Trial Outcomes & Findings for Study of Ataluren (PTC124) in Cystic Fibrosis (NCT NCT02107859)

NCT ID: NCT02107859

Last Updated: 2020-03-25

Results Overview

AE: any untoward medical occurrence in a participant who received study drug without regard to possibility of causal relationship. Severity of an AE was classified as: mild (does not interfere with usual function), moderate (interferes to some extent with usual function), severe (interferes significantly with usual function), life threatening (results in potential threat to life), and fatal AEs. Drug-related AEs: AEs with a possible or probable relationship to study drug. Serious AEs: death, a life-threatening AE, inpatient hospitalization or prolongation of existing hospitalization, persistent or significant disability or incapacity, a congenital anomaly or birth defect, or an important medical event that jeopardized participant and required medical intervention. TEAE: AE that occurred or worsened from first dose of study drug to 4 weeks after last dose of study drug. A summary of other non-serious AEs and all serious AEs, regardless of causality is located in Reported AE section.

Recruitment status

TERMINATED

Study phase

PHASE3

Target enrollment

61 participants

Primary outcome timeframe

Baseline (Day 1) up to end of study (Week 196)

Results posted on

2020-03-25

Participant Flow

Participants with nonsense mutation cystic fibrosis (nmCF) who had completed the double-blind study PTC124-GD-009-CF (NCT00803205) were enrolled and treated in this open-label extension study.

On 2 March 2017, it was announced that the Phase 3 double-blind study PTC124-GD-021-CF (NCT02139306) did not achieve its primary or secondary endpoints. Based on these results, clinical development of ataluren in cystic fibrosis was discontinued and this ongoing open-label extension study was closed.

Participant milestones

Participant milestones
Measure
Ataluren
Participants received ataluren suspension orally 3 times a day (TID), 10 milligrams/kilogram (mg/kg) at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Overall Study
STARTED
61
Overall Study
As-treated Population
61
Overall Study
Intent-to-treat (ITT) Population
60
Overall Study
COMPLETED
0
Overall Study
NOT COMPLETED
61

Reasons for withdrawal

Reasons for withdrawal
Measure
Ataluren
Participants received ataluren suspension orally 3 times a day (TID), 10 milligrams/kilogram (mg/kg) at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Overall Study
Withdrawal by Subject
14
Overall Study
Adverse Event
3
Overall Study
Study closure
41
Overall Study
Other than specified
3

Baseline Characteristics

Study of Ataluren (PTC124) in Cystic Fibrosis

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Ataluren
n=61 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Age, Continuous
27.5 years
STANDARD_DEVIATION 10.73 • n=5 Participants
Sex: Female, Male
Female
34 Participants
n=5 Participants
Sex: Female, Male
Male
27 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
1 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
60 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Race/Ethnicity, Customized
White-White/Caucasian
61 Participants
n=5 Participants

PRIMARY outcome

Timeframe: Baseline (Day 1) up to end of study (Week 196)

Population: As-treated population included all participants who received at least 1 dose of ataluren.

AE: any untoward medical occurrence in a participant who received study drug without regard to possibility of causal relationship. Severity of an AE was classified as: mild (does not interfere with usual function), moderate (interferes to some extent with usual function), severe (interferes significantly with usual function), life threatening (results in potential threat to life), and fatal AEs. Drug-related AEs: AEs with a possible or probable relationship to study drug. Serious AEs: death, a life-threatening AE, inpatient hospitalization or prolongation of existing hospitalization, persistent or significant disability or incapacity, a congenital anomaly or birth defect, or an important medical event that jeopardized participant and required medical intervention. TEAE: AE that occurred or worsened from first dose of study drug to 4 weeks after last dose of study drug. A summary of other non-serious AEs and all serious AEs, regardless of causality is located in Reported AE section.

Outcome measures

Outcome measures
Measure
Ataluren
n=61 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Any TEAEs
61 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Mild AEs
4 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Moderate AEs
26 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Severe AEs
30 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Life-threatening AEs
0 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Fatal AEs
1 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
AEs unrelated to ataluren
35 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
AEs unlikely related to ataluren
12 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
AEs possible related to ataluren
13 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
AEs probable related to ataluren
1 Participants
Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
Serious TEAEs
36 Participants

PRIMARY outcome

Timeframe: Baseline (Day 1) up to end of study (Week 196)

Population: As-treated population included all participants who received at least 1 dose of ataluren.

Laboratory parameters tests included hematology, biochemistry assay (hepatic, renal, and serum electrolyte values), adrenal assays, and urinalysis. Clinical significance was defined as per investigator's judgement.

Outcome measures

Outcome measures
Measure
Ataluren
n=61 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Number of Participants With Clinically Significant Laboratory Abnormalities
0 Participants

SECONDARY outcome

Timeframe: Baseline, Week 192

Population: ITT population included all participants who had at least 1 post-baseline efficacy assessment. Here, 'Overall number of participants analyzed' signifies participants evaluable for this outcome measure. 'Number analyzed' signifies participants evaluable at specified timepoint.

FEV1 is the volume of air that can forcibly be blown out in one second, after full inspiration. Percent of predicted FEV1 = (observed value)/(predicted value) \* 100%. Change from baseline in percent predicted FEV1 at the end of treatment was reported.

Outcome measures

Outcome measures
Measure
Ataluren
n=59 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Change From Baseline in Percent Predicted Forced Expiratory Volume in 1 Second (FEV1) at the End of Treatment (Week 192), as Assessed by Spirometry
Baseline
56.203 percentage of predicted FEV1
Standard Deviation 17.2964
Change From Baseline in Percent Predicted Forced Expiratory Volume in 1 Second (FEV1) at the End of Treatment (Week 192), as Assessed by Spirometry
Change at Week 192
-1.214 percentage of predicted FEV1
Standard Deviation 3.6384

SECONDARY outcome

Timeframe: Baseline up to Week 192

Population: ITT population included all participants who had at least 1 post-baseline efficacy assessment.

The modified Fuchs' criteria defined exacerbation as the presence of at least 4 of the following 12 Fuchs' signs and symptoms without the requirement for treatment with antibiotics: change in sputum; new or increased hemoptysis; increased cough; increased dyspnea; fatigue; temperature greater than (\>) 38 degrees celsius (°C); anorexia; sinus pain; change in sinus discharge; change in physical examination of the chest; decrease in pulmonary function by 10 percent or more from a previously recorded value; or radiographic changes indicative of pulmonary function.

Outcome measures

Outcome measures
Measure
Ataluren
n=60 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Percentage of Participants With Pulmonary Exacerbation, As Assessed by Modified Fuchs Criteria
68.3 percentage of participants

SECONDARY outcome

Timeframe: Baseline up to Week 192

Population: ITT population included all participants who had at least 1 post-baseline efficacy assessment.

The expanded Fuchs' criteria defined exacerbation as the presence of at least 4 of the following 12 Fuchs' signs and symptoms requiring any form of antibiotic treatment (inhaled, oral, or intravenous): change in sputum; new or increased hemoptysis; increased cough; increased dyspnea; fatigue; temperature \>38°C; anorexia; sinus pain; change in sinus discharge; change in physical examination of the chest; decrease in pulmonary function by 10 percent or more from a previously recorded value; or radiographic changes indicative of pulmonary function.

Outcome measures

Outcome measures
Measure
Ataluren
n=60 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Percentage of Participants With Pulmonary Exacerbation, As Assessed by Expanded Fuchs' Criteria
68.3 percentage of participants

SECONDARY outcome

Timeframe: Baseline up to Week 192

Population: ITT population included all participants who had at least 1 post-baseline efficacy assessment.

The Classic Fuchs' criteria defined exacerbation as the presence of at least 4 of the following 12 Fuchs' signs and symptoms requiring treatment with parenteral antibiotics: change in sputum; new or increased hemoptysis; increased cough; increased dyspnea; fatigue; temperature \>38°C; anorexia; sinus pain; change in sinus discharge; change in physical examination of the chest; decrease in pulmonary function by 10 percent or more from a previously recorded value; or radiographic changes indicative of pulmonary function.

Outcome measures

Outcome measures
Measure
Ataluren
n=60 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Percentage of Participants With Pulmonary Exacerbation, As Assessed by Classic Fuchs' Criteria
58.3 percentage of participants

SECONDARY outcome

Timeframe: Baseline, Week 196

Population: As-treated population included all participants who received at least 1 dose of ataluren. Here, 'Overall number of participants analyzed' signifies participants evaluable for this outcome measure. 'Number analyzed' signifies participants evaluable for specified categories.

ECG parameters included RR duration, PR duration, QRS duration, QT duration, QTCB (Bazett's correction formula) duration, QTCF (Fridericia's correction formula) duration.

Outcome measures

Outcome measures
Measure
Ataluren
n=59 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Baseline: RR duration
828.17 miiliseconds
Standard Deviation 132.15
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Change at Week 196: RR duration
-14.27 miiliseconds
Standard Deviation 115.62
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Baseline: PR duration
145.02 miiliseconds
Standard Deviation 19.29
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Change at Week 196: PR duration
-2.69 miiliseconds
Standard Deviation 12.25
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Baseline: QRS duration
83.90 miiliseconds
Standard Deviation 8.00
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Change at Week 196: QRS duration
0.33 miiliseconds
Standard Deviation 6.12
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Baseline: QT duration
370.71 miiliseconds
Standard Deviation 28.11
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Change at Week 196: QT duration
-4.38 miiliseconds
Standard Deviation 25.63
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Baseline: QTCB duration
408.92 miiliseconds
Standard Deviation 22.05
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Change at Week 196: QTCB duration
-0.71 miiliseconds
Standard Deviation 17.96
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Baseline: QTCF duration
395.47 miiliseconds
Standard Deviation 19.23
Change From Baseline in 12-Lead Electrocardiogram (ECG) Parameters at Final Visit (Week 196)
Change at Week 196: QTCF duration
-2.27 miiliseconds
Standard Deviation 17.13

SECONDARY outcome

Timeframe: Baseline, Week 196

Population: As-treated population included all participants who received at least 1 dose of ataluren. Here, 'Overall number of participants analyzed' signifies participants evaluable for this outcome measure. 'Number analyzed' signifies participants evaluable for specified categories.

Heart rate was measured using 12-lead ECG.

Outcome measures

Outcome measures
Measure
Ataluren
n=59 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Change From Baseline in Heart Rate at Final Visit (Week 196), as Assessed by 12-Lead ECG
Baseline
74.31 beats/minute
Standard Deviation 12.06
Change From Baseline in Heart Rate at Final Visit (Week 196), as Assessed by 12-Lead ECG
Change at Week 196
2.04 beats/minute
Standard Deviation 10.11

SECONDARY outcome

Timeframe: Baseline, Week 196

Population: As-treated population included all participants who received at least 1 dose of ataluren. Here, 'Number analyzed' signifies participants evaluable for specified categories.

Vital Signs included systolic blood pressure (SBP) and diastolic blood pressure (DBP).

Outcome measures

Outcome measures
Measure
Ataluren
n=61 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Change From Baseline in Vital Signs at Final Visit (Week 196)
Baseline: SBP
114.8 millimeters of mercury (mmHg)
Standard Deviation 9.10
Change From Baseline in Vital Signs at Final Visit (Week 196)
Change at Week 196: SBP
0.6 millimeters of mercury (mmHg)
Standard Deviation 12.62
Change From Baseline in Vital Signs at Final Visit (Week 196)
Baseline: DBP
71.2 millimeters of mercury (mmHg)
Standard Deviation 8.93
Change From Baseline in Vital Signs at Final Visit (Week 196)
Change at Week 196: DBP
-0.3 millimeters of mercury (mmHg)
Standard Deviation 9.93

OTHER_PRE_SPECIFIED outcome

Timeframe: Baseline, Week 192

Population: ITT population included all participants who had at least 1 post-baseline efficacy assessment. Here, 'Overall number of participants analyzed' signifies participants evaluable for this outcome measure. 'Number analyzed' signifies participants evaluable at specified timepoint.

FVC is the volume of air that can forcibly be blown out after full inspiration in the upright position. Percent of predicted FVC = (observed value)/(predicted value) \* 100%. Change from baseline in percent predicted FVC at the end of treatment was reported.

Outcome measures

Outcome measures
Measure
Ataluren
n=59 Participants
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Change From Baseline in Percent Predicted Forced Vital Capacity (FVC) at the End of Treatment (Week 192), as Assessed by Spirometry
Baseline
73.576 percentage of predicted FVC
Standard Deviation 14.6552
Change From Baseline in Percent Predicted Forced Vital Capacity (FVC) at the End of Treatment (Week 192), as Assessed by Spirometry
Change at Week 192
-2.286 percentage of predicted FVC
Standard Deviation 4.5722

OTHER_PRE_SPECIFIED outcome

Timeframe: Baseline, Week 192

Population: Due to change in planned analysis FEV25-75 was not calculated and summarized.

FEF25-75 is the forced expiratory flow between 25 and 75% of vital capacity.

Outcome measures

Outcome data not reported

Adverse Events

Ataluren

Serious events: 36 serious events
Other events: 61 other events
Deaths: 1 deaths

Serious adverse events

Serious adverse events
Measure
Ataluren
n=61 participants at risk
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Infections and infestations
Appendicitis
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Cellulitis
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Clostridium difficile infection
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Device related infection
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Infective pulmonary exacerbation of cystic fibrosis
44.3%
27/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Viral upper respiratory tract infection
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Respiratory, thoracic and mediastinal disorders
Dyspnoea
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Respiratory, thoracic and mediastinal disorders
Haemoptysis
11.5%
7/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Respiratory, thoracic and mediastinal disorders
Pneumothorax
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Respiratory, thoracic and mediastinal disorders
Respiratory failure
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Constipation
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Distal ileal obstruction syndrome
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Distal intestinal obstruction syndrome
4.9%
3/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Intestinal obstruction
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Investigations
Blood creatine increased
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Investigations
Forced expiratory volume decreased
3.3%
2/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Investigations
Pulmonary function test decreased
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Renal and urinary disorders
Renal failure
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Renal and urinary disorders
Renal failure acute
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Congenital, familial and genetic disorders
Cystic fibrosis
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Hepatobiliary disorders
Gallbladder pain
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Injury, poisoning and procedural complications
Femur fracture
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Neoplasms benign, malignant and unspecified (incl cysts and polyps)
Colon cancer
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Vascular disorders
Deep vein thrombosis
1.6%
1/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.

Other adverse events

Other adverse events
Measure
Ataluren
n=61 participants at risk
Participants received ataluren suspension orally TID, 10 mg/kg at morning, 10 mg/kg at midday, and 20 mg/kg at evening (total daily dose 40 mg/kg) for 192 weeks.
Infections and infestations
Gastroenteritis
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Infective pulmonary exacerbation of cystic fibrosis
82.0%
50/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Influenza
6.6%
4/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Nasopharyngitis
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Oral candidiasis
6.6%
4/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Sinusitis
9.8%
6/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Upper respiratory tract infection
14.8%
9/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Infections and infestations
Viral upper respiratory tract infection
36.1%
22/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Abdominal pain
9.8%
6/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Abdominal pain upper
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Constipation
11.5%
7/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Diarrhoea
13.1%
8/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Haemorrhoids
6.6%
4/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Nausea
9.8%
6/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Gastrointestinal disorders
Vomiting
6.6%
4/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Respiratory, thoracic and mediastinal disorders
Cough
14.8%
9/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Respiratory, thoracic and mediastinal disorders
Haemoptysis
19.7%
12/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Musculoskeletal and connective tissue disorders
Arthralgia
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Musculoskeletal and connective tissue disorders
Back pain
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Musculoskeletal and connective tissue disorders
Musculoskeletal chest pain
6.6%
4/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Immune system disorders
Drug hypersensitivity
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.
Nervous system disorders
Headache
8.2%
5/61 • Baseline up to end of study (Week 196)
As-treated population included all participants who received at least 1 dose of ataluren.

Additional Information

Patient Advocacy

PTC Therapeutics, Inc.

Phone: 1-866-562-4620

Results disclosure agreements

  • Principal investigator is a sponsor employee The Sponsor can review results and/or communications prior to public release and can embargo communications regarding trial results for a period that is up to 180 days from the time submitted to the sponsor for review. The sponsor may consult with the PI to require changes to the communication or extend the embargo.
  • Publication restrictions are in place

Restriction type: OTHER