Remote Access to Care, Everywhere, for Parkinson Disease

NCT ID: NCT02144220

Last Updated: 2017-02-23

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

277 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-03-31

Study Completion Date

2016-10-31

Brief Summary

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The primary objective of this study is to evaluate the feasibility, efficacy and the value of providing care to individuals with Parkinson disease directly into their homes. The specific aims are:

1. To demonstrate the feasibility of conducting remote evaluations of patients with Parkinson disease nationally;
2. To measure the impact of remote care on each patient's ability to improve his or her quality of life (QoL) and better manage his or her Parkinson disease; and
3. To assess the long-term acceptability to patients in receiving ongoing care remotely via telemedicine.

Detailed Description

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Conditions

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Parkinson Disease

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

HEALTH_SERVICES_RESEARCH

Blinding Strategy

NONE

Study Groups

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Virtual care visit

One-time virtual care visit for Parkinson disease.

Group Type EXPERIMENTAL

Virtual care visit

Intervention Type OTHER

Video-conferencing visit with a Parkinson disease specialist

Interventions

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Virtual care visit

Video-conferencing visit with a Parkinson disease specialist

Intervention Type OTHER

Other Intervention Names

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Telemedicine visit Virtual house call

Eligibility Criteria

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Inclusion Criteria

* Age greater than 30
* Self reported diagnosis of idiopathic Parkinson disease
* Ability to converse in English
* Ability and willingness to provide informed consent and complete study requirements
* Access to a non-public computer or similar devices with broadband internet.
* Located in New York, Maryland, Delaware, California, or Florida at time of virtual visit (or veterans with Parkinson disease anywhere in the U.S.)

Exclusion Criteria

* Any condition (e.g.prominent psychosis) that in the investigator's or coordinator's judgment would preclude participation.
* Concurrent enrollment in another telemedicine study.
Minimum Eligible Age

30 Years

Maximum Eligible Age

120 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Davis Phinney Foundation

OTHER

Sponsor Role collaborator

University of Rochester

OTHER

Sponsor Role lead

Responsible Party

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Ray Dorsey

Professor

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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E. Ray Dorsey, MD, MBA

Role: PRINCIPAL_INVESTIGATOR

University of Rochester

Locations

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University of California San Francisco/San Francisco VA Medical Center

San Francisco, California, United States

Site Status

University of Florida

Gainesville, Florida, United States

Site Status

University of Rochester Medical Center

Rochester, New York, United States

Site Status

Countries

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United States

References

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Dorsey ER, Venkataraman V, Grana MJ, Bull MT, George BP, Boyd CM, Beck CA, Rajan B, Seidmann A, Biglan KM. Randomized controlled clinical trial of "virtual house calls" for Parkinson disease. JAMA Neurol. 2013 May;70(5):565-70. doi: 10.1001/jamaneurol.2013.123.

Reference Type BACKGROUND
PMID: 23479138 (View on PubMed)

Venkataraman V, Donohue SJ, Biglan KM, Wicks P, Dorsey ER. Virtual visits for Parkinson disease: A case series. Neurol Clin Pract. 2014 Apr;4(2):146-152. doi: 10.1212/01.CPJ.0000437937.63347.5a.

Reference Type BACKGROUND
PMID: 24790799 (View on PubMed)

Dorsey ER, Constantinescu R, Thompson JP, Biglan KM, Holloway RG, Kieburtz K, Marshall FJ, Ravina BM, Schifitto G, Siderowf A, Tanner CM. Projected number of people with Parkinson disease in the most populous nations, 2005 through 2030. Neurology. 2007 Jan 30;68(5):384-6. doi: 10.1212/01.wnl.0000247740.47667.03. Epub 2006 Nov 2.

Reference Type BACKGROUND
PMID: 17082464 (View on PubMed)

Dorsey ER, George BP, Leff B, Willis AW. The coming crisis: obtaining care for the growing burden of neurodegenerative conditions. Neurology. 2013 May 21;80(21):1989-96. doi: 10.1212/WNL.0b013e318293e2ce. Epub 2013 Apr 24.

Reference Type BACKGROUND
PMID: 23616157 (View on PubMed)

Willis AW, Schootman M, Evanoff BA, Perlmutter JS, Racette BA. Neurologist care in Parkinson disease: a utilization, outcomes, and survival study. Neurology. 2011 Aug 30;77(9):851-7. doi: 10.1212/WNL.0b013e31822c9123. Epub 2011 Aug 10.

Reference Type BACKGROUND
PMID: 21832214 (View on PubMed)

Willis AW, Schootman M, Tran R, Kung N, Evanoff BA, Perlmutter JS, Racette BA. Neurologist-associated reduction in PD-related hospitalizations and health care expenditures. Neurology. 2012 Oct 23;79(17):1774-80. doi: 10.1212/WNL.0b013e3182703f92. Epub 2012 Oct 10.

Reference Type BACKGROUND
PMID: 23054239 (View on PubMed)

The European Parkinson's Disease Association. The european parkinson's disease standards of care consensus statement. http://www.kompetenznetzparkinson.de/EPDA_Parkinson_s_Standard_nsus_Statement_Vol_I.pdf>2013.

Reference Type BACKGROUND

Biglan KM, Voss TS, Deuel LM, Miller D, Eason S, Fagnano M, George BP, Appler A, Polanowicz J, Viti L, Smith S, Joseph A, Dorsey ER. Telemedicine for the care of nursing home residents with Parkinson's disease. Mov Disord. 2009 May 15;24(7):1073-6. doi: 10.1002/mds.22498.

Reference Type BACKGROUND
PMID: 19353687 (View on PubMed)

Dorsey ER, Deuel LM, Voss TS, Finnigan K, George BP, Eason S, Miller D, Reminick JI, Appler A, Polanowicz J, Viti L, Smith S, Joseph A, Biglan KM. Increasing access to specialty care: a pilot, randomized controlled trial of telemedicine for Parkinson's disease. Mov Disord. 2010 Aug 15;25(11):1652-9. doi: 10.1002/mds.23145.

Reference Type BACKGROUND
PMID: 20533449 (View on PubMed)

Korn RE, Wagle Shukla A, Katz M, Keenan HT, Goldenthal S, Auinger P, Zhu W, Dodge M, Rizer K, Achey MA, Byrd E, Barbano R, Richard I, Andrzejewski KL, Schwarz HB, Dorsey ER, Biglan KM, Kang G, Kanchana S, Rodriguez R, Tanner CM, Galifianakis NB. Virtual visits for Parkinson disease: A multicenter noncontrolled cohort. Neurol Clin Pract. 2017 Aug;7(4):283-295. doi: 10.1212/CPJ.0000000000000371.

Reference Type DERIVED
PMID: 28840919 (View on PubMed)

Other Identifiers

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RSRB-50627

Identifier Type: -

Identifier Source: org_study_id

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