.8
21.84 units on a scale
Standard Error 14.58
Psychosocial Outcomes of CPM Versus no CPM: Cancer Distress Score
6 Months Post-surgery
18.56 units on a scale
Standard Error 16.11
23.43 units on a scale
Standard Error 14.69
Psychosocial Outcomes of CPM Versus no CPM: Cancer Distress Score
12 Months Post-surgery
17.01 units on a scale
Standard Error 14.79
25.3 units on a scale
Standard Error 17.26

PRIMARY outcome

Timeframe: One to 12 months post surgery, up to 18 months. Survey administered at 1, 6, 12 months following surgery.

Population: Two participants of the CPM Group (N=44) who had CPM after the date of their primary surgery were excluded from the longitudinal study analysis. \*The overall number of patients analyzed may differ from the total number analyzed at each time point since not all surveys were returned at each time point.

The Satisfaction with Decision Scale (SWD) scale measures women's satisfaction with their surgery decision using the SWD six-item survey with a five-point scale where 1 is "strongly disagree" and 5 is "strongly agree" and the sum is the total score (complete range 6 to 30). The total satisfaction with decision score was averaged for surveys completed at each time point. Higher mean scores indicate greater satisfaction with the treatment decision.

Outcome measures

Outcome measures
Measure
No CPM Group
n=208 Participants
No CPM performed during scheduled mastectomy. Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after unilateral mastectomy or breast conserving surgery.
CPM Group
n=42 Participants
CPM along with scheduled mastectomy. Questionnaires completed at baseline (pre-surgery) and at 1, 6, and 12 months post-surgery.
Psychosocial Outcomes of CPM Versus no CPM: Satisfaction With Decision
12 month assessment
4.34 units on a scale
Standard Error 0.75
4.35 units on a scale
Standard Error 0.86
Psychosocial Outcomes of CPM Versus no CPM: Satisfaction With Decision
1 Month assessment
4.27 units on a scale
Standard Error 0.81
4.23 units on a scale
Standard Error 1.08
Psychosocial Outcomes of CPM Versus no CPM: Satisfaction With Decision
6 month assessment
4.33 units on a scale
Standard Error 0.76
4.18 units on a scale
Standard Error 1.06

Adverse Events

CPM Group

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

No CPM Group

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Abenaa Brewster, Professor, Clinical Cancer Prevention

The University of Texas (UT) MD Anderson Cancer Center

Phone: 713-792-7734

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place